Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hypoglycemia...need Help!


Ksmith

Recommended Posts

Ksmith Contributor

Hey everyone,

I recently went to a naturopath and she indicated that i really need to get my hypoglycemia under control. She gave me some tips as to how to do this...like eating every two hours, no sugar, etc... However, from what I've read on WebMD and Mayoclinic.com it seems like hypoglycemia is caused by an underlying health condition rather than a disease itself...does anyone know what hypoglycemia can be caused by? I do not have diabetes. Not sure about thyroid, but I kinda doubt it (I was recently tesed, but haven't received the results yet). Thanks so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ann1231 Enthusiast
Hey everyone,

I recently went to a naturopath and she indicated that i really need to get my hypoglycemia under control. She gave me some tips as to how to do this...like eating every two hours, no sugar, etc... However, from what I've read on WebMD and Mayoclinic.com it seems like hypoglycemia is caused by an underlying health condition rather than a disease itself...does anyone know what hypoglycemia can be caused by? I do not have diabetes. Not sure about thyroid, but I kinda doubt it (I was recently tesed, but haven't received the results yet). Thanks so much!

there are some underlying diseases that can cause it but generally when someone says they have hypoglycemia it's in response to a spike in blood sugar after eating, followed by a fast and deep fall in blood sugar levels. My son and I both have it severely and have to follow a very low sugar, lower carb diet with a bit higher protein levels. I'm to eat 45-55 grams of protein a day and 45-60 grams of carbs a day. My son, who is 6'5 is supposed to eat 55-75 grams of protein a day and 45 grams of carbs per meal. That's 3 servings of carbs per meal for him and 1 serving for me. We don't eat high protein but 'adequate' protein. This is what the dietitian and endocrinologist instructed us to do and we are doing really well with it.

Try this site, it's very, very good and has a diet to follow that is basically what I follow:

Open Original Shared Link

I found this site before I went to the dietitian a few years ago. I really feel it saved my son's life as well as my own. My son had gone into convulsions with his and that's how we found out about it. At that time we weren't given too much information other than 'watch your carb intake". I did a lot of research and this is the best site I found and completely changed our health.

Looking for answers Contributor

Hi,

Research shows that hypoglycemia can be caused by gluten intolerance. In fact, I was just reading about this in "Dangerous Grains." I don't know how long (or if) you've been gluten free, but it takes time to alleviate hypoglycemia. I noticed a huge improvement within the first month, but I also really try to avoid processed foods and sugar. For the first time in my life, my hands don't constantly shake and I don't find myself getting as sick between meals. It's not completely gone, but it's getting better.

Hope this helps!

georgie Enthusiast
I recently went to a naturopath and she indicated that i really need to get my hypoglycemia under control. She gave me some tips as to how to do this...like eating every two hours, no suga

I was able to get my hypoglycemia under control by a strict eating pattern. You need to keep a food diary. After a while you will recognise foods that make you ill. For me - even fruit would trigger an attack. I had to eat small amounts of protein every 2 hours. A good book is 'The Insulin Resistance Diet' by Drs Hart & Grossman. Its protein every couple of hours but balanced with healthy complex carb. Its quite easy once you get the hang of it. 1/2 apple with a handful of nuts for eg.

However, my Hypoglycemia was due to an underlying thyroid problem that TEN Drs had failed to dx !!!!!! Including a couple of Endos. Yes - they did thyroid tests. No - they didn't know how to interpret the results ! A DO may be a good choice for you if you need to recheck some tests. Most Drs haven't a clue how to test for thyroid and just do TSH. And still don't understand that. ( TSH >2 is hypothyroid)

Always get your results in writing and do a web search / research to check what you have been told is true. Sadly for me - I wasted 30 years of my life by not being so proactive in my own health care. :(

Ksmith Contributor
No - they didn't know how to interpret the results ! A DO may be a good choice for you if you need to recheck some tests. Most Drs haven't a clue how to test for thyroid and just do TSH. And still don't understand that. ( TSH >2 is hypothyroid

What is a DO? I had the whole panal of thyroid tests so it should be pretty accurate...but I haven't received the results yet. I am gluten-free and I have been for a couple years...interestingly, my hypoglycemia seemed to calm down considerably after I moved to go to grad school...and my diet changed...I becaome a lot more strict with my gluten-free diet. However, ever since a car accident I was in this past summer, my anxiety and hypoglycemia are at full force...it's weird how trauma can kinda throw you for a spin. Thanks!

georgie Enthusiast
What is a DO?
Its a natural remedy seeking Dr that may think outside the square.Does it stand for Osteopath ??

