Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Started A Trial gluten-free Diet...


AliceW

Recommended Posts

AliceW Apprentice

Duh!

:rolleyes:

How long does it take before you stop making silly mistakes like that? It's silly...I did lots of homework, made sure my medications and even my makeup were gluten-free, then ate something totally full of gluten in a moment of inattention.

I really want to be 100% gluten free, because I want to know for sure whether or not avoiding gluten helps me before I decide whether or not to make the gluten-free diet permanent. It's only been a couple of days so far, so I assume you stop doing things like that eventually.

Alice :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Hey girl,

No joke, last night as I was signing off my computer, I thought about you and wondered how you were doing. And here you are!!!

We ALL make silly mistakes...everyone takes a little bit different amount of time. For me it was a roller coaster...from not thinking about it, to worrying about it, to being so paranoid, to learning, to "normalizing". I'm not sure what the best advice is....but just keep trying. Seriously, we have all done it, some more than others ;) but we have all made mistakes. We learn, we move on, we promise to keep learning and keep being careful. Don't worry too much....just resolve to be better! And yes, the amount of mistakes usually does decline. Read the line in my signature...it is what I tell myself everyday!!!! (Seriously!!!)

You are brave---starting it around the holidays! I am proud of you for jumping in and trying it.

Take care!!

Laura

  • 3 years later...
Chiana Apprentice

I'm only like 3 or 4 days in, but I've found gluten-y foods to be out of sight, out of mind. My bread-y/cracker-y/noodle-y items are in a drawer, and my gluten-free alternatives are on the counter. When I'm hungry, grab something on the counter.

jenngolightly Contributor

I'm only like 3 or 4 days in, but I've found gluten-y foods to be out of sight, out of mind. My bread-y/cracker-y/noodle-y items are in a drawer, and my gluten-free alternatives are on the counter. When I'm hungry, grab something on the counter.

When I first started, I bought bright, 1"x3" neon labels from the office supply store and wrote in black magic marker "gluten free". Then I went around the kitchen and marked everything that I could eat with the labels. This not only helped me, but the people I lived with. They knew that they could fix dinner with anything with the labels. They knew to keep their gluten-y hands out of the labeled chip bags. Actually, they couldn't eat my labeled chips because I had limited foods available and they could eat all the gluten-y food in the kitchen. I labeled all the condiments - we had double of everything. Mine had labels, theirs didn't. They could use the margarine with no label and get bread crumbs in it. My margarine was always clean. Canned goods were labeled. Cereal was labeled. Spices were labeled. Pasta was labeled. I went hog-wiled on the labels!

We all felt much safer when I did that. My kids and husband weren't paranoid that they'd fix me something with gluten, or contaminate something that I wanted to eat. I always knew right away when I went to the pantry what I could and could not eat.

MelindaLee Contributor

It took a few weeks before I made these kind of mistakes...but then it was things like signing up for lunch with my daughter...only to realize that there would be no way I could eat school food...or for my friends wedding. Duh! :blink: (Actually, the caterer at the wedding was amazing and made me a grilled chicken breast and there were no problems!) I still "forget" sometimes when I am going places, but by now I have learned to carry Kind bars and Nut Crunch bars with me EVERYWHERE! :D

Skylark Collaborator

The instant stomachache was enough to have me not making mistakes pretty fast! :lol:

Have you been tested for celiac? The tests don't work if you're gluten-free and not everyone is comfortable with self-diagnosis. I see from your previous posts that you tried the diet before and I guess you stopped for some reason?

Monklady123 Collaborator

Well....I've been at this gluten-free diet for several months now -- I guess since before the summer -- and I almost cc'd myself last night! I was cooking regular spaghetti for my kids and without thinking I almost ate a noodle to see if they were done! oy... And that was RIGHT after I had put rice on for myself, knowing that I couldn't eat those noodles! It's mindless stuff like that that gets me. <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.