Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kinda Gross...

L.A.

By L.A.
in Coping with Celiac Disease

Recommended Posts

L.A. Contributor
L.A.
Posted

Ok. From reading so many posts, it seems gluten affects a lot of people differently. Myself, I get this awful tasting gas in the form of burps, then I throw up, have D, throw up some more etc and that's my reaction. Whole episode from the yucky burps to the last toilet visit is about 10 hours.

I just wondered what happens to others when they get glutened.

Please don't think I'm wierd.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Now, I have thrown up after a glutening. You may have some gastritis which results in the foul burping.

I would recommed that you stick to some plain foods for a while and see if it will improve.

Viola 1 Rookie
Viola 1
Posted

"D", throwing up, dry mouth, brain fog, muscle pain, blisters, cramps ... did I mention brain fog, shakey, and yup, some more brian fog <_< Do my very best to avoid contamination.

mtdawber Apprentice
mtdawber
Posted

Foul taste in my mouth, moody / grumpy, D, brain fog, blisters, cramps, itchy, sleepless nights.... so much fun.

Shirley - I love your new picture!

Viola 1 Rookie
Viola 1
Posted
Foul taste in my mouth, moody / grumpy, D, brain fog, blisters, cramps, itchy, sleepless nights.... so much fun.

Shirley - I love your new picture!

That's my Sheba (Shiba Inu) doing a stand stay, but as she spotted a squirrel I wasn't quite trusting her as you can see by my hand. :lol:

mtdawber Apprentice
mtdawber
Posted

Tucker - my chocolate lab in the picture is the same way with squirrels.... He loves to make them run up the tree in our backyard. LOL :P

BlueJeanz Newbie
BlueJeanz
Posted

My symptoms: pain in lower abdomen (like razors in there), bone pain in hips and ribcage, arthritis like symptoms in knees and hands, dark circles under my eyes, the big "D", urgent and frequent urination, ringing in my ears, wheezing that you can hear from across the room, swollen feet, depression and mood swings (to say the least! maybe because I'm P.O.'d at myself for being stupid enough to get gluttened).

But, I'm so new to all of this that I'm still learning - the hard way.

I have only a "possible and questionable Sprue" diagnosis from the Gastro doc and no blood tests because I had "figured it out" before seeing him and was on a gluten-free diet for 5 weeks. I don't want to gluten myself just to have the test. :wacko:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ArtGirl Enthusiast
ArtGirl
Posted

Gee, some of these symptoms are really awful. I guess I'm not so bad off, afterall. Mostly urgent and frequent and violent D, irritability, fatigue and generally feeling crappy - for about two days, then a week of being sluggish. Even so, I really don't want to be glutened, either. I LIKE feeling good!

amybeth Enthusiast
amybeth
Posted

I'm pretty much a "lighter" case, in comparison.

Within no more than 20 minutes of ingesting gluten, I will have extremely urgent D (really inconvenient if I'm eating out!). Then, I feel physically drained (no pun intended) for the rest of the day - lack of energy, exhausted, totally wiped out. It almost feels like I'm instantly depressed. That could be because I'm frustrated by glutening myself - but I remember pre-diagnosis, the same feelings would occur before I even realized I was causing the situation. My stomach doesn't really hurt, but it kinda feels like a dull ache like after you've had the wind taken out of you??? (hard to describe). That typically lasts the rest of the day.

I'm suspecting that every once in a while I have the complete opposite C after I've been gluten-ed, but I haven't been able to track that so I can be certain.

Interesting topic b/c it's amazing to me how this impacts all of us SO differently!

oh, yeah, I forgot brain fog! (LMAO)

Viola 1 Rookie
Viola 1
Posted
My symptoms: pain in lower abdomen (like razors in there), bone pain in hips and ribcage, arthritis like symptoms in knees and hands, dark circles under my eyes, the big "D", urgent and frequent urination, ringing in my ears, wheezing that you can hear from across the room, swollen feet, depression and mood swings (to say the least! maybe because I'm P.O.'d at myself for being stupid enough to get gluttened).

But, I'm so new to all of this that I'm still learning - the hard way.

I have only a "possible and questionable Sprue" diagnosis from the Gastro doc and no blood tests because I had "figured it out" before seeing him and was on a gluten-free diet for 5 weeks. I don't want to gluten myself just to have the test. :wacko:

Welcome to the board BlueJeanz. It is funny that one gets frequent urination along with D. I forgot to list that, but you are right, I think it's fairly common.

And Amybeth, how could you forget brainfog :lol: That always drives me crazy. I get it so bad sometimes that I'm scared to drive.

Electra Enthusiast
Electra
Posted

Gas, bloating, pain in my ribs, migraines, frequent urination, constant hunger, spots before my eyes, altheimers like brain fog, lower leg numbness, cramps, coldness, and burning, EXTREME moodiness, EXTREME depression, stabbing upper stomach pain, eye itching, arm and hand numbness, blackouts, having conversations that I don't remember, being told that I was saying things that didn't make sense and I didn't remember it, constant side aches that feel like overy pain, EXTREME exhaustion and fatique, tiny red dots on my hands sometimes that look like little blood vessels have poped under my skin that come and go, finger prickling, irrational reasoning.............

Should I list more LOL!!

x-tina Newbie
x-tina
Posted

i guess i have it pretty easy..i think it's because i've had it for awhile...but i seem to get "D" within a few hours after i have gluten...but one question...is stomach pain, coldness, hand numbness, eye itching, leg numbness...is all that stuff related to having gluten...cause then that'd solve why i sometimes get that...hopefully it is.... :D

Carriefaith Enthusiast
Carriefaith
Posted

My reaction to gluten is sort of mixed in with my wheat allergy reactions so I find it hard to differentiate the two. These are the symptoms I believe are celiac related:

Brain Fog

Fatigue

Anxiety

Nervousness

Insomnia

Irritability

Depression

Gas

Bloating

Constipation and/or diarrhea

Stomach pain (can be severe)

Nausea

Electra Enthusiast
Electra
Posted
i guess i have it pretty easy..i think it's because i've had it for awhile...but i seem to get "D" within a few hours after i have gluten...but one question...is stomach pain, coldness, hand numbness, eye itching, leg numbness...is all that stuff related to having gluten...cause then that'd solve why i sometimes get that...hopefully it is.... :D

Well YES pain, coldness, hand numbness, and leg numbness are ALL signs of Celiac. The eye itching is a theary of mine because I actually have allergy eye drops for my eyes that don't always work and I hadn't had any eye itching for a very long time and then Thursday I was cleaning all day and I wiped up bread crumbs and before I got to wash my hands I itched my eye and within minutes it started itching wildly. I immediately made the connection and assumed it was because I had rubbed my eye with gluten crumbed hands and so I have to be very careful about that from now on. I'm not sure if the gluten I had wiped up caused it or not, but I'm almost positive it was the culprit!! I wouldn't be surprised if that's been my eye allergy problem from the beginning!!

I hope you are feeling better soon!!

Sillyyakdidi Apprentice
Sillyyakdidi
Posted

well, at least its good to know that i'm not the only one who gets sick sometimes. i hope none of us feel like this ever again!

blueeyedmanda Community Regular
blueeyedmanda
Posted

"D" is my big one, brain fog, mouth sores, skin break-outs on my face, itchy skin, fatigue....and very depressed moody and very foul outlook on everything in general. The sad part of this is the last set of symptoms....I am a very happy person and when I get glutened some of the things I say or think are so bad.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.