I had the whole panal of thyroid tests so it should be pretty accurate...but I haven't received the results yet.

I beg you to be more proactive than this. You may miss one crucial test that may leave you eating a special diet for years needlessly ! There are quite a few tests for thyroid and lab ranges can be interpreted incorrectly. They did for me - for 30 years !! I used to naively think that my Dr was doing all the Thyroid tests .... I am not naive now. It may not be Thyroid. But just triple check every piece of information you are given.Let google be your friend.

plantime Contributor

Thank you for this link: Open Original Shared Link

It is just what I have been searching for!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loraleena Contributor

Georgie is right. The one test your panel was probably missing was the Thyroid Peroxidase antibody test. This shows is your body is makin antibodies against your thyroid. It should be less than 20. This test will show if you have Hashimotos Hypothyroidism which is autoimmune and common in celiacs. All my tests were normal except this one. Adrenal fatigue can also cause hypoglycemia. You should get a 24 hour saliva test to check this. Read about both these on line.

Ksmith Contributor
Georgie is right. The one test your panel was probably missing was the Thyroid Peroxidase antibody test. This shows is your body is makin antibodies against your thyroid. It should be less than 20. This test will show if you have Hashimotos Hypothyroidism which is autoimmune and common in celiacs. All my tests were normal except this one. Adrenal fatigue can also cause hypoglycemia. You should get a 24 hour saliva test to check this. Read about both these on line.

I got the antibody test as well...I am kinda anxious to get the results. When you tested positive for the antibodies test, did they treat you with anything? THanks!

Ann1231 Enthusiast
Thank you for this link: Open Original Shared Link

It is just what I have been searching for!

I'm glad it's helped. It's a huge source of information that's well presented. they've done a great job with all that information.

mom2jpb Newbie
Hey everyone,

I recently went to a naturopath and she indicated that i really need to get my hypoglycemia under control. She gave me some tips as to how to do this...like eating every two hours, no sugar, etc... However, from what I've read on WebMD and Mayoclinic.com it seems like hypoglycemia is caused by an underlying health condition rather than a disease itself...does anyone know what hypoglycemia can be caused by? I do not have diabetes. Not sure about thyroid, but I kinda doubt it (I was recently tesed, but haven't received the results yet). Thanks so much!

I was diagnosed hypoglcymic when I was pregnant 8 years ago. All of my siblings and my son are hypoglycemia. Both of my parents were diabetic. Unfortunately, both of them were hypoglycemic until their late 50's, then suddenly insulin-dependent diabetic. I will tell you that they were in Louisiana, ate almost everything fried, and my dad even put sugar on his vegetables! I don't tolerate fried foods at all, because I lost my gallbladder several years ago.

Once I went gluten-free, the crashes stopped. I still find that eating 5 small meals rather than 3 "normal" meals works best for me.

Guest cassidy

I had hypoglycemia my entire life, until I went gluten-free. Then it just went away. When I get glutened the symptoms come back. I would guess mine is caused by celiac.

The best diet I tried was the low glycemic diet. www.glycemicindex.com has great info. I realize that these diets are becoming a fad way of losing weight, but if you follow the guidelines and eat slowly digested carbs so there aren't any spikes in blood sugar, then it really works, and I didn't lose weight (I wasn't trying to).

Not sure what is causing yours but while you try to figure it out that diet should help lessen the symptoms.

loraleena Contributor

After I had high antibody test - 799! I started taking Armour thyroid meds. Switched to cytomel, but may switch back due to some info Georgie passed on. I am about to start Isocort for adrenal fatigue. If your antibodies are high you need meds. Don't let your doc put you on Synthroid. This rarely helps people. You should use Armour. Read drlowe.com. They are my consulting docs and have lots of great info on their site.

georgie Enthusiast
I got the antibody test as well...I am kinda anxious to get the results. When you tested positive for the antibodies test, did they treat you with anything? THanks!

If you test positive ( >20) to a Thyroid Antibodies test you have autoimmune Thyroid. Its usually Hashimotos. Graves is another one but many Drs misdx that one - as Hashis can go hyper sometimes too. Hashis swings between hypo and hyper as the Antibodies attack the thyroid. These attacks can be weeks, months years apart. Do you ever remember having a hyper stage ?

And also remember that the Thyroid Antibodies test throws a few false negatives ( like Celiac blood test). I think they say about 10% error for the Antibodies blood test. So you can have 0 Antibodies and still have Hashis ! So be aware that blood tests are not 100%.

