Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nyc Nutritionist For Celiac


angel42

Recommended Posts

angel42 Enthusiast

Hi,

Since being diagnosed I have pretty much put myself on an extremely restricted diet. It seems like all I eat anymore is eggs, fish, yogurt and cheese since I know those are safe. I need to vary my diet a bit without having to worry about getting sick. I have actually been losing weight which in my case is not actually a good thing since I am already thin. I thought a Nutritionist would help but I need to make sure they are familiar with Celiac since it'll be kind of pointless if they don't. Can anyone help?

Thanks!!!!!!!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Clark Bent as Stupor-Man Contributor

the nutritionist I was going to the first half of this year had an office in NY as well as down here in central jersey... she's actually up at her office in NY (Staten Island it looks like from her business card) every day but one during the week.. her son was diagnosed with celiac disease so she's familiar with it and she's fairly knowledgable about a lot you see discussed on this board (candida, adrenal fatigue, food intolerances, etc.)...

it may be a bit pricey to see her but that's probably the case for most nutritionists as insurance frequently doesn't cover it (and only the first visit costs a lot due to an evaluation she does of your health for which she provides an extensive document analyzing your situation and providing a gameplan), but it's worth it to at least give the office a call and set up a free consultation... personally, although I'm still trying to figure some things out, I did find it beneficial going to her earlier this year and learned a lot from it.. I also plan on going back again soon enough after getting a food intolerance test done with immunolabs... also, she's very good at getting back to you either through email or by phone

her information is:

Dr. Adria Rothfeld-Magenheim

(718) 370-7500

sillyyak Enthusiast
Hi,

Since being diagnosed I have pretty much put myself on an extremely restricted diet. It seems like all I eat anymore is eggs, fish, yogurt and cheese since I know those are safe. I need to vary my diet a bit without having to worry about getting sick. I have actually been losing weight which in my case is not actually a good thing since I am already thin. I thought a Nutritionist would help but I need to make sure they are familiar with Celiac since it'll be kind of pointless if they don't. Can anyone help?

Thanks!!!!!!!!!!!!!!

try the celiac disease center at columbia university

  • 2 weeks later...
jkmunchkin Rising Star

Anne Lee at Columbia. They have a special center for celiac there, and she is a nutritionist that specializes in it.

flagbabyds Collaborator

Anne Lee is who I would reccomend, she was at the columbia international symposium and was really good!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.