Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Triangle Support?

SouthernCeliacGirl

Recommended Posts

SouthernCeliacGirl Newbie
SouthernCeliacGirl
Posted

Is there a support group in the triangle (Raleigh/Durham area)?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


phakephur Apprentice
phakephur
Posted

There is, but I don't think it's very active.

Here's a link

Open Original Shared Link

If you don't get a reply when you contact them, try this e-mail instead warli001@duke.edu

Sarah

  • 3 weeks later...
SouthernCeliacGirl Newbie
SouthernCeliacGirl
Posted
  • Author

Still trying to find people in Raleigh? Anyone out there??

SouthernCeliacGirl Newbie
SouthernCeliacGirl
Posted
  • Author

Anyone from the Raleigh area? The support group here isn't very active, so I'd love to meet some new people.

olalisa Contributor
olalisa
Posted

Welcome!!

I'm from the Raleigh area and tried to contact the TGIG group numerous times. I finally emailed their webmaster after the other contact person never replied and he did write back. He basically said that the group isn't active (lack of attendance/interest) and that the leaders were just burned out. I'm trying to decide if I have enough time/energy to try to breathe life into an official support group or if some of us should just maybe meet informally from time to time. Whaddya think?

ladydi Newbie
ladydi
Posted

Hi

I am from Apex and would like to get to know some fellow celiacs also. Would be glad to be a part of an official or unofficial group.

Diane

olalisa Contributor
olalisa
Posted

Welcome, Diane! and check your email :)

Hey...we have three. that's enough for a group, right?

Let's do this thing!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 weeks later...
SouthernCeliacGirl Newbie
SouthernCeliacGirl
Posted
  • Author

I haven't been on here in a while b/c I was frustrated with getting no replies, but I would love to meet you two! I'm not sure yet how to send an e-mail through this, but once I figure it out I'll send you one. Hope to talk to you soon!

Lisa Mentor
Lisa
Posted

Hey, don't forget about me.

I am in Edenton (about two hours east of Raleigh).

SouthernCeliacGirl, I am sorry that you did not feel welcome here or ignored. But that is not the first time that I have heard that. :( Try it again, perhaps it will be different. Tarheels are growing in numbers!

Lisa

  • 1 month later...
MrsWufie Newbie
MrsWufie
Posted

I'm in Cary and would LOVE a suppport group or even just a group to bounce ideas and food finds with (like some yummy NO GLUTEN cheese puffs I found at Kroger).

I'm so new to this and feel (minus the two books I got at Borders and a supportive husband and family) kind of alone with this.

Thanks!

~B

Lisa Mentor
Lisa
Posted

B:

This is the best support group that you can find. Everyone here on this site is wonderfully informative and the rule here is that there are no stupid questions. Everything that you could possible want/need to know is here.

The recipe section is boundless.

Welcome and always feel free to ask away.

Lisa

ladydi Newbie
ladydi
Posted
I'm in Cary and would LOVE a suppport group or even just a group to bounce ideas and food finds with (like some yummy NO GLUTEN cheese puffs I found at Kroger).

I'm so new to this and feel (minus the two books I got at Borders and a supportive husband and family) kind of alone with this.

Thanks!

~B

You're not alone! I have been gluten free for about 2 1/2 years now and it gets to be a lot easier.

We are very lucky to have Whole Foods and Trader Joe's as you said, but I have found that buying my bread mixes etc from Amazon is even easier. I also get a lot of flours from the Asian Market at South Hills. Of course, this all depends on how much baking you like to do. Lowes foods on Kildaire Farms Road carries a small selection in their frozen foods, waffles, Amy's frozen meals and breads.

There are a few of us locally that have said we'd like to get together, but have not done it yet. Busy lives of course. Ask any questions you have and I will be pleased to help.

  • 4 weeks later...
UNCHeel Rookie
UNCHeel
Posted

I'm here in N.Raleigh so if you all get together please let me know.:)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. JoJo0611
      - JoJo0611 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Just diagnosed today

      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about i...
    2. RMJ
      - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      The normal ranges can vary for the tissue transglutaminase and gliadin antibody celiac tests because the units aren’t absolute. Could you please tell us what the normal ranges are for the laboratory used? If her tissue transglutaminase results are 10-fold above the normal range some would diagnose her on that alone. Endomysial antibody ranges are m...
    3. Samanthaeileen1
      - Samanthaeileen1 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Hello there! New to celiac community, although I have lots of family in it. My two year old was just diagnosed with celiac disease based on symptoms and bloodwork. symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal...
    4. Scott Adams
      0

      Celiac.com Video News: December 2025

    5. Flash1970
      - Flash1970 commented on Scott Adams's article in Winter 2026 Issue
      4

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

      I hope you continue to improve
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,800
    • Most Online (within 30 mins)
      7,748
    CPeck
    Newest Member
    CPeck
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
    • RMJ
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      The normal ranges can vary for the tissue transglutaminase and gliadin antibody celiac tests because the units aren’t absolute.  Could you please tell us what the normal ranges are for the laboratory used? If her tissue transglutaminase results are 10-fold above the normal range some would diagnose her on that alone.  Endomysial antibody ranges are more standardized, and a titer of 1:5 would usually be normal.  Might that be the normal range and not her result?  Her total immunoglobulin A is normal for her age. (This is tested because if low, then the other IgA tests might not be valid).
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Hello there! New to celiac community, although I have lots of family in it.  My two year old was just diagnosed with celiac disease based on symptoms and bloodwork.  symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal. She just got tested again at 2 1/2  because her symptoms were getting worse and these were her results :   Tissue Transglutaminase Ab, IgA 58.8 Unit/mL (High) Endomysial Antibody IgA Titer 1:5 titer (Abnormal)   Gliadin Antibody IgA < 1.0 Unit/mL Gliadin Antibody IgG 8.5 Unit/mL Immunoglobulin A 66 mg/dL Her regular pediatrician diagnosed her with celiac and told us to put her on the strict gluten free diet and that we wouldn’t do an endoscopy since it was so positive and she is so little (26lbs and two years old). I’m honestly happy with this decision, but my family is saying I should push and get an endoscopy for her. It just seems unnecessary and an endoscopy has its own risks that make me nervous. I’m certain she has celiac especially with it running in mine and my husbands family. We are now thinking of testing ourselves and our 5 year old as well.  anyways what would y’all recommend though? Should we ask for an endoscopy and a GI referral? (We are moving soon in 5 months so I think that’s part of why she didn’t refer us to GI)    
    • olivia11
      My journey is it gluten or fiber?

      By olivia11 · Posted

      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      My journey is it gluten or fiber?

      By olivia11 · Posted

      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.