Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Ol' Ct?


Mal

Recommended Posts

Mal Explorer

anyone?.....it seems pretty dead and unknown about Celiac here in Danbury, anyone near me?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Do some research for support groups--here's one for you:

Group: Nutmeg

City: Danbury/Waterbury

Contacts:

Edith Meffley

32 Lewis Dr.

Ridgefield, CT 06877

203-438-6108

Eileen Gallo

17 Pole Bridge Road

Sandy Hook, CT 06482

Internet:

Syd Aronowitz, itsme@erols.com

Updated: 10 Mar 2001

There is a huge support group in Westchester County, NY. Anytime you need some info, feel free to email me at darlindeb25@aol.com I am always available for questions. There is a huge number of celiacs in Nassau County and Suffolk County here on Long Island.

I am also sure there are people in the forum near you--they will let you know.

Deb

jkmunchkin Rising Star

I'm in Westchester (NY). I grew up right on the border of CT, and go to our Wilton office for work once a week.

I just recently found an incredible health food store right in town in New Cannan. They have tons of gluten-free products that a lot of the other stores don't have. It's called Healthfare. There is a store with the same name in Trumbull. I went there once, but I don't think they are connected because the one in Trumbull kinda stunk, whereas this one is incredible.

You should definately check it out.

Katie618 Apprentice

.

bigapplekathleen Contributor

Hey Mallory,

I live right near you! I see that you're newly diagnosed. If you need any assistance in any way, feel free to contact me!

Kathleen

gluten intolerant (diagnosed via blood tests in 2003) but NOT celiac (don't carry the gene)

other food allergies

  • 5 months later...
Vince Newbie

I go to school at Quinnipiac in Hamden. There are no bardstales in all of ct, and it does seem like nobody here acknowledges it. Feel free to talk to me!

JoeB Apprentice

Katie -

I'm in Trumbull, too. That makes at least two of us in town with celiac disease!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
LJW Newbie
anyone?.....it seems pretty dead and unknown about Celiac here in Danbury, anyone near me?

I don't know if you are still out there. I am from Stratford, CT. I went to school in Danbury. I am looking for someone local to share and swap stories!!!!!!!!!!

  • 2 months later...
saaa-wheat<3 Apprentice

I'm looking for friendly restaurant suggestions in the Farmington and Old Saybrook areas. I have friends in those areas and it would be nice to go out to dinner somewhere by them when visiting and not have to be such a pain in the ass about it. :rolleyes::D

JNBunnie1 Community Regular
I'm looking for friendly restaurant suggestions in the Farmington and Old Saybrook areas. I have friends in those areas and it would be nice to go out to dinner somewhere by them when visiting and not have to be such a pain in the ass about it. :rolleyes::D

I live in Portland. I know that the last time I went, the Rainforest Cafe at the Westfarms mall had a gluten-free artichoke dip! I usually avoid any place that does pizza (all that flour flying around the air) but other than that, I'll go pretty much anywhere and get a burger patty no bun. I also ask to make sure they don't toast buns on the grill, though.

JoeB Apprentice

We like to eat at Dock and Dine in Old Saybrook. It's right on the water at the mouth of the harbor - the view is great and the food is pretty good. If you have friends in the area, they'll know where it is. You can also find them on the web. I was just there about 2 months ago. I think I had something broiled, probably scallops. When I explained my diet to the waitress, she said she knew about it because one of the other servers had Celiac disease.

Have a good time!

Nutmegger Rookie

My screenname gives me away. :) I'm from Manchester. We do have a local support group, but they apparently only meet once a year, which really doesn't do it for me. I'm looking for something more active within 30 minutes or so of Manchester. If no one can make suggestions, any interest in starting something up?

JNBunnie1 Community Regular
My screenname gives me away. :) I'm from Manchester. We do have a local support group, but they apparently only meet once a year, which really doesn't do it for me. I'm looking for something more active within 30 minutes or so of Manchester. If no one can make suggestions, any interest in starting something up?

YEAH, since you have to pay dues everywhere else! We should just all make friends and cook for each other once in a while! (As long as there's no creepy stalkers on this forum, LOL)

  • 3 weeks later...
kifert Newbie

Hi--My daughter has celiac, and we live in Ridgefield...Piccolo's here in town is offering gluten free pasta, and they swear that they'll use separate water, spoons, etc. Soul Dog in Poughkeepsie is a hike, but my daughter (who is also vegetarian) loved their veggie and gluten free food.

karen

  • 2 months later...
Ingrid in Ct. Newbie
Hey!! i'm in trumbull!! it does seem like no one in ct knows about celiac! i joined the ct chapter of the CSA... if you want the info for it, i'll gladly give it to you, the group is sooooo wonderful and helpful- meetings have such good food!!!

message me here of IM on aim my sn is suga0456... IM me if you ever need to vent about celiac disease or anything else!! it's always nice to meet someone else who has celiac disease, and whatnot

psipsina Rookie
I live in Portland. I know that the last time I went, the Rainforest Cafe at the Westfarms mall had a gluten-free artichoke dip! I usually avoid any place that does pizza (all that flour flying around the air) but other than that, I'll go pretty much anywhere and get a burger patty no bun. I also ask to make sure they don't toast buns on the grill, though.

I'm originally from CT and I was living up there when I was diagnosed with gluten and other food intolerances from candida (I've never bothered to get the official celiac dx). Rainforest Cafe was the first restaurant I ate at and they were soooo amazing (I actually wrote a letter to corporate I was so impressed). In addition to gluten-free I was also caesin free and sugar free so I was a pretty difficult customer. The chef came to our table and talked to me and then invented a special sauce that I could have on their fish! They were so awesome and didn't make me feel like I was being a pain in the but or like I had 6 eyes or anything. Totally recommend them. I've always had good experiences at Outback too as far as chains go.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.