Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally An Answer! I Have Celiac


Guest ShannonL

Recommended Posts

Guest ShannonL

OK just left the dr. I DO have celiac. I am beginning this journey AGAIN...I was dx 4 years ago then told I didnt have it. Now I do for sure. Anyway....here are the first of many questions. I dont have issues with my skin...should I still not use make-up that may contain gluten? What is a good book to start with? Is there a celiacs for dummy's???? LOL if so I need it.

Should I just go basic fruits and vegetables for 2 weeks and then add dairy and other somewhat processed stuff? Any advise would be appreciated. I am exhauseted and need some hand holding. I have a 11 mo who is IGg4 deficiant and she is sick ALL the time and I dont sleep! ARRRR I hoping this fod lifts. MY dh told me last week that I am going to be something when I am 60. Now maybe I will get my brain back.

Shannon

www.Lame Advertisement.com

Home of the Kids with Food Allergy Monkey


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice

It's a good ideato start with simple foods. You could do vegetables, fruit, meat, fish, eggs, rice, for a couple weeks and then see how you feel. That way you don't have to spend so much time reading labels right away.

I hope you start to feel better soon. :)

Pauliina

gadgetgirl Newbie

Shannon,

There actually is a "Living Gluten-Free for Dummies" book available. It is worth reading - I found it combined information from a lot of sources into one book. It would be a good place to start.

So is the advice to just go with a basic diet for the first few weeks. In my case, I have intolerances that go beyond gluten and it was frustrating the first month or so to figure out everything that I was intolerant to. It would have been much simpler if I had started out very simple and then started adding back foods.

I hope you start feeling better soon.

Regina

SchnauzerMom Rookie

I have the Gluten Free for Dummies book and it has helped me a lot. Tremendous amount to information in it. I learned about this website from that book.

happygirl Collaborator

Check out the book listed in my signature. It is written by one of the top Celiac physician's and researchers and was just published this year. While much still is unknown about Celiac, it is a great resource for the information that is currently out there. I HIGHLY recommend it. you can get it from amazon or any other bookstore.

Feel free to ask any and all questions. Celiac is strange. Remember that Celiac is a genetic disorder...so your children could have it or could develop it. They suggest that ALL first degree relatives are tested via the full blood panel (Open Original Shared Link), including parents, siblings, and children. However, in children under two, the testing is somewhat unreliable at this point and often can miss Celiac.

Also, just because someone in your family is tested now, doesn't mean that they can't develop it later (like you developed it later...I "got" it in my early 20s).

The only "cure" for Celiac is a STRICT gluten free diet....it will take time to heal, so make sure you have patience. It took me months to feel somewhat normal, but I felt a difference within days. Celiac is often referred to as a medical chameleon because of its multitude of different symptoms, and course of the disease.

We are here to help! Best of luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,004
    • Most Online (within 30 mins)
      7,748

    Daffodil
    Newest Member
    Daffodil
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.