Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tampa, Orlando, Disney, Universal...etc...etc...

jnifred

By jnifred
in Traveling with Celiac Disease

Recommended Posts

jnifred Explorer
jnifred
Posted

So we are taking the boys to Florida to visit grandparents and enjoy 8 days of sunshine. We have a condo in Orlando so I will be able to do some cooking and etc. Don't want to do much though, and knowing my family as I do, the boys will NOT want to eat in often. Breakfast is the one thing I will be able to count on.

SO....

I need to know where I can find gluten-free products, so I don't have to pack a bunch in our suitcases. I am also making Thanksgiving dinner at the in-laws, so need some gluten-free bread and etc, that I would rather not pack in my suitcase either. They are actually in Zephyr Hills. I'd like to get a lot of the stuff when we are there on Fri/Sat and leave it for T-Day.

SO .......ANYONE?????? I'd love to have a couple Chebe mixes to make crackers, a loaf of bread to toast for stuffing, and the rest I can make do with regula grocery stuff.

THanks for any help you have to offer.....

OH, and does anyone know how good Disney, MGM and Universal are with gluten-free foods??? AM I going to starve when we are out and about???? Do i need to pack my own feed bag????? :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jnifred Explorer
jnifred
Posted
  • Author

Actaully the condo is in Kissimmee.....Thanks again

Guest cassidy
Guest cassidy
Posted

I can help you with the Zephyrhills part. There is a health food store on the main road, Gall Blvd near the post office. I can't remember the name of it right now. It is very small and doesn't have an impressive selection.

You will be better off going to the Dade City health food store. It is in the downtown area in the same building as the Kiefer Jewelry store. I'm sure your in-laws will know where that is. They have a good selection of bread mixes, crackers and Tinkyada pasta. It is a small store but should have what you need.

Disney is great for celiacs. They are very accommodating and I'm sure someone who has been there recently can give you some specifics.

Have a good trip.

chgomom Enthusiast
chgomom
Posted

I just took my son and many of the Disney Restaurants have things like fresh fruit, veggies and cold chiken plates with veggies.

There are also some smoothie stands which are gluten free.

Also....I highly recommend Denny's on the strip leading up to Disney.

They were very accomadating in cooking and have alot of experience with it.

I mean I take that with a grain of salt, but they will cook it on a clean grill, and make sure the food is free of anything you ask...I personally had good luck with their chicken, rice and veggies plain.

jnifred Explorer
jnifred
Posted
  • Author

THANKS.....I will be talking to the inlaws tonight hopefully and see if they know where the Jewelry store is.

And RE: Disney.....I think I should call and see if they have a list of the gluten-free foods. I ahvent foun one online yet, but of course I have gotten distracted this morning when I started packing, I ended up deciding to clean out my closet and soooooo........I am going to be completely absorbed in getting everything put back together before kids get home, so I can get theirclothespacked!!!

Thanks again....

jmengert Enthusiast
jmengert
Posted

Jnifred--I am going to Walt Disney World in January, and I just got a bunch of things emailed to me from Disney personally about gluten-free, soy free, and dairy free foods. If you would like me to send them to you (there are about 6 documents), PM me with your email address and I can send them to you.

jnifred Explorer
jnifred
Posted
  • Author
Jnifred--I am going to Walt Disney World in January, and I just got a bunch of things emailed to me from Disney personally about gluten-free, soy free, and dairy free foods. If you would like me to send them to you (there are about 6 documents), PM me with your email address and I can send them to you.

THANK YOU !!!!! I should have started looking into all this earlier, jsut too much going on chasing kids and carpooling and etc......alwasy down to the wire with me.

ANyway, i have hopefully pm'd you......thanks again!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jmengert Enthusiast
jmengert
Posted

I just sent you all the info, so just let me know if you don't get it! Disney sure does seem great for us with celiac and other intolerances!

StrongerToday Enthusiast
StrongerToday
Posted

We went to Sea World (which was a great day!) and they totally bent over backwards to accomdate me - the manager even offered to cook my food on a sperate grill!

jnifred Explorer
jnifred
Posted
  • Author

Ohhhh!!! That is great to know about about SeaWorld, inlaws want to go there with us.......and they like to eat out......

jmengert....i got the email. THANKS!!!!

pinktulip Apprentice
pinktulip
Posted

I used to work at Disney World and can attest the fact that they are accomodating. I work in a candy shop and while sadly most of our candy was not Celiac friendly, I do know the resturants are extremely accomodating. Tony's at Magic Kingdom actully told a family with a child recently diagnosed about all types of bread the child could have. Just tell you waitress or waiter and they will pass it on to the chef, and most times from what families have told me is that the chef will personally come and talk to the family. I hope this helps. Oh also most buffets have fresh vegetables and grilled meats as well as salads and other foods.

StrongerToday Enthusiast
StrongerToday
Posted
Ohhhh!!! That is great to know about about SeaWorld, inlaws want to go there with us.......and they like to eat out......

jmengert....i got the email. THANKS!!!!

Sea World was fantastic, I really enoyed it - esp. since I knew I had a great, safe meal!! I will warn you though, if you sit in the Shamu Spalsh Zone do NOT wear a white t-shirt :rolleyes:

morningstargirl Rookie
morningstargirl
Posted
I just sent you all the info, so just let me know if you don't get it! Disney sure does seem great for us with celiac and other intolerances!

Hello jmengert, I am new to this website (just joined yesterday) and Celiac's Disease. Next month, I'm taking my daughter to Disneyworld and saw your post about the info you received. I was wondering if there is anyway you would be willing to share that info again. I hope its not out of line or anything to ask. Thanks. Connie

loraleena Contributor
loraleena
Posted

If you type in gluten free dining in Disney world you will get some good info. I am researching myself right now. Also there is a Whole food one exit up from Orlando in winter Park. There is also an Outback, PF changs, and Carabbas.

NiqueP Rookie
NiqueP
Posted

Julie,

Could you please send me the disney info. Thanks A1piet@aol.com

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein...
    2. trents
      - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    3. Seabeemee
      - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Thanks for your reply Trents…most appreciated. I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population? Also, I found what you said about N...
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    5. JoJo0611
      - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748
    Annette Hill
    Newest Member
    Annette Hill
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      What's your daily meals? Protein bars?

      By xxnonamexx · Posted

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Labs ? Awaiting in person follow up with my GI

      By trents · Posted

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Yeast extract

      By JoJo0611 · Posted

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.