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Why Cant I Sleep


DVK

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DVK Apprentice

New to all this and only on Day number 2 of gluten-free. Since this all started I have some nights I can sleep and some like last night that 6am was the time I finally went to sleep. I start falling asleep and then its like (BAM) Wake up, then I am startled and awake after 20 minutes of sleep. WHY? Is this Normal, It Sucks :unsure: I fianlly had no choice but to take a small Quarter of Xanax, But I guess the cup of coffee at 9am and the Vitamin B Complex I took at 5 pm probably didnt help, and then of course I got to get up for the Job, I dont take Xanax ever, actually first time for this, However I dont want it to be a norm. Does this get better for sleeping once my body clears of Gluten?

DVK


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clhsc Apprentice

Before going gluten free I would have horrible anxiety problems and could not sleep. I was in the same pattern you are with some nights being fine and others being horrible. I finally got to the point where out of nowhere I just broke down crying because I just wanted to sleep but couldn't. My doctor put me on Lexapro for anxiety and gave me Ambien to take "as needed." It worked wonders at getting me out of the routine of not sleeping.

Now if I can't sleep I will write down everything that is bothering me and keeping me awake. It helps to know that I can't do things at three in the morning and it usually relaxes me enough to go to sleep. Then in the morning I will wake up energized and ready to go. I changed my B complex vitamin to mid-day, when I really need the boost. Also, if you work out, pay attention to when you do. If I run at night I have trouble getting to sleep.

I am now glad to report that I am sleeping better than I have in years. If you stick with the gluten free lifestyle it will get better. There have been numerous reports/studies on the relationship b/t celiac disease and anxiety. Mine has gotten so much better since being gluten free. I hope to get off the Lexapro at my check up in February. Hope you get feeling better soon! :)

  • 1 month later...
luvkin Newbie

I came off Lexapro last June. I do not need to take it anymore since I stopped eating gluten. I still have some sleep problems, sometimes my brain will not turn off.

mtdawber Apprentice

Some nights are great - tonight not so much. I wish I could sleep. I'm tired but itchy as $%**. For me the itch of DH keeps me from sleeping. I sure hope this gets better soon. :angry:

Viola 1 Rookie

I've solved the problem of not sleeping ... just one glass of wine each night does the trick, and I even hear it's good for you :lol:

dagreen Newbie
Some nights are great - tonight not so much. I wish I could sleep. I'm tired but itchy as $%**. For me the itch of DH keeps me from sleeping. I sure hope this gets better soon. :angry:

Hi,

I went to the Canadian Celiac convention in Toronto in May 06, and there is a drug for DH that stops the itch. I don't have DH, but phone the association at 1-800-363-7296. Ask your doctor or dermatologist, and they could give you something even before you see the gastroenterologist.

Danielle

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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