Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cant Sleep


joemoe003

Recommended Posts

melzie Newbie

Hi my name is Melanie and after 16 months of being sick I finally got a diagnosis of celiac disease..I have I believe been Gluten free now since dec 04 yet I am still feeling just as poor as I did before..I now am unablt to sleep..I am up usually till about 3 am and then I am up early with my six year old..I have been told about Gluten withdrawls, but how true is that. I have a panic disorder and my Dr, who is suppose to be the specialist is unaware of medication I can take? I read here you can havd Ativan? She also gave me ambien, now is that gluten-free or not?

I am at a loss and would just love to calm my nerves and sleep so any help would be great..

Melanie

Gluten Free since Dec 04


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

hi melanie---i do know that paxil is gluten-free--i was taking it when i went gluten-free--that was 3 1/2 yrs ago--at the time i couldnt get the panic under control--i was taking 40 mg and they usually start you out at 5 mg---give it time--some of us do take longer to feel better--you have only been gluten-free now for close to 7 weeks, you may beone who needs longer-----i also found that i had to severely limit my soy intake--soy was keeping me awake at night and i was also suffering joint pain again--the soy issue with me started last summer, but you may want to try limiting it now and see what happens---no soy flour, no MSG, be very careful about tuna, when packed in water, it is usually vegetable broth made with soy and it makes me sick--hydrolized is usually soy--beleive me, its hard to stay away from soy too, but you may feel better---now, soy lecthin doesnt bother me :P i can still have that occasional candy bar i think i need :lol: --i just know that soy makes me sleepless and the joint pain gets unbearable-------also--are you making sure you arent getting any gluten--are you checking ingreds in your shampoo, bath soaps, and lotions--make-up too--you can get glutened from these products--in your eyes in the shower or mouth, on your hands and touching your food----so much to remember huh----keep at it--feel better--deb

cdford Contributor

I did not know that soy was part of the problem with sleeping. I react to it as well. Don't think I have gotten into anything lately, yet here I am at almost 3a.m. reading a message board. It is encouraging, though, to see how many others find themselves up at these rediculous hours. I saw back a few posts that someone was having trouble with cal-mag tablets. Me too. The doctor has me on mag sulfate injections. They seem to help. They are not an easy shot, but adding lidocaine to the injection and using an insulin needle limits the discomfort. It does help with the sleep, so I think I will go take one now. I had not even thought of it tonight.

judy05 Apprentice

After one and a half years of being gluten and dairy free I am

still unable to get a good night's sleep. After reading your postings

I am going to try to not eat soy for several days. Do you think

one week would be enough time? I only slept good one night

this week. I do have my elderly mother on my mind because

she is not good, caught the flu in the nursing home even though

she had a flu shot.

I'm amazed at how many foods contain soy, husband is shocked.

Does anyone know of any publications that can link soy with

sleeplessness?

Thanks for this discussion. I don't know what I would do without

this board...

darlindeb25 Collaborator
:) well all---i have finally come to a conclusion-------i moved to long island on christmas day ;) yes, christmas day--i decided it was time for me to get on with my life and i loaded the car and went--i have been here now for 1 month--my man is here, so that helps so very much, i found this really nice apartment in a house with a very good family in a nice neighborhood, after 4 days here i found a wonderful fulltime job, making more an hour starting then i did after 4 yrs on a job in michigan and no--the wages arent higher here, i just had an angel watching over me when i applied for this job---in mich i worked at a gas/convience store and was under so much stress--working alone is not my type of job, especially at a gas station--i live so close to the ocean---i am so relaxed here--i grew up in michigan, i have 5 children and 6 grand children and yes i miss them, but i can honestly say, mich was killing me------i am gluten-free, corn and soy limited--now, my headaches have stopped after coming here and finally--i am sleeping nights---stress everyone, even with our food intolerances under control most of the time--the stress of everday life is as bad as the intolerances--i love it here, i love my job and i love my man--my angels are watching over me and all is good in my world--not that i dont miss my family, i do, so very much--but this was the change i needed to get better and i thank god i was gutsy enough to move on with my life--sometimes it is so much more then the intolerances or i guess we need to add stress as an intolerance--the hardest one to overcome :lol::lol::lol: that's me :lol::lol::lol: deb
judy05 Apprentice

Hi Deb,

I sort of did the same thing as you. I moved back to my

hometown in Pa after living in Delaware for 30 years.

My kids and my friends are there but I was getting so

sick from the humid summers and living so close to

chicken farms on one end of the state and chemical

plants on the other. I wanted to come back to the

mountains to get healthy again, I suppose that was

selfish of me but my kids can come and visit, just like

I did when my parents were here. I'm glad I did because

I have been here for my mother, she is 94 and not well

so I'm glad I can be there for her.

Congradulations on your move, I hope all goes well for you.

If I ever did decide to move back I would want to be close

to the water, the salty air is very healing and rejuvenating.

darlindeb25 Collaborator
;) thank you judy----geez--i grew up on a chicken farm and michigan is very humid--i was asked once how i thought i could live on an island if i couldnt take the humid weather in michigan--but its different here and you are right--the ocean air is very healing and watching the ocean is so soothing--its so majestic and carefree--i walk away feeling comforted--i know i made the right decision and if it was a selfish decision, then it was high time i made a selfish decision for me--i raised my kids pretty much alone and my life was them and finally i have time for me---i never felt good in michigan and i had headaches everyday of my life--the headaches have quit here, i am sleeping nights again, i havent done that in years--i miss my kids and grandkids and the rest of my family and friends, but you are right--they can visit :lol: and what a place to visit--i am truly happy here, happier then i have ever been--it's all good----------deb

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

    3. - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - cristiana replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,300
    • Most Online (within 30 mins)
      7,748

    Philbin
    Newest Member
    Philbin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.