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I Am Trying Not To Borrow Worry


skipper30

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skipper30 Enthusiast

I am trying my best not to read too much into what is going on here, but I need some guidance from parents who are in the know...

Our youngest son(almost 10 months) has started "throwing up". I personally do not call it spitting up...it is way more than that. Before now, he has spit up less than 5 times. I know this because I was thinking earlier in the week how odd that was. But now in the last week he has done this 4-6 times.

He was born at 34 weeks and spent 23 days in ICU. He was also dx with reflux...he was on meds but that "seemed" to go away, and hasn't been on the meds for 7 months or so.

Sutton isn't running fever, acting like he feels bad, grumpy or anything like that. I guess what I am looking for is this...is this related to his reflux or could it be Celiac. Cooper never threw up like this so this is a WHOLE new symptom for us (if it is). Cooper had D, C, extreme fatigue, anemia, paleness, gas, tummy aches.

Any input would be appreciated and I won't hold you to any DX!! ;)

TIA...Dallas


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GFBetsy Rookie

It could be either. If you have another child who has been diagnosed, your younger child has a 1 in 10 chance of having celiac. And there have been posts recently where people have mentioned that throwing up was their child's only symptom of celiac.

Have there been any dietary changes recently that this might be associated with? (Is he eating anything "new"?) Or it might be a viral thing that will pass . . . . I'd say that if he throws up like this for longer than 10 - 14 days, I'd go in and have him checked for celiac in prticular, as well as having a dr. check him out in general (just in case it's something else). If he starts throwing up more often, though, I'd take him in right away. No sense in taking chances.

Kibbie Contributor

My daughter's only Celiac symptom was vomiting... I kept telling people that "if I didn't know better I'd say she had reflux...

My daughter was also very pale, had purple circles under her eyes and eventually was gassy and showed signs of tummy aches (this way about a month after the vomiting showed up while we were still having testing done) She threw up 1-4 times a day for appx 1.5 months until we went gluten free after her biopsy. It took about 3-5 days and she has been symptom free since then :)

I'd say Celiac is worth checking into!

I am trying my best not to read too much into what is going on here, but I need some guidance from parents who are in the know...

Our youngest son(almost 10 months) has started "throwing up". I personally do not call it spitting up...it is way more than that. Before now, he has spit up less than 5 times. I know this because I was thinking earlier in the week how odd that was. But now in the last week he has done this 4-6 times.

He was born at 34 weeks and spent 23 days in ICU. He was also dx with reflux...he was on meds but that "seemed" to go away, and hasn't been on the meds for 7 months or so.

Sutton isn't running fever, acting like he feels bad, grumpy or anything like that. I guess what I am looking for is this...is this related to his reflux or could it be Celiac. Cooper never threw up like this so this is a WHOLE new symptom for us (if it is). Cooper had D, C, extreme fatigue, anemia, paleness, gas, tummy aches.

Any input would be appreciated and I won't hold you to any DX!! ;)

TIA...Dallas

mommida Enthusiast

My daughter would vomit and have "D". I also noticed how her belly would bloat, which was blown off by every ped. The worst thing is the tests are not that accurate in a child under 24 months.

Sophiekins Rookie

I would talk to your doctor, just to be on the safe side - it can't hurt to have the bloodwork done at least - but I will say that my nephew Bu went through a stage (when he was 4-5) where he threw up on about a daily basis. It turned out that the problem was he was eating too fast and therefore too much and when his little tummy tried to digest everything it would panic and make him throw up. He's now 6 (and we supervise his food intake very carefully) and has no problems. It could just be a phase. . .

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
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