Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ignorant People


clhsc

Recommended Posts

angel42 Enthusiast

I totally understand. I used to bake constantly before I was diagnosed around 1 1/2 months ago. My MIL gave me such a hard time because I didn't bake for Thanksgiving. I told her I would be happy to make something gluten-free. She quite pointedly said "absolutely not" I'm sure I'll get the same hard time for Christmas. I'm just going to make some gluten-free cookies and bring them over and not tell her they are gluten-free. :)

My really sweet boss ordered me a salad from Fatz and went into great detail about NO CROUTONS, NO BREAD... and she requested that they mix it all in a clean bowl! My goodness, I love her!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

I would be compelled to sign said person up to bring a large rat poison lasagne. Then I would tell her that gluten and her pasta salad has the same effect on you as that rat poison lasagne would have on everyone else.

tiredofdoctors Enthusiast
I would be compelled to sign said person up to bring a large rat poison lasagne. Then I would tell her that gluten and her pasta salad has the same effect on you as that rat poison lasagne would have on everyone else.

That's the best one yet!!! We had Thanksgiving at my in-laws, and my MIL -- bless her heart -- just doesn't get cross contamination. My SIL, though, does, so she called, asked me about ALL of the ingredients, and made a special dish WITHOUT the cracker crumbs first, then covered it so that I would have SOMETHING to eat. At my mother's, my cousin was getting ready to put rolls in the oven. My aunt asked what a particular dish was, and my mother said, "Oh, that's Lynne's macaroni & cheese." She was standing right by the oven, so I quickly asked, "Is it covered?" No one answered . . . I again, kind of frantically said, "Is my macaroni & cheese covered?" My aunt turned around and said, "What's the big deal . . . there's no flour around here." I said, "Well, those rolls are getting ready to go into the oven, and if even a CRUMB gets into my macaroni & cheese I can't eat it." My aunt did the eye-roll thing. It made me furious, and my mouth just took over my body. I just looked at her and said, "You know, if I was a REGULAR 'stomach' celiac, I would throw up, have diarhhea, things like that. But one crumb of bread means that I will have at least one more brain cell destroyed. If it gets to my brain stem, you guys will have a neice that's a vegetable. On life support. Who's going to decide to pull the plug?" The whole kitchen got VERY quiet (we're talking a really loud family -- my mom & her sisters are LOUD -- not to mention, cousins, etc.) My mother said, trying to smooth things over, "Well, it's covered, so we don't have to worry." THEN, my aunts began to question my mother -- they said, "So it's an allergy?" From the other room, I said, "No, it's an autoimmune disease. Just like Rheumatoid Arthritis or Lupus." Then later on, my dad was trying to tell my uncles about it. They again said, "So, she has an allergy to wheat? My dad didn't quite get it right -- he said, "Oh no -- not just wheat, barley, rye, oats -- or ANYTHING that has it IN it. That's the problem. You don't know all the time if it's in it. It's really frustrating." I just gently said, "Daddy, you forgot the part that it's not an allergy. It's an autoimmune disease." Then he said, "Oh yeah. What happens is . . . . " and went on to describe the whole process of how it destroys the brain. I was impressed -- he's done his homework!

I think it's funny that even RELATIVES would be so callous about a disease that is so devastating. Co-workers -- it's no wonder they're like that. If they only had to live with this disease for two days . . . . .

I'm sorry to hijack the thread with my rant -- just realized I did. It just infuriates me that ANYONE would disregard a disease like this. SIGNED YOU UP TO BRING PASTA SALAD? PUHLEEEEEEEEZE. It would have been fun to have a friend cook some pasta salad and make it taste TERRIBLE. Bet they wouldn't sign you up for it again!!!!!!!

2Boys4Me Enthusiast
My aunt turned around and said, "What's the big deal . . . there's no flour around here." I said, "Well, those rolls are getting ready to go into the oven, and if even a CRUMB gets into my macaroni & cheese I can't eat it." My aunt did the eye-roll thing. It made me furious, and my mouth just took over my body. I just looked at her and said, "You know, if I was a REGULAR 'stomach' celiac, I would throw up, have diarhhea, things like that. But one crumb of bread means that I will have at least one more brain cell destroyed. If it gets to my brain stem, you guys will have a neice that's a vegetable. On life support. Who's going to decide to pull the plug?" The whole kitchen got VERY quiet (we're talking a really loud family -- my mom & her sisters are LOUD -- not to mention, cousins, etc.)

Lynne - you forgot the part where you tell them it's genetic and you got it from one of THEM. Start pointing fingers. "You! Passing out after eating the turkey and stuffing. You're next! This will be you one day!"

Of course you have to do that when your Mom and Dad are not within earshot but I bet you'd feel pretty good. That'd shut them up and stop their eye-rolling. Or would it? :ph34r:

zansu Rookie

Did you ever consider that WHY family are so bad about it. The possibility that they have or will have it? and that they are still in denial?

ajay Newbie
So, we are having a party at work today. Usually we sign up for food to bring and I will bring a big salad for myself and a coworker who have celiac disease. How about this girl signed me up to bring three pounds of pasta salad?

Since when do other people sign you up for what you're going to bring? That alone sounds rude to me.

I know I'm reaching here, but a surprising number of people don't think about food ingredients. It's possible that she didn't realize that pasta is a wheat product. I know that sounds ridiculous, but trust me, I've had people offer things like "Well, obviously I can't make it wioth bread-- should I use a pita pocket?"

Or one sweet waitress who kindly checked the ingredients of a dish and sadly informed me that the dinner rolls had wheat in them. Nice of her to check, but, yeah, I knew that one...

Smooreberry Newbie
Lynne - you forgot the part where you tell them it's genetic and you got it from one of THEM. Start pointing fingers. "You! Passing out after eating the turkey and stuffing. You're next! This will be you one day!"

Of course you have to do that when your Mom and Dad are not within earshot but I bet you'd feel pretty good. That'd shut them up and stop their eye-rolling. Or would it? :ph34r:

I'm crying I am laughing sooooo hard!!! I'm seriously saving this one. I avoided Thanksgiving but this may come in handy if I go home for Christmas. You ladies rock!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    2. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

    3. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

    4. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

    5. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.