Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Non Gi Symptoms

Michelle M...

Recommended Posts

Michelle M... Newbie
Michelle M...
Posted

Hi. I posted a few days ago as a newbie with a question on whether you could still have a problem with gluten in the absence of major GI symptoms. Thanks again for the perspective folks provided confirming it is indeed possible. I'm really glad I found this board with so many smart educated people. It's such a shame so many people have had to struggle for so long before figuring out what was going on. Even if it turns out gluten is not my problem (maybe I am just a crazy hypochondriac), I will continue to spread the word about it to anyone who I think could benefit from it.

I have a few other questions regarding non-GI symptoms and was wondering if they could be related. My dr. suspects gluten is an issue for me however I am awaiting Enterolab results and do not know for sure yet.

Skin - I know there is the DH manifestation of Celiac but what about other skin issues? I've had terrible changes to my skin. I used to have very nice, smooth blemish free skin and one day I noticed it was dehydrated but very oily, clogged pores/blackheads (never had as a teenager/young adult), hyperpigmented and rough gross texture (like an orange peel). I've noticed this mainly on my face but also having some dry itchy patches on lower body and oily on upper body. My hair has also been shedding at an abnormally increased rate for over a year. Hair shedding started before skin changes. Thyroid is perfect. I'