Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Health Day Yesterday/today


num1habsfan

Recommended Posts

num1habsfan Rising Star

I know I rant about this stuff here a lot, but I havent been in this much pain in a while, if ever. i dont know what happened. I didnt get contaminated somehow because the extreme diarrhea started in the morning. even when I wasnt eating/drinking I was emptying. And then I tried to eat again and some stayed in me but on my walk to school yesterday I almost passed out twice (from the dizziness/nausea). Then at school it wasnt SO bad, I sat in a dumb chair most of the day so that was uncumfy. Then towards the end of my classes already I had diarrhea again--with blood. Then it appeared like I was starting my time of the month again (much later during classes, i'm SURE the 2 arent connected). But there wasnt much there.

As the night progress i got WORSE. The pains were (and still are) too much to handle. I've never felt my right side throbbing me this bad. And I cant say its from time of the month, if i get cramps from those its right across the whole stomach, not just my left side.

In the middle of the night I was tempted to wake up my landlord or the other lady that lives here to take me to the hospital, but i didnt--instead I tried to sleep. I finally passed out around 5:30, woke up 12:30 (but a ton of tossing and turning in between).

Today like I said, I'm not any better. I still have that THROBBING pain. And yet again, theres more blood when I go pee than there is on the pad. And its VERY painful to pee today...

I'm gonna call mom right away and see if dad works any late shifts this week and see if she can sneak me in to the docs SOON :blink:

*sigh* how I wish one of these towns had a walk-in clinic :(

~ lisa ~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

Oh Lisa.. You poor thing. It sounds like a bladder infection. Have they checked your kidneys. If I remember right you had an infection a few months ago.

Definitely go to the doctor.

Nancy

num1habsfan Rising Star
Oh Lisa.. You poor thing. It sounds like a bladder infection. Have they checked your kidneys. If I remember right you had an infection a few months ago.

Definitely go to the doctor.

Nancy

My mom called...soonest I can get in is 9:10 Thurs morning. that means I gotta miss my one class tomorrow but oh well...I wish I didnt have to go to school today :( . That mile walk right now is gonna be awful

~ lisa ~

jerseyangel Proficient

Lisa,

I was going to say the same thing Nancy did. I see you have an appt. that's good. Let us know :)

jesscarmel Enthusiast
I know I rant about this stuff here a lot, but I havent been in this much pain in a while, if ever. i dont know what happened. I didnt get contaminated somehow because the extreme diarrhea started in the morning. even when I wasnt eating/drinking I was emptying. And then I tried to eat again and some stayed in me but on my walk to school yesterday I almost passed out twice (from the dizziness/nausea). Then at school it wasnt SO bad, I sat in a dumb chair most of the day so that was uncumfy. Then towards the end of my classes already I had diarrhea again--with blood. Then it appeared like I was starting my time of the month again (much later during classes, i'm SURE the 2 arent connected). But there wasnt much there.

As the night progress i got WORSE. The pains were (and still are) too much to handle. I've never felt my right side throbbing me this bad. And I cant say its from time of the month, if i get cramps from those its right across the whole stomach, not just my left side.

In the middle of the night I was tempted to wake up my landlord or the other lady that lives here to take me to the hospital, but i didnt--instead I tried to sleep. I finally passed out around 5:30, woke up 12:30 (but a ton of tossing and turning in between).

Today like I said, I'm not any better. I still have that THROBBING pain. And yet again, theres more blood when I go pee than there is on the pad. And its VERY painful to pee today...

I'm gonna call mom right away and see if dad works any late shifts this week and see if she can sneak me in to the docs SOON :blink:

*sigh* how I wish one of these towns had a walk-in clinic :(

~ lisa ~

that sounds awful- im surprised you have not gone to the hospital yet- can you wait until thursday?? maybe you should go to the er today??!! i hope you feel better soon and will be thinking of you :)

num1habsfan Rising Star
that sounds awful- im surprised you have not gone to the hospital yet- can you wait until thursday?? maybe you should go to the er today??!! i hope you feel better soon and will be thinking of you :)

Thanks hun! :) I'm still not feeling any better--still cant sleep, still cant barely eat, still in awful pain. So tomorrow will have to do I guess :blink: As long as i get something for the pain, it dont even matter to me already what they give me or what testing they do. Because its totally making school impossible to focus... :unsure:

I PROMISE I will post in the morning/afternoon after my appointment to see if it was a waste of time or not..hope for me it wont be!!

~ lisa ~

2Boys4Me Enthusiast

How much longer until your appointment at Foothills? Couple weeks? I hope they can help you figure it out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



num1habsfan Rising Star
How much longer until your appointment at Foothills? Couple weeks? I hope they can help you figure it out.

No actually another 46 days til Foothills. The guy today was just useless. He was some family doc i never saw before and he gave me a couple prescriptions of things I've had before and said "not much this Canora doctor can do" (which really is true if you think about it). And that was it. And he was sympathetic, he said "thats gotta be rough for you" -- at least he dont think i'm making it up! Blah....

~ lisa ~

jesscarmel Enthusiast
No actually another 46 days til Foothills. The guy today was just useless. He was some family doc i never saw before and he gave me a couple prescriptions of things I've had before and said "not much this Canora doctor can do" (which really is true if you think about it). And that was it. And he was sympathetic, he said "thats gotta be rough for you" -- at least he dont think i'm making it up! Blah....

~ lisa ~

gosh, thats frustrating. are you still have bleeding?

num1habsfan Rising Star
gosh, thats frustrating. are you still have bleeding?

Nope. thats the problem, I really only have that symptom very periodically. So by the time I got to him, it was gone. *sighs* Calgary cant come soon enough :(

~ lisa ~

Nantzie Collaborator

How frustrating. I'm praying you get some answers in Calgary.

:(

Nancy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.