Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Your Iron Be Normal And Still Be Celiac?


girlfromclare

Recommended Posts

girlfromclare Apprentice

Hi guys I am waiting for my husbands celiac test results to come back as we are trying to establish a family history. My son has symptoms but his bloods were negative. However we still put him on the diet. its only been two days so nothing major to report just yet. But back to my husband, who has a lot of symptoms, if his bloods dont come back positive, it will be very hard to convince family members that we are doing the right thing with our son. they will comply but most likely it will be grudgingly. Anyway my question today is, if it is possible to have celiac disease if your iron levels are normal? His iron levels apparently came back fine.... and this has set me up for disappointment re: his celiac results.

thanks in advance!!!

regards,

liz


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

It seems that with celiac anything is possible. My ftaher was not anemic and yet his blood tests were positive.

richard

ravenwoodglass Mentor
Hi guys I am waiting for my husbands celiac test results to come back as we are trying to establish a family history. My son has symptoms but his bloods were negative. However we still put him on the diet. its only been two days so nothing major to report just yet. But back to my husband, who has a lot of symptoms, if his bloods dont come back positive, it will be very hard to convince family members that we are doing the right thing with our son. they will comply but most likely it will be grudgingly. Anyway my question today is, if it is possible to have celiac disease if your iron levels are normal? His iron levels apparently came back fine.... and this has set me up for disappointment re: his celiac results.

thanks in advance!!!

regards,

liz

It is possible, my DH was positive in blood work for celiac but had no malnutritive deficits. His iron, B12 and the rest were in normal ranges.

nikki-uk Enthusiast

Although my husband was anaemic at the time of diagnosis my son wasn't.

Both his haemoglobin and ferratin stores were at normal levels - so it is possible!!

girlfromclare Apprentice

Thanks guys. Appreciate that. I thought that was it, that there was no way he could be celiac if his iron levels and platlet count etc were all normal. I guess he could still be negative but I have already started him on the diet too in the hope that it would help alleviate some of his symptoms... although he doesnt see any changes just yet cause its early days. Ill keep you all posted though and thanks so much.

Jestgar Rising Star

Women become anemic much more quickly because we lose blood every month...

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.