Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is My Mother Wrong Or Right?


Mal

Recommended Posts

Mal Explorer

I've been Celiac for about a month now and learned a tremendous amount from this website, and my mother said 2 me yesterday that I can only get glutened via my gut......but isn't that wrong? What about shampoo and lipstick and even touching gluten. Is she right and I'm wrong, someone help...I'm very confused.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Shampoo and lipstick can get in your mouth, as can hand lotion. The only body care product I don't worry about is nail polish because I only use it on my toes! Anything else can get in your mouth ... either when you use it, or, for example, when you touch your hair, then eat finger food like potato chips.

So, you're both right, it does the damage via the gut; however, body care products can get in your mouth.

Guest cassidy

The issue with shampoo and lipstick is getting it in your mouth. Someone posted a while ago how surprisingly often shampoo gets in your mouth. If you use lotion with gluten and put your hands in your mouth, that can get you as well. Even licking envelopes can be bad if there is glue in the gluten.

Some people are very sensitive to using gluten on their skin (usually those with dh) and even smelling it.

So, technically I don't know if what your mouth absorbs goes into your gut, but either way, you should avoid products that contain gluten.

lovegrov Collaborator

Touching gluten certainly isn't a problem for me as long as I wash and don't put it in my mouth. And I had DH.

richard

Guest nini

some people like my daughter break out in hives from just touching gluten. Me, I can touch it as long as I wash my hands really well before I eat after handling any gluten. I don't wear makeup or use any personal care products with it though because I don't want to kiss or hug my daughter and have her break out in hives.

Rusla Enthusiast

As for nail polish even that I check for gluten. If even a minute amount of it flakes off into something I am eating and it has gluten in it I am sick. For me a minute amount of crumbs that may get on my hand then if I eat something I am sick. It takes such a small amount to make me very ill and have my DH break out.

Ursa Major Collaborator

When I was still using shampoo with wheat germ oil, my scalp was covered in a rash and excruciatingly itchy. I don't know if it was DH or not, but it doesn't really matter. When I switched to gluten-free shampoo and conditioner (Dove), that problem slowly went away. My head rarely gets that itchy now.

So, whether the shampoo got into my mouth or not I don't know, but the gluten in it was affecting my skin.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TinkerbellSwt Collaborator

I seem not to have a problem with my hair care products that contain wheat. I am a hair twirler too. I just wash my hands alot, especially before a meal. I dont wear lipstick that contains gluten, as I am sure I will ingest that. I know I probably shouldnt be using the shampoo, in fact Carla gave me a good one to try. As soon as I have the money to go and buy it (its on the expensive side) I will be trying it.

So ... please dont go by my example. I am by no means saying I dont get gluten in my system because of my hair care products.. I personally wouldnt recommend it to anyone.. I say this as though I dont use the stuff... :ph34r:

Guest cassidy
As for nail polish even that I check for gluten. If even a minute amount of it flakes off into something I am eating and it has gluten in it I am sick. For me a minute amount of crumbs that may get on my hand then if I eat something I am sick. It takes such a small amount to make me very ill and have my DH break out.

I never thought of that. I usually just paint my toes so I would hope there is no way for my toe nail polish to get into my food. If I ever paint my fingers I will remember to check that. Talk about hidden gluten!

zansu Rookie
I usually just paint my toes so I would hope there is no way for my toe nail polish to get into my food.

:lol::P:lol:

2kids4me Contributor

mY daughter gets a deep red rash followed by excema if she touches wheat flour - found that out when the class did school project and made paper mache masks.

She came home from school and her hands were red, she had blotches anywhere she had scratched herself with her glutened hands.

You can't get villous atrophy from coming into contact with it - but it can make you sick - skin reaction or systemic symptoms. Varies with each individual.

Sandy

darlindeb25 Collaborator

I too break out in hives if wheat is on my skin. It is a well known fact that inhaling gluten can make us sick--although, they aren't sure if in inhaling it, it may be that the person is a mouth breather and the air particles are getting in their mouth and swallowed--I do know that most gluten intolerant can not work in bakeries.

Ursula, as I was reading your post about your itchy head from a shampoo with wheat germ, a light came on in my mind. I had purchsed VO5 shampoo for a very good price. It is strawberries and cream and smells so wonderful--I even thought I checked the ingredients and I did, I do not believe there is gluten in it, yet just now, I reread the ingredients and there is the culprit for me: soybean extract! I quit using it a few weeks ago because my head started itching. Because the cooler season is upon us, I also thought maybe it was from the temps, yet the itching stopped after I went back to my Pantene. Now I realize, the VO5 was the problem. Sometimes the simpliest answer is so close and yet so hard to see. Thank you.

moomama18 Newbie

My daughter kept reacting even after we had eliminated all gluten from her diet. I read an article about shampoos/lotions so I decided to switch her shampoo and voie laz (sp?). She was a happy camper, started napping for the first time in her life and stopped having gluten poops. This past summer she reacted to suntan lotion as well. So, I would definitely be careful with shampoos/lotions/skin care products.

CarlaB Enthusiast
in fact Carla gave me a good one to try. As soon as I have the money to go and buy it (its on the expensive side) I will be trying it.

I just went to buy Alterna Caviar today ... they added wheat and oats to it. :(:angry: I bought Kenra instead ... don't know if I like it yet.

It's a good thing I've learned my lesson that you need to read the ingredients EVERY time you purchase a product!! They change formulas/recipes all the time!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,975
    • Most Online (within 30 mins)
      7,748

    LRB
    Newest Member
    LRB
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.