Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Consider The Diet!


Terch

Recommended Posts

Terch Apprentice

Hi,

I just want to say that I have had an endoscopy that came up negative. My GI did not do any blood work for Celiac, and it's too late now for that since I have been gluten free for 9 weeks and I am never going to go back on it. I am still waiting for more medical results and do see my GI in two weeks again. He is testing me for Crohns now. I told him I was on this diet and he said to keep it up! I would recommend to anyone that has any digestive problems to go gluten dairy and soy free just to see if they improve some of their symptoms. I kept thinking the diet wasn't working because after 6 weeks I still didn't notive an improvement but I was told to keep hanging on and I did. Finally 2 weeks ago I noticed a good couple of hours. I said to my husband " I don't have any pain right now!" and I kept on the diet and soon I was having a couple of good days and now I am having a GOOD WEEK! Thanks to all who said to keep this up, I am still going to be tested by enterolab for curiosity sake. And no matter what the diagnosis even if it is Crohns I will know that this diet has helped.

Once again THANK YOU for this site, this advice and my hope is that all those that are suffering will find some resolution.

Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi Terch, I'm so glad that you're feeling better! :D

happygirl Collaborator

Terch,

whatever the "reason"---celiac, gluten intolerance, gluten sensitivity etc.---I am so happy to hear that you are feeling better because of diet changes. Good for you----it sure does feel better, doesn't it?

we are happy to have you here and happy that you are doing better. I hope it continues :)

Laura

par18 Explorer

Hi,

When I read a post like yours in which you are taking control of your health I am really encouraged about the future. I think it will be the "preventive medicine" approach that will ultimately make the biggest impact to getting more and more people to try the diet first. I applaud you for not being afraid to go forth without getting an "official" diagnosis. The idea of still getting a blood test is good in that it gives you a reference point in which to gauge your progress. Anyone who can improve the quality of their life without having to get really ill is a plus. Congratulations on what you are doing.

Tom

Nantzie Collaborator

I also had completely negative test results. If it wasn't for me finding this forum and doing the diet no matter the test results, I would have still been trapped in my house because of "bathroom problems". I also would have had a handicapped placard for my car and probably a Lark scooter of some sort by now.

Gluten is a horrible thing for those of us who react to it. It just overwhelms me how many people out there must be suffering and have no idea that the "cure" is SOOOOO close.

Nancy

daffadilly Apprentice

Congratulations on your better health and also for going on the diet without the need for "doctors orders". It is so refreshing to hear from people that have learned to think for themselves!!!!

Yes, the blood test might be a good idea, but be prepared for it to be negative. I would encourage you to go the Enterolab route & check the genes also.

wow, those people must be busy, two of my family members have a test in there at the moment and two friends, & I keep reading about all the new people that are testing there, even the new people at my support group are using them!! The word is out :D

Nantzie Collaborator
I would encourage you to go the Enterolab route & check the genes also.

wow, those people must be busy, two of my family members have a test in there at the moment and two friends, & I keep reading about all the new people that are testing there, even the new people at my support group are using them!! The word is out :D

That's true. Even a friend of mine, who moved away three years ago, told me that her sister did a stool test for celiac at her M.D.'s office and that it would be a few weeks before the tests came back. As far as I know, Enterolab is the only lab that even does a stool test. Celiac runs in her family too.

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



daffadilly Apprentice

yes, the doctors are now using them also, from what I hear, and some doctors are also reading these boards...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    5. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,346
    • Most Online (within 30 mins)
      7,748

    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.