Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair Loss Part Of Celiac Disease?

BeckyW

By BeckyW
in Coping with Celiac Disease

Recommended Posts

BeckyW Contributor
BeckyW
Posted

My 15 year old daughter is 6 months gluten-free, dairy free, soy free and peanut free. She has improved some but the improvement has been very, very slow. She has been losing hair and it is not getting any better. Is this a common Celiac problem? She is not anemic and her thyroid is within normal ranges, according to blood work. I wonder if it can be something lacking in her diet or just the trauma of removing all the foods from her diet.

We have no doctors in the area that seem to be knowledgeable of Celiacs. We have learned more from this message board than anywhere! Thank you all for your help!

Does anyone have any ideas or suggestions they can offer us?

Thanks again!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Hi & Welcome

Does your daughter's hair fall out all over or in balding patches??? Does she take multi mins & vits daily?

You can learn alot on this board-- a great group.... I do not have a support group close enough so this is my lifeline so to speak.

My final thought about you saying her thyroid levels were normal.We all don't fit in that mainstream idea.... many of us have found out the hard way .. It doesn't fit all. The classic fit did not work for me.

I would suggest thinking if there are any other symptons to go along with the hair loss, that would be a big issue for a teenager so there may be some that your not picking up on.

Can you find a excellent holistic doctor in your area?Alopecia comes to my mind.

mamaw

mamaw Community Regular
mamaw
Posted

oops I forgot, have you checked out her hair supplies for wheat & gluten??

mn farm gal Apprentice
mn farm gal
Posted

I am 34 and had lost alot of hair a short time prior to going gluten free. I also have thyroid problems, sever animia are just a couple of the major factors with me. Since starting the diet and some personal care product changes, I now have my hair growing back. Ya!!

abigail Apprentice
abigail
Posted

hi, I dont know a lot about that, but my son didnt have much hair, and when we started the gluten free diet it started to grow much more .... (and his nails too).

Abi

BeckyW Contributor
BeckyW
Posted
  • Author

Hello, thanks for your responses. My daughter is just "shedding" hair, more than usual. There are no bald patches or anything. Her hair is just thinner than it used to be. All her hair products are gluten and soy free.

I have considered the thyroid issues as I have them and had to have my thyroid removed. I guess its time to try a new doctor and get another opinion. We do go to a holistic naturalpath doctor who is working on her hormones and says she has anemic symptoms.

The more I am reading I am thinking it could be the lack of nutrients. She takes gluten free vitamins and supplements but it is so hard to get her to eat enough.

Thanks for all your help and support!

Carriefaith Enthusiast
Carriefaith
Posted

About 3 years ago I was shedding more than normal hair when I was at my worst (around diagnosis). This improved after being on a gluten-free diet. However, I've noticed recently that I seem to be losing more hair than normal so I've started taking a multivitamin to see if that helps. My hair is also damaged and dry which is very unusual for me. If it doesn't seem to improve soon, I'm going to have to go see a doctor and maybe get my thyroid checked.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


4BUTTERFLIES Newbie
4BUTTERFLIES
Posted

I'm so glad I just read thi- after ignoring my symptoms for 2 years i was finally diagnosed in early november at age 31...and my hair has started to fall out more than normal...leaving me in tears many many days. my dr. says that it will come back..i am encouraged by all of your reponses..i am on a gluten, wheat, lactose free diet and so many symptoms have gone away- sometimes i still feel 8 months pregnant after i eat ANYTHING - still gassy and bloated but the severe pain from the spastic gallblader has gone away or at least been dormant since i started this diet...

the hair thing i struggle with everyday...but i will try to believe it is going to get better- we really have nowhere to go but up. I feel for all of you:)

nikki8 Explorer
nikki8
Posted

I just saw my doctor this week and I asked him about this very issue. He explained the process the hair shaft goes through (which I didn't really understand) and said that stress or a major change in diet can cause several hair shafts to shed at once. It's called Teleflovanuvia or something like that. I'm not explaining this well at all, but what he told me made me feel better. He said it's temporary and will replenish soon. So I felt better. I hope this helps.

GFNC Newbie
GFNC
Posted

Before my diagnosis I, too, was losing a lot of hair. I would have to clean my brush every couple of days. It took a good year of being gluten free for my hair loss to return to normal. Now, it seems to be back to normal or just slightly more than normal, but very manageable. I believe sometimes it just takes the body a while to heal and get adjusted.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    3. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    4. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
    5. knitty kitty
      - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

      @EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748
    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.