Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Ol' Ct?


Mal

Recommended Posts

Mal Explorer

anyone?.....it seems pretty dead and unknown about Celiac here in Danbury, anyone near me?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Do some research for support groups--here's one for you:

Group: Nutmeg

City: Danbury/Waterbury

Contacts:

Edith Meffley

32 Lewis Dr.

Ridgefield, CT 06877

203-438-6108

Eileen Gallo

17 Pole Bridge Road

Sandy Hook, CT 06482

Internet:

Syd Aronowitz, itsme@erols.com

Updated: 10 Mar 2001

There is a huge support group in Westchester County, NY. Anytime you need some info, feel free to email me at darlindeb25@aol.com I am always available for questions. There is a huge number of celiacs in Nassau County and Suffolk County here on Long Island.

I am also sure there are people in the forum near you--they will let you know.

Deb

jkmunchkin Rising Star

I'm in Westchester (NY). I grew up right on the border of CT, and go to our Wilton office for work once a week.

I just recently found an incredible health food store right in town in New Cannan. They have tons of gluten-free products that a lot of the other stores don't have. It's called Healthfare. There is a store with the same name in Trumbull. I went there once, but I don't think they are connected because the one in Trumbull kinda stunk, whereas this one is incredible.

You should definately check it out.

Katie618 Apprentice

.

bigapplekathleen Contributor

Hey Mallory,

I live right near you! I see that you're newly diagnosed. If you need any assistance in any way, feel free to contact me!

Kathleen

gluten intolerant (diagnosed via blood tests in 2003) but NOT celiac (don't carry the gene)

other food allergies

  • 5 months later...
Vince Newbie

I go to school at Quinnipiac in Hamden. There are no bardstales in all of ct, and it does seem like nobody here acknowledges it. Feel free to talk to me!

JoeB Apprentice

Katie -

I'm in Trumbull, too. That makes at least two of us in town with celiac disease!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
LJW Newbie
anyone?.....it seems pretty dead and unknown about Celiac here in Danbury, anyone near me?

I don't know if you are still out there. I am from Stratford, CT. I went to school in Danbury. I am looking for someone local to share and swap stories!!!!!!!!!!

  • 2 months later...
saaa-wheat<3 Apprentice

I'm looking for friendly restaurant suggestions in the Farmington and Old Saybrook areas. I have friends in those areas and it would be nice to go out to dinner somewhere by them when visiting and not have to be such a pain in the ass about it. :rolleyes::D

JNBunnie1 Community Regular
I'm looking for friendly restaurant suggestions in the Farmington and Old Saybrook areas. I have friends in those areas and it would be nice to go out to dinner somewhere by them when visiting and not have to be such a pain in the ass about it. :rolleyes::D

I live in Portland. I know that the last time I went, the Rainforest Cafe at the Westfarms mall had a gluten-free artichoke dip! I usually avoid any place that does pizza (all that flour flying around the air) but other than that, I'll go pretty much anywhere and get a burger patty no bun. I also ask to make sure they don't toast buns on the grill, though.

JoeB Apprentice

We like to eat at Dock and Dine in Old Saybrook. It's right on the water at the mouth of the harbor - the view is great and the food is pretty good. If you have friends in the area, they'll know where it is. You can also find them on the web. I was just there about 2 months ago. I think I had something broiled, probably scallops. When I explained my diet to the waitress, she said she knew about it because one of the other servers had Celiac disease.

Have a good time!

Nutmegger Rookie

My screenname gives me away. :) I'm from Manchester. We do have a local support group, but they apparently only meet once a year, which really doesn't do it for me. I'm looking for something more active within 30 minutes or so of Manchester. If no one can make suggestions, any interest in starting something up?

JNBunnie1 Community Regular
My screenname gives me away. :) I'm from Manchester. We do have a local support group, but they apparently only meet once a year, which really doesn't do it for me. I'm looking for something more active within 30 minutes or so of Manchester. If no one can make suggestions, any interest in starting something up?

YEAH, since you have to pay dues everywhere else! We should just all make friends and cook for each other once in a while! (As long as there's no creepy stalkers on this forum, LOL)

  • 3 weeks later...
kifert Newbie

Hi--My daughter has celiac, and we live in Ridgefield...Piccolo's here in town is offering gluten free pasta, and they swear that they'll use separate water, spoons, etc. Soul Dog in Poughkeepsie is a hike, but my daughter (who is also vegetarian) loved their veggie and gluten free food.

karen

  • 2 months later...
Ingrid in Ct. Newbie
Hey!! i'm in trumbull!! it does seem like no one in ct knows about celiac! i joined the ct chapter of the CSA... if you want the info for it, i'll gladly give it to you, the group is sooooo wonderful and helpful- meetings have such good food!!!

message me here of IM on aim my sn is suga0456... IM me if you ever need to vent about celiac disease or anything else!! it's always nice to meet someone else who has celiac disease, and whatnot

psipsina Rookie
I live in Portland. I know that the last time I went, the Rainforest Cafe at the Westfarms mall had a gluten-free artichoke dip! I usually avoid any place that does pizza (all that flour flying around the air) but other than that, I'll go pretty much anywhere and get a burger patty no bun. I also ask to make sure they don't toast buns on the grill, though.

I'm originally from CT and I was living up there when I was diagnosed with gluten and other food intolerances from candida (I've never bothered to get the official celiac dx). Rainforest Cafe was the first restaurant I ate at and they were soooo amazing (I actually wrote a letter to corporate I was so impressed). In addition to gluten-free I was also caesin free and sugar free so I was a pretty difficult customer. The chef came to our table and talked to me and then invented a special sauce that I could have on their fish! They were so awesome and didn't make me feel like I was being a pain in the but or like I had 6 eyes or anything. Totally recommend them. I've always had good experiences at Outback too as far as chains go.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.