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Hi I Am New To The Group

JenniferBreedlove

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JenniferBreedlove Newbie
JenniferBreedlove
Posted

Hello I am new here. About a month ago my doctor diagnosed me with celiac diease. He was just a regular MD. He did a blood test and it came back negative and did not send me to a GI. I kept having reactions after I ate and I wrote down all the things that I was eating. He at first told me that he thought that it may be a wheat allergy and to go home and cut wheat out of my diet and to let him know how it was going. I stayed wheat free and to my suprise I felt much better. Untill I had some bread crumbs and back to the doctor I went. So he told me that it was definatly wheat. Then it was other things that was causing my reactions beer, some candies, oats was what topped it off as a celiac diagnoses to him.

So much to my suprise while reading and reading many things I have finally found out the cause of why my life has been crazy with an upset stomach. I am 26 years old and I have two wonderful children, and a great husband. I was not to thrilled at the diagnoses as I have a two year old that can eat a loaf of bread by himself. But this problem spiked pretty badly while I was pregnant with my daughter. I had an abruption of the placenta and was put on bed rest from the time that I was 17 weeks pregnant with her till I delivered. The funny thing was that the pain did not go away after I had her. I was still in so much pain I couldnt stand it. NOt to mention that they did every test on me except a blood test for celiac diease or food allegries while I was pregnant. They did one test that consisted of taking 17 tubes of blood.

Any ways I am having a rough time adjusting especially when it comes to cross contamination. My husband is a pipe line surveyor and myself and the kids travel with him, we usually spend a great amount of time in motel rooms, I do cook alot but most of the time it is run to get what I need and cook as soon as I get it.

Another thing that I am concerned about is over the counter medications. Does anyone know if Equate muscle rub contains any gluten products or those patches that you put on your back. I have been very very careful what I eat lately but I have been having some major cramping and bloating. I thought that maybe a salad that I ate from a resturant may have been cross contamanated. But I got to thinking about the rub and thought that I would ask.

Well I look foward to meeting all of you. I am so thankful for a group like this and that it is here as I am completely stupid about all of this celiac stuff. My doctor does not know much about it either as he is the one that sent me to the internet for advice and to research on my own. Thank goodness he at least knew about it.

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nettiebeads Apprentice
nettiebeads
Posted

I doubt if the muscle patch would have something bad for you in it. Is there an 800 number on the box you could call and ask? You are lucky in that your dr. dx'd without all of the testing other than diet and he knew about celiac. Must have gone to the same university as my dr. did. I was dx'd via diet alone 10 yrs ago. One thing I could highly recommend is that you get yourself a set of Triumph dining cards. There's a link somewhere on this website. I don't travel without them and they have saved me many times. Are you taking any other OTC or prescribed meds that could contain gluten? What about toiletries, especially shampoo. There is wheat in so many places - even cosmetics! Anyhow, welcome to the board and I hope you find the source of your gluten soon.

Annette

Guest nini
Guest nini
Posted

welcome to the group! If you haven't already checked out my "newbie survival kit" simply click on the link in my signature below, scroll to the bottom of my web page and there you will find the newbie survival kit.

Creative-Soul Newbie
Creative-Soul
Posted

Welcome! You'll find lots of helpful advice and support here. I'm glad you have a doctor who paid attention to you and takes you seriously. Here's the link to the dining cards if you haven't already found it. I ordered them recently and they're great. Now I can feed my obsession with Indian food again!!!

https://www.celiac.com/catalog/product_info...products_id=484

daffadilly Apprentice
daffadilly
Posted

re the 2 year old that loves bread, watch that one as I have a grandson and a son that are like that - they crave wheat, & both of them are gluten intolerant.

Your life with hubby sounds fun. Do you keep a kitchen box packed in the car? I think you might be getting some cross contamination (CC) from an old cutting board, wooden spoons etc. When on the road be sure to cook all the meals gluten free, since there is less chance of CC. A jar of classico spaghetti sauce mix in some meat & eat over rice is good, & cheap or you can spend more & get gluten free pasta. check your seasoning blends, such as lawrey's seasoning salt, I would toss that one out, most are okay, but check the ingredients for the ones that are all blended together, also, get a wheat free soy sauce.

With some preplanning you can pack a lot of things from home & then just shop for fresh meat & veggies & fruit. You can even premix flours etc for fried chicken and things like that. Do you pack an electric skillet? I think that is the most versatile pan around. If you have room I would also pack a rice cooker. The kids can eat rice for breakfast, just add in some sugar, raisins, cinnamon etc. my grandkids love it.

be sure that you have enough little lunch kits and containers to pack healthy veggie and fruit snacks for the day, instead of relying on junk food. They make a little tupperware type container with a well in the center for the dip (& a little lid) & then a place to put veggies or fruits. I have seen these several places but I remember my favorites were at the container store. Walmart also has a line of tupperware containers that are leak proof. I love these because they can float around in a cooler of water & ice & not get water inside of them !!!!

For drugs check glutenfreedrugs.com

Rebecca47 Contributor
Rebecca47
Posted

Welcome aboard, I found this group in Aug of this year, and there is lots of good information that you will find here. :D:rolleyes:

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