Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Awful ; Thinking About Going Back

betterbelly

Recommended Posts

betterbelly Rookie
betterbelly
Posted

OK

This friday; I'll be gluten free for 2 months. What did happen was that all gas/distended belly and overall uncomfortablness left immediately :) but; starting w/ christmas eve; everything went downhill... Ate bread crumbs by accident - Diarrhea; bad stomach pretty much until 2 days ago; but not until I had a total break down; throwing up; nausea and now my stomach is so sensitive its killing me. My heart feels racey= like i have a fever; but I don't and no it's not panic attacks. I cut out lactose and I don't know what to do; but I just feel like my body is now not tolerating this diet; im losing a lot of weight too... (I'm 5'7 and started at 140- now 130) ANY help is greatly appreciated. And if anyone knows how to reintroduce gluten back ie... what incriments; please post. I am still waiting on blood test about Celiac; but I know the likelyhood of that coming back inconclusively. Thanks in advance and sorry for long post!!! :o

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

Putting gluten back isn't going to help you. It sounds like you have an infection of some sort, you need to see a doctor.

tarnalberry Community Regular
tarnalberry
Posted

You ate gluten and got sick - adding in more gluten isn't going to make you feel better. Nancy noted, you may also have caught a bug. But up until you 'poisoned' yourself (gluten is essentially a poision to us) you seem to imply that you were doing better. Don't waste that knowledge! Stick to plain, natural foods for the moment (and it can be tough figuring out what your stomach will handle), until you're feeling better. Make sure that *all* gluten is out of your diet, as well.

celiacgirls Apprentice
celiacgirls
Posted

It is true that when you go gluten-free, your body sometimes loses its tolerance for even tiny amounts of gluten, making you feel worse than before. But that must mean you really do have an intolerance.

The effects can last a long time, too. For me, my last one lasted 2 1/2 weeks.

You must have felt pretty bad in the beginning to make such a big change in your diet so once you get the hang of it, you will be better off.

From my own experience, I'm not sure I could add gluten back in any increments. I've gotten sick from cc and it was intolerable.

Electra Enthusiast
Electra
Posted

I don't understand why you would want to introduce gluten back into your diet. If you only ate breadcrumbs and had that kind of a reaction and are still feeling the effects then you should definitely NOT eat gluten again!! I've only been gluten free for about 3 weeks, but when I am glutened I can tell within a few hours and it lasts me almost a week. The symptoms very from day to day, but my entire household can tell a difference and I feel like complete CRAP!!

If you felt better off from gluten then I would see no reason to try and put it back into your diet.

betterbelly Rookie
betterbelly
Posted
  • Author

I did go to a doc and they took blood and poop samples... thanks for the replies!

Electra Enthusiast
Electra
Posted

I hope you feel better soon and let us know how it all goes.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lonewolf Collaborator
lonewolf
Posted

I'm not sure I understand either. You've been sick enough to try a gluten free diet, you started feeling better ("all gas/distended belly and overall uncomfortablness left immediately"), you ate a little bit of gluten accidentally over Christmas and got sick again and now you think you should go back on gluten? Why? You've had a positive dietary response, which means that eating gluten-free is helping you. Why do you want to go back to eating something that you know makes you sick?

betterbelly Rookie
betterbelly
Posted
  • Author
I'm not sure I understand either. You've been sick enough to try a gluten free diet, you started feeling better ("all gas/distended belly and overall uncomfortablness left immediately"), you ate a little bit of gluten accidentally over Christmas and got sick again and now you think you should go back on gluten? Why? You've had a positive dietary response, which means that eating gluten-free is helping you. Why do you want to go back to eating something that you know makes you sick?

My stomach never felt this bad though... is it possible to have problems from Not eating wheat?

Nancym Enthusiast
Nancym
Posted
My stomach never felt this bad though... is it possible to have problems from Not eating wheat?

In a word, no. Humans have been around for many hundreds of thousands of years and we've only been eating wheat for about 7,000. So it would seem quite possible to survive without it.

ravenwoodglass Mentor
ravenwoodglass
Posted
OK

This friday; I'll be gluten free for 2 months. What did happen was that all gas/distended belly and overall uncomfortablness left immediately :) but; starting w/ christmas eve; everything went downhill... Ate bread crumbs by accident - Diarrhea; bad stomach pretty much until 2 days ago; but not until I had a total break down; throwing up; nausea and now my stomach is so sensitive its killing me. My heart feels racey= like i have a fever; but I don't and no it's not panic attacks. I cut out lactose and I don't know what to do; but I just feel like my body is now not tolerating this diet; im losing a lot of weight too... (I'm 5'7 and started at 140- now 130) ANY help is greatly appreciated. And if anyone knows how to reintroduce gluten back ie... what incriments; please post. I am still waiting on blood test about Celiac; but I know the likelyhood of that coming back inconclusively. Thanks in advance and sorry for long post!!! :o