The Antibodies fluctuate and the number doesn't indicate a lot. You can have severe Thyroid damage and Antibodies of only 35 like I tested as. You don't use the Antibodies to work out your Armour meds. There are other methods like temp graphs and level of Free T3 , and Free T4 in your blood. If you Adrenal Insufficency you need to treat that first - as the Thyroid meds may not get into your cells and throw a false high blood test. TSH is useless once you have autoimmune Thyroid.

Once you have one autoimmune disease you are at risk of getting others - so autoimmune Thyroid should always be tested.

Ksmith Contributor
If you test positive ( >20) to a Thyroid Antibodies test you have autoimmune Thyroid. Its usually Hashimotos. Graves is another one but many Drs misdx that one - as Hashis can go hyper sometimes too. Hashis swings between hypo and hyper as the Antibodies attack the thyroid. These attacks can be weeks, months years apart. Do you ever remember having a hyper stage ?

And also remember that the Thyroid Antibodies test throws a few false negatives ( like Celiac blood test). I think they say about 10% error for the Antibodies blood test. So you can have 0 Antibodies and still have Hashis ! So be aware that blood tests are not 100%.

The Antibodies fluctuate and the number doesn't indicate a lot. You can have severe Thyroid damage and Antibodies of only 35 like I tested as. You don't use the Antibodies to work out your Armour meds. There are other methods like temp graphs and level of Free T3 , and Free T4 in your blood. If you Adrenal Insufficency you need to treat that first - as the Thyroid meds may not get into your cells and throw a false high blood test. TSH is useless once you have autoimmune Thyroid.

Once you have one autoimmune disease you are at risk of getting others - so autoimmune Thyroid should always be tested.

I'm not sure about hyper...I sometimes go through stages where I can't sleep, but that may be more to do with hypoglycemia. It's hard to figure out. Thanks for all the wonderful info!!!

loraleena Contributor

Georgie,

What should those T3 and T4 levels be? One of mine is high and my docs started to treat the adrenals. My antibodies at last check were down to 159 from 799.

Ksmith Contributor

Well, my thyroid levels apparently look good according to my naturopathic doctor...she sent me the results but I haven't got them yet. So now what? I still don't know what's wrong with me...and I have no ideas anymore. Could be adrenals, I suppose. Sorry, just venting, I guess. Hypoglycemia is a daily struggle and I wish I knew the underlying cause!

georgie Enthusiast
What should those T3 and T4 levels be? One of mine is high and my docs started to treat the adrenals. My antibodies at last check were down to 159 from 799.
Which one ? Are they FREE T3 and T4 ? Do you have the lab ranges ?Most people feel best when the Free T4 is mid range and the Free T3 is sitting at high normal or above normal. Antibodies should be crushed to 0 - so you need to work on that more.

Well, my thyroid levels apparently look good according to my naturopathic doctor...she sent me the results but I haven't got them yet. So now what?

Before you get upset lets see the results. Sometimes you need a fine tooth comb to sort through them. It may not be obvious - even to your naturopath. Did you do a saliva test for adrenals ? canaryclub has some and you can do that yourself.

Ksmith Contributor
Before you get upset lets see the results. Sometimes you need a fine tooth comb to sort through them. It may not be obvious - even to your naturopath. Did you do a saliva test for adrenals ? canaryclub has some and you can do that yourself.

Very true Georgie...Once I get them, I may post them up here to see if some of you may be able to help decipher it all. I haven't been checked for adrenals yet...I suppose that may be our next step. I know something needs to be helped but don't know what...I can see why everyone feels like a hypochondriac on this forum...it's nerve wracking (sp?) and makes me want to second guess myself! Thanks for all your support!

georgie Enthusiast

I was made to feel a hypochondriac 30 years ago and that's why I gave up. My Dr just wouldn't treat my borderline Thyroid and refused to say it was a problem. I now curse myself for not being more couragous to ask more questions and demand 2nd opinions. I now realise that the borders have been changed for TSH many times in last 30 years so probably my borderline reading back then was TSH = 6 !! I basically wrecked my life just because of ONE Dr !! 30 years is a long time to feel CFS and ill. He didn't even say 'come back and keep a check on it'. !!!!!!!!!!

PM me if you like. Not sure if we are allowed to post numbers here :lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    2. - trents commented on Scott Adams's article in Kids and Celiac Disease
      2

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

    3. - Russ H replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    4. - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    5. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,002
    • Most Online (within 30 mins)
      7,748

    Lsnel
    Newest Member
    Lsnel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      I agree with @trents that the IgA you listed sounds like a total IgA, not celiac-specific, if 114 is normal.  Were any other antibody tests run?  
    • Russ H
      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility to coeliac disease it should be possible to give a diagnosis. There is a bit more here: Seronegative coeliac disease
    • Scott Adams
      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.