Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I Have Dh


ptkds

Recommended Posts

ptkds Community Regular

I was recently diagnosed w/ celiac disease. Last week I was glutened by some ice cream that I thought was safe. Instead of getting diarrhea, I got a rash. It was mostly on my face at first. My nose, cheek, under my eye, on the back of my neck, and around my mouth were the worst. It wasn't symmetrical, though. But it is so itchy! And sweating makes it itch and burn, especially on my face. I went to the dr, and he diagnosed it as impetigo because the spot on my nose was oozing and very red. Now it is clearing up on my face, but my arms have gotten really bad. It is also on my stomach and legs, but not as bad. It isn't symmetrical, but some areas are slightly symmetrical. It looks like poison ivy according to a nurse and the dr., but I definetly have not been exposed to that.

So, could this be DH? I have requested a referral to a dermatologist, but I don't have an appt. set up yet. Someone please tell me if iths sounds like DH!

Thanks!

ptkds


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Electra Enthusiast
I was recently diagnosed w/ celiac disease. Last week I was glutened by some ice cream that I thought was safe. Instead of getting diarrhea, I got a rash. It was mostly on my face at first. My nose, cheek, under my eye, on the back of my neck, and around my mouth were the worst. It wasn't symmetrical, though. But it is so itchy! And sweating makes it itch and burn, especially on my face. I went to the dr, and he diagnosed it as impetigo because the spot on my nose was oozing and very red. Now it is clearing up on my face, but my arms have gotten really bad. It is also on my stomach and legs, but not as bad. It isn't symmetrical, but some areas are slightly symmetrical. It looks like poison ivy according to a nurse and the dr., but I definetly have not been exposed to that.

So, could this be DH? I have requested a referral to a dermatologist, but I don't have an appt. set up yet. Someone please tell me if iths sounds like DH!

Thanks!

ptkds

My daughters DH looks exactly like poison ivy (just not as sever and it's spread out over certain parts of her body) She gets it mainly on the back of the neck and in the hairline, but also on her cheeks and nose, and on her legs. She gets a few spots on her back sometimes too. Hers is usually just a few bump in each area not all at the same time, but when she first started getting them we thought it was poison ivy, and then chicken pox, and now that I have Celiac I KNOW that it's DH!!

Good Luck and I hope it feels better soon!!

almostnrn Explorer

Sounds like it could be. I get spots right under my eye or on the lid by my lashes and man they hurt. The only time I would call mine symmetrical is when I have had a steady stream of gluten over a peroid of time and needless to say I don't do that anymore. Mine is usually one on an elbow, one on a knee. The best way I can think to describe what it feels like at first is almost like a rug burn, then comes the most fun....the ITCHING! LOL. Good luck I hope you find a solution.

Sophiekins Rookie

Two questions:

Has your doctor given you anything for your "impetigo"?

Have you tried it, and did it work?

Impetigo is highly contagious, and could easily spread to the rest of your body. . .and it looks quite a lot like really bad DH. If you actually have impetigo, you need to change your sheets and towels (wash the dirty ones seperately from those of the rest of your family in VERY hot water and detergent) as well as any clothing that came in contact with your "impetigo" (and any clothes that were in contact in your closet with clothes that were in contact with your impetigo. Yes, I'm serious.). You also need to fill the prescription your doctor gave you (or find a new doctor who will give you one if the first one didn't give you anything) and use it religiously (if it is a lotion) - make sure you understand the instructions (harass your doctor or pharmacist if you don't) - for at least a week. If your impetigo doesn't clear up from the lotion (you should see dramatic improvement within three days) or spreads to other parts of your body, you need to go back to the doctor and get an oral antibiotic suitable for treating staph and other bacterial causes of impetigo. Wash your hands thoroughly and frequently with antibacterial soap (the ONLY time you will hear me recommend antibacterial soap), do NOT share your towels with anyone, and keep any oozing blisters or lesions covered with bandaids or gauze - wash your hands every single time you scratch, before you touch anything else. As always, call your doctor if areas of your skin become HOT, tight, and very itchy - this can indicate a deeper skin infection.

The rash locations you describe are clinically significant for impetigo, and not so much for DH - by all means make an appointment with a dermatologist, but try treating for impetigo first.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748

    Jem68
    Newest Member
    Jem68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.