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Explaining Gluten-free And Cc


Mtndog

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Mtndog Collaborator

Hi Everyone- I hope people take this the right way, but I have been surprised by the experiences some people have had with dining out and servers. Maybe I have had really good luck, but I was talking to a server this weekend and she told me that she has encountered many defensive/angry celiac's. I was really surprised to hear this as she was super-sweet. She said that many people come in with an attitude of what sounds like entitlement :blink: (my word, not hers).

It's best to call ahead and let them know you'll be coming (I've gotten the royal treatment just by doing this on SEVERAL occasions). Explain what gluten is and the most common culprits (flour, bread, pasta, breadcrumbs). And Courtney (corkdarr) just posted in her thread a great analogy for CC Here it is:

"Then came my most clever analogy. I explained that one of the biggest problems eating out for celiacs is cross contamination. This is found in the salad area if a salad is not freshly made, and can be found on the grills, etc...So I explained it to him using terms HE understood - I said, "Bill, just like how you don't cut chicken on the counter and then use the same knife and workspace to prepare your veggies and bread, etc...you can't use the same stuff when gluten is around." This goes for utensils, bowls, plates, pans, everything.

I know it sounds extreme, but what a great analogy for a lifelong chef who also teaches food safety.

Haha..when you think of gluten, think of salmonella!" SUCH A GREAT ANALOGY!!!!!

I think you'll catch a lot more butterflies with sugar than with vinegar. I thought everyone who had celiac was nice :P At least everyone on here is!


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Kaycee Collaborator

Yes it is a great analogy, but I don't quite like the reference to salmonella, I just hate that word, and all the tummy aches associated with it, but I guess the results will be similar if we had samonella poisoning or gluten.

Yes we are all nice and wonderful on here. I personally think I am a nicer person gluten free, I have had a personality change, as I don't get so cranky.

Cathy

Mtndog Collaborator
Yes it is a great analogy, but I don't quite like the reference to salmonella, I just hate that word, and all the tummy aches associated with it, but I guess the results will be similar if we had samonella poisoning or gluten.

Yes we are all nice and wonderful on here. I personally think I am a nicer person gluten free, I have had a personality change, as I don't get so cranky.

Cathy

Maybe that's the problem....maybe her customers weren't fully gluten-free yet! :P

Then again, you see all those rude customers who don't have celiacs anyway. :P

I just thought I'd put it out there, because if you want to educate someone, it's best not to "school" them. :P

mommida Enthusiast

So what do you do when they say, "Sal?, Sal who? I don't think I've ever met a Sal Minila." :huh:

L.

Nancym Enthusiast
So what do you do when they say, "Sal?, Sal who? I don't think I've ever met a Sal Minila." :huh:

L.

They're friends of the Ptomaine's and they always go out to eat at Sam N' Ella's Cafe. You remember, the couple with the little daughter named Listeria?

2Boys4Me Enthusiast
:lol::lol:
Mtndog Collaborator

OMG- too funny!!!!!!!!!!!!!!! :P:P


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breann6 Contributor

thanks good analogy for sure. i'll be using it when i work my nerve up to go back out...sticking to gluten free home now, or at most gluten-free menu establishments now though. i am not having any success with dining out yet. two tries and two strikes even with the triumph cards...actually the first (japanese) -tried- to accomodate but thought i meant no SOY instead of gluten....stupid story and got sick.....second time was tonite and the waitress read the triumph card out loud in the middle of the restaraunt at our table- the can't eat part- and said okay so just don't eat these things and you'll be fine....no crap (no pun) but I kinda needed to know- if the derivatives were in any sauces or seasonings etc....whatever, didn't eat and won't ever go back....sorry this kinda turned into a vent...

anyhoo; i like the analogy and i'll use it :D

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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