Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Ol' Ct?


Mal

Recommended Posts

Mal Explorer

anyone?.....it seems pretty dead and unknown about Celiac here in Danbury, anyone near me?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Do some research for support groups--here's one for you:

Group: Nutmeg

City: Danbury/Waterbury

Contacts:

Edith Meffley

32 Lewis Dr.

Ridgefield, CT 06877

203-438-6108

Eileen Gallo

17 Pole Bridge Road

Sandy Hook, CT 06482

Internet:

Syd Aronowitz, itsme@erols.com

Updated: 10 Mar 2001

There is a huge support group in Westchester County, NY. Anytime you need some info, feel free to email me at darlindeb25@aol.com I am always available for questions. There is a huge number of celiacs in Nassau County and Suffolk County here on Long Island.

I am also sure there are people in the forum near you--they will let you know.

Deb

jkmunchkin Rising Star

I'm in Westchester (NY). I grew up right on the border of CT, and go to our Wilton office for work once a week.

I just recently found an incredible health food store right in town in New Cannan. They have tons of gluten-free products that a lot of the other stores don't have. It's called Healthfare. There is a store with the same name in Trumbull. I went there once, but I don't think they are connected because the one in Trumbull kinda stunk, whereas this one is incredible.

You should definately check it out.

Katie618 Apprentice

.

bigapplekathleen Contributor

Hey Mallory,

I live right near you! I see that you're newly diagnosed. If you need any assistance in any way, feel free to contact me!

Kathleen

gluten intolerant (diagnosed via blood tests in 2003) but NOT celiac (don't carry the gene)

other food allergies

  • 5 months later...
Vince Newbie

I go to school at Quinnipiac in Hamden. There are no bardstales in all of ct, and it does seem like nobody here acknowledges it. Feel free to talk to me!

JoeB Apprentice

Katie -

I'm in Trumbull, too. That makes at least two of us in town with celiac disease!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
LJW Newbie
anyone?.....it seems pretty dead and unknown about Celiac here in Danbury, anyone near me?

I don't know if you are still out there. I am from Stratford, CT. I went to school in Danbury. I am looking for someone local to share and swap stories!!!!!!!!!!

  • 2 months later...
saaa-wheat<3 Apprentice

I'm looking for friendly restaurant suggestions in the Farmington and Old Saybrook areas. I have friends in those areas and it would be nice to go out to dinner somewhere by them when visiting and not have to be such a pain in the ass about it. :rolleyes::D

JNBunnie1 Community Regular
I'm looking for friendly restaurant suggestions in the Farmington and Old Saybrook areas. I have friends in those areas and it would be nice to go out to dinner somewhere by them when visiting and not have to be such a pain in the ass about it. :rolleyes::D

I live in Portland. I know that the last time I went, the Rainforest Cafe at the Westfarms mall had a gluten-free artichoke dip! I usually avoid any place that does pizza (all that flour flying around the air) but other than that, I'll go pretty much anywhere and get a burger patty no bun. I also ask to make sure they don't toast buns on the grill, though.

JoeB Apprentice

We like to eat at Dock and Dine in Old Saybrook. It's right on the water at the mouth of the harbor - the view is great and the food is pretty good. If you have friends in the area, they'll know where it is. You can also find them on the web. I was just there about 2 months ago. I think I had something broiled, probably scallops. When I explained my diet to the waitress, she said she knew about it because one of the other servers had Celiac disease.

Have a good time!

Nutmegger Rookie

My screenname gives me away. :) I'm from Manchester. We do have a local support group, but they apparently only meet once a year, which really doesn't do it for me. I'm looking for something more active within 30 minutes or so of Manchester. If no one can make suggestions, any interest in starting something up?

JNBunnie1 Community Regular
My screenname gives me away. :) I'm from Manchester. We do have a local support group, but they apparently only meet once a year, which really doesn't do it for me. I'm looking for something more active within 30 minutes or so of Manchester. If no one can make suggestions, any interest in starting something up?

YEAH, since you have to pay dues everywhere else! We should just all make friends and cook for each other once in a while! (As long as there's no creepy stalkers on this forum, LOL)

  • 3 weeks later...
kifert Newbie

Hi--My daughter has celiac, and we live in Ridgefield...Piccolo's here in town is offering gluten free pasta, and they swear that they'll use separate water, spoons, etc. Soul Dog in Poughkeepsie is a hike, but my daughter (who is also vegetarian) loved their veggie and gluten free food.

karen

  • 2 months later...
Ingrid in Ct. Newbie
Hey!! i'm in trumbull!! it does seem like no one in ct knows about celiac! i joined the ct chapter of the CSA... if you want the info for it, i'll gladly give it to you, the group is sooooo wonderful and helpful- meetings have such good food!!!

message me here of IM on aim my sn is suga0456... IM me if you ever need to vent about celiac disease or anything else!! it's always nice to meet someone else who has celiac disease, and whatnot

psipsina Rookie
I live in Portland. I know that the last time I went, the Rainforest Cafe at the Westfarms mall had a gluten-free artichoke dip! I usually avoid any place that does pizza (all that flour flying around the air) but other than that, I'll go pretty much anywhere and get a burger patty no bun. I also ask to make sure they don't toast buns on the grill, though.

I'm originally from CT and I was living up there when I was diagnosed with gluten and other food intolerances from candida (I've never bothered to get the official celiac dx). Rainforest Cafe was the first restaurant I ate at and they were soooo amazing (I actually wrote a letter to corporate I was so impressed). In addition to gluten-free I was also caesin free and sugar free so I was a pretty difficult customer. The chef came to our table and talked to me and then invented a special sauce that I could have on their fish! They were so awesome and didn't make me feel like I was being a pain in the but or like I had 6 eyes or anything. Totally recommend them. I've always had good experiences at Outback too as far as chains go.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.