Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Trust The gluten-free Label?


emi-220

Recommended Posts

emi-220 Rookie

I was just diagnosed with celiac disease last week so I'm still learning about and trying to adjust to the gluten- free diet. I went to the store and saw that products say that they are gluten free right on the label and I was just wondering can trust all of these products just from that claim? I read that the US doesn't regulate the labeling of gluten free foods. I assume these companies know what they put in their food and what they don't so maybe this is a stupid question but I just wanted to be sure.

Also, if there's nothing on the label that says gluten free, but none of the ingredients are gluten in any form (even the "hidden"/questionable ones) is it safe to say that it's gluten free? or should you always call the manufacturer to be sure? :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

If, in the US, the product says that it is gluten fee (roll it over and verify for yourself), it should be gluten free.

If it says "Wheat Free", it will not be required to list barley, rye, malt and oats for some.(other gluten ingredients)

Gluten free labels mean that it should be safe to consume.

In other words:

Gluten free - great

Wheat Free- check for other gluten additives.

Hope this helps

blueeyedmanda Community Regular

Very tricky,

I trust the mainstream products from the Wegmans which state gluten-free. I never had a problem. They are very good about labeling and if they are not 100% sure they will not put the gluten free circle on it. I always double check the label in the beginning when there is no gluten free listing, I sometimes miss things and have bought a product just to get it home and find malt or something listed. It takes time but once you do it awhile you get into a routine and it is easier to shop then.

Ursa Major Collaborator

There are companies that will absolutely list ALL their ingredients. I know that Kraft is one. If you don't find anything containing gluten in their ingredient list, then there isn't any. There are others, but since I am intolerant to so many things that I can't eat any prepared foods anyway, I'll leave listing other products to others.

You may want to check out Nini's newbie kit, it might answer your questions. You'll find it here: Open Original Shared Link. Scroll down to the bottom to find the links.

Heather22 Rookie

I agree with the above. When buying gluten free, I pretty much stick with the more popular companies, who only make gluten-free food. That way, you can ensure there is no cross contamination. Also, be aware of those foods that should be naturally gluten free (ie. rice cakes), but aren't necessarily free of gluten. Opt for the often more expensive "Gluten Free" ones.

Takes some practice, but eventually it will be second nature.

Best wishes,

Heather : )

Guest cassidy

I don't trust it when it says gluten-free. I am overly cautious but I just really don't like getting sick. If it says gluten-free and it says which allergens are manufactured there, then I trust it.

I have gotten sick from things like Lay's chips which are on their gluten-free list, but are not produced on dedicated lines. I usually choose just to eat things that are produced in an area free of gluten.

In the beginning it was hard to check everything but now I have the brands that I use and I rarely have to check out any products anymore.

emi-220 Rookie

thanks for the input! that's very helpful. now I just have to get used to all this and the new diet ...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Pink-Bunny Apprentice

I agree with Ursula about Kraft...yes I am bias to because my boyfriend works for them...but he explained to me that even if it technically doesn't have gluten in their product if there's the chance of cc they list gluten as an ingredient. which is great because a lot of other companies (not all) just say there is a chance of cc.

lady-motorcyclist Newbie

im new...

What exactly should I be looking for when I read the label? is it going to say wheat or other things that have gluten in it? or will it just say Gluten?

Cynbd Contributor

I am new to this too, but I have been reading labels and find even when they say gluten free they will state on the back that their products are manufactured in a plant that processes wheat, milk, etc. At this point I am just staying away from those products. I was at Trader Joes today and they had gluten free waffles, and I was all excited until I read that there could be cc... so I didn't buy them

It looks like that is the general consensus of this board... correct me if I am wrong.

Then I come home and make tuna salad, take a small bite, and think -- oh jeez, I didn't check the Del Monte label of sweet relish -- bad move -- I tossed it, and started over. YIKES :-)

Regarding Kraft, I have read that Miracle Whip is gluten free, but what about the other Kraft Mayo?

And does it apply to the 'Lite' ones too?

Thanks all,

Paranoid -- Cin

Guhlia Rising Star

In general I trust the gluten free label, but obviously there are exceptions. I always read labels until I am familiar with a particular brand. The only companies I never read labels for are Great Value, Glutino, Ener-G, and Kinnikinnick. There are also certain "gluten free" items I won't touch, these include Bob's Red Mill and Amy's. I've been glutened way too many times by their supposedly gluten free items. Ugh... Not worth getting sick from. Mostly anymore I stick to fresh meats, veggies, fruits, Kraft products, and home baked goodies using Kinnikinnick flours. I've found this to be the easiest way to do it. If you have a super Wal-mart, I would recommend shopping there. Their Great Value brand labels gluten free and I've never been glutened by any of their products. The Great Value stuff is often better tasting than the brand name stuff and for half the price.

jaten Enthusiast

I echo Heather22 and Cassidy. I do not trust "gluten free" at face value. Companies that have dedicated gluten free facilities have always been safe for me, Kinnikinnick, Enjoy Life, and others.

Over the past year (since my diagnosis) I've been sick many times through cross-contamination by several companies that place a gluten-free label on their product but process gluten-containing items in the same facility. As someone said, if they run gluten-free food on the same lines or on lines that are in close proximity to gluten-filled lines then the company may claim an item is "gluten-free" but in my opinion it is not gluten free enough. (My opinion is based not on a whim to be over-the-edge with gluten free, but based on what my body is screaming at me.)

Currently no laws in the U.S. apply to what "gluten free" means. Read the labels and research research research via the internet and by contacting manufacturers. It's really overwhelming at first, but little by little you'll find your way, and before you know it, you're no longer overwhelmed. Nini's Newbie Survival Kit will help you tremendously.

Yenni Enthusiast

I do not always trust it. I have gotten sick from corn chips, creme of rice and Turkey. They all said Gluten free but they sure made me sick.

I trust the companies that have a dedicated factory or have a special routine making the stuff kinda.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.