Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Dh Be Situational?


waywardsister

Recommended Posts

waywardsister Newbie

When I went away to University and lived in the dorm, I suffered from horrible rashes. They actually started a few months before I left as red itchy bumps on my inner forearms, and a few blisters on my hands/fingers. At school, it eventually ballooned up to blisters all over my hands and feet, and red bumps on my legs and arms (and a few in other places). I could tell when a blister was coming bc the area would feel firey and prickly, and the itch was insane. The blisters were full of clear fluid and I could see a small hole in my skin, right in the center of the blister, after I popped it. It was so bad, I couldn't sleep.

I was diagnosed with scabies and went through the treatment, which did nothing. Then it was "stress exema". No creams or pills helped. Eventually it lessened at went away about 6 months after returning home. It's over a decade later, and I still get occasional blisters (with the insane itch) on my hands, and itchy red bumps on my inner forearms. Lately, my scalp has gotten in on it - I developed itchy scabs on the back of my scalp that drove me crazy.

I was recently diagnosed g-intolerant (and casein) by Enterolab. What I wonder is if this rash is related? In Uni I was on the food plan and eating mainly vegetarian - lord knows what was in the food. Now that I'm gluten-free, I notice that I will get a rash on my inner arms if I get glutened (but not all the time) - I notice it more on my scalp. It's like there's little fires back there. I guess my question is can DH be inactive until a certain level of gluten consumption is reached; ie, a little wouldn't casue a skin reaction (but may cause a gastro reaction) but over a certain amount would? I'm concerned bc I got a blister on my palm yesterday, and am wondering why. I'm trying to be so careful, but am learning more nd more every day about what not to eat (just learned about ground spices, for example).

Thanks for reading this far!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



waywardsister Newbie

Anyone wanna help a newb here? Please?

jerseyangel Proficient

Hi,

I'm sorry that no one familiar with DH has responded. I'm sure someone will, though. :D

I don't have DH, but Celiacs do suffer from various skin rashes, eczema and other itchy conditions. It sounds like yours are connected to the amount of gluten you are consuming.

My itchiness, eczema and occasional red, itchy spots on my inner forearm went away after I had been gluten-free for a while. When I get glutened accidently, my itching comes back for a few days.

Hope this helps a little :)

ravenwoodglass Mentor
Anyone wanna help a newb here? Please?

Hi, Sorry I haven't been to this section in a while and maybe others haven't either. Have you made sure all your lotions, shampoos etc are gluten-free? You need to do so especially with the scalp itchiness. For some it leads to hair loss so it can be important. Many of us also see a change in presentation and severity at times. I tend to get more ezema now and my blisters are now also very small when they appear. The amount of reaction will also change over time for you as the gluten antibodies that are present leave the skin. This can take up to 2 years unfortunately. I found that for the first couple of years even the tiniest amount would cause an almost instant outbreak now after 4 years the blisters don't show up for about a week. It will get better but you have to be very diligent for a while.

waywardsister Newbie

That's how it seems to me, that it's related to the amount I'm ingesting. It's frustrating trying to figure all this stuff out.

Been trying to find other skin rashes that involve blisters - not much luck so far. The scalp thing is definitely new and only happens in relation to diet - shampoos etc have no effect.

SpikeMoore Apprentice

Hi There

I've had a very similar inner forearm thing over this summer intermittently. Also on the legs, back of neck and lower back but never in the classically described symmetric pattern. GP took a biopsy which was inconclusive. He threw out the possibilty of DH in conversation and I read a little and went gluten free as an experiement. Felt great, but had to eat gluten for the blood test (not back yet). No more itchy rashes though, so I'm happy.

I see that others have suggested checking your shampoos/soap products for gluten. Interestling, I noticed some of the inner forearm rashes onset right after baking (hubby likes cookies!).

Spike

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748

    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.