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Which Books Are Recommended?

suebny

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suebny Rookie
suebny
Posted

My 10 year old son was diagnosed with Celiac in November and has been gluten free for about 4 weeks now. We are still in the learning phase (don't know if it ever ends actually). Are there any books that people found especially helpful? We have Gluten Free for Dummies and he has the gluten-free Kid. Would like to learn more but don't want to get more confused. Thanks.

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Guest cassidy
Guest cassidy
Posted

I have one that wasn't helpful.

I got the Let's Eat Out Guide to Gluten Free Dining and I didn't find it helpful at all. It basically told you the obvious things like ask what is in the sauces and here are some ideas that are usually safe. I would think that book would be good for the first week, but you can learn all that online and I didn't find anything info that I didn't already know.

I didn't buy anymore books because I found everything that I needed online. I'm sure someone will come by with a good book or two.

vampella Contributor
vampella
Posted

I believe it's called the incredible edible gluten-free kid, if you want a kid friendly recipe book.

happygirl Collaborator
happygirl
Posted

Check out the book in my signature---written by a leading Celiac physician and researcher at Columbia University's Celiac Center. I love this book! It covers the genes, the mechanicism of Celiac, related disorders, research, living gluten free, ingredients, what to do when you don't get better, etc. etc. It is a research-grounded book and is very up to date (2006). He has spoken on CNN, CBS, Oprah's radio station on XM (lots of mainstream press!)

Juliet Newbie
Juliet
Posted

I really liked "Kids With Celiac Disease: A Family Guide to Raising Happy, Healthy Gluten-Free Children" by Dana Korn. It's not so much a food/recipe book as much as a guide on how to deal with raising your Celiac child. And it really helped me to forgive myself for "poisoning my child" for so long, as well as the variety of emotions you feel once they are diagnosed, particularly the first 6 months. As for recipe books, I like "Wheat-Free, Gluten-Free Cookbook for Kids & Busy Adults" by Connie Sarros, and "Gluten-Free Baking Classics" by Annalise G. Roberts. That last one is pretty technical, so you may want to wait a bit before tackling that one.

rez Apprentice
rez
Posted

Hands down, Wheat Free Worry Free by Danna Korn and A Hidden Epidemic by Dr. Peter Greene

Sweetfudge Community Regular
Sweetfudge
Posted

I know some people will argue w/ me about this one, but I loved the Gluten Free Bible by Jax Peters Lowell. It's a great book to help deal w/ the coping side of celiac disease. Some of the facts in there are false, but as far as a good book, it was entertaining and enlightening. It helped me change my attitude about "being sick".

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rez Apprentice
rez
Posted
I know some people will argue w/ me about this one, but I loved the Gluten Free Bible by Jax Peters Lowell. It's a great book to help deal w/ the coping side of celiac disease. Some of the facts in there are false, but as far as a good book, it was entertaining and enlightening. It helped me change my attitude about "being sick".

I just got the Gluten Free Bible, which facts are false? Just curious.

Kibbie Contributor
Kibbie
Posted
My 10 year old son was diagnosed with Celiac in November and has been gluten free for about 4 weeks now. We are still in the learning phase (don't know if it ever ends actually). Are there any books that people found especially helpful? We have Gluten Free for Dummies and he has the gluten-free Kid. Would like to learn more but don't want to get more confused. Thanks.

The best guide I have found for understanding Celiac in General is Gluten Free Living for Dummies but you already have that :) After that this website (celiac.com) and the websites listed in the book have been the most helpful :)

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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