You body is clearly telling you that it does not want gluten, please do not go back on it. Figure out what it is that is getting you. Are trying to eat mainstream foods, if so you may want to go to eating foods that are less processed. Are you still consuming alcohol, many of us do not tolerate grain alcohols even though many do. Have you deglutened your home? After getting gluten out of your system you may be reacting to CC. Have you eliminated it from shampoos, toiletries and such? If not now that you are not eating it that may be enough to cause a reaction. Please don't give up, it takes a while to learn the ins and outs of this lifestyle.

betterbelly Rookie
betterbelly
Posted
  • Author
You body is clearly telling you that it does not want gluten, please do not go back on it. Figure out what it is that is getting you. Are trying to eat mainstream foods, if so you may want to go to eating foods that are less processed. Are you still consuming alcohol, many of us do not tolerate grain alcohols even though many do. Have you deglutened your home? After getting gluten out of your system you may be reacting to CC. Have you eliminated it from shampoos, toiletries and such? If not now that you are not eating it that may be enough to cause a reaction. Please don't give up, it takes a while to learn the ins and outs of this lifestyle.

Raven

thanks for the words of encouragement. I have been mainly eating at home; and am vigilent about checking labels. I will let you know and thank you for your help!!!

Jprock Newbie
Jprock
Posted
OK

This friday; I'll be gluten free for 2 months. What did happen was that all gas/distended belly and overall uncomfortablness left immediately :) but; starting w/ christmas eve; everything went downhill... Ate bread crumbs by accident - Diarrhea; bad stomach pretty much until 2 days ago; but not until I had a total break down; throwing up; nausea and now my stomach is so sensitive its killing me. My heart feels racey= like i have a fever; but I don't and no it's not panic attacks. I cut out lactose and I don't know what to do; but I just feel like my body is now not tolerating this diet; im losing a lot of weight too... (I'm 5'7 and started at 140- now 130) ANY help is greatly appreciated. And if anyone knows how to reintroduce gluten back ie... what incriments; please post. I am still waiting on blood test about Celiac; but I know the likelyhood of that coming back inconclusively. Thanks in advance and sorry for long post!!! :o

I don't know if you smoke, but just this past weekend I figured out that it was smoking that was making me sick after three months gluten-free and feeling pretty good. I was off work over the holidays, and I smoke more when I'm home. At first, I couldn't figure out what was making me sick until I did some research. Sure enough, there is, or can be, gluten in cigarettes. So, after giving up gluten, casein and soy, I'm now going to give up cigarettes. I've never had this much motivation.

Aerin328 Apprentice
Aerin328
Posted

Celiac disease is a long-term illness that requires long-term healing. If you just went off gluten 2 months ago your body is probably still in quite a tizzy, and even more sensitive to gluten than before. I've read in a couple places it takes 1-2 years for the antibodies to leave the blood and for the immune system to break its self-traumatizing cycle... and as much as this figure seems disheartening, please be assured that it DEFINITELY gets WAY BETTER as time passes. Don't give up hope! Be patient! Going gluten-free is an incredibly difficult challenge - but a necessary one. One that you'll be ecstatic you did in the long run. Right now, I can understand your unsurity. Just hang on! And whenever you waver, we will all be here to support.

God bless,

Christian

ravenwoodglass Mentor
ravenwoodglass
Posted
Sure enough, there is, or can be, gluten in cigarettes.

Unfortunately this is true for some brands. We switched to American Spirit which is an additive free, just tobacco cig. The first one seemed different but the change was effortless and both me and my DH smoke much, much less without even trying. Some brands I always just about chain smoked, it makes me wonder if the addictive nature of the gluten additives had something to do with it.

eleep Enthusiast
eleep
Posted

I think it's important not to rule out the possibility that these can be withdrawal-type symptoms -- gluten is an opiate and the racing heart and stomach stuff can be part of withdrawal as well. I went through something much like this for a few months when I went gluten-free.

I also quit smoking recently myself and the one time I've been glutened since then is when I've had cigarette cravings like never before.

ravenwoodglass Mentor
ravenwoodglass
Posted
Raven

thanks for the words of encouragement. I have been mainly eating at home; and am vigilent about checking labels. I will let you know and thank you for your help!!!

I am glad your checking labels but please be aware that not all companies will tell you about crosscontamination issues and non wheat gluten can be hidden in flavors and seasonings. Especially at first it is a good idea to call and ask about any new item.

Also when you make a purchase of an item that is labeled gluten free be sure to look and see if they make gluten containing items also. A dedicated facility would be nice, complete labels would be nice but unfortunately that is still a ways off. I hope your feeling better and really hope you don't give up. It takes time to heal and sometimes even more time to ferret out sources of gluten CC but it is so worth it in the end. And as another poster mentioned the withdrawl can be hard both emotionally and physically but you will get through it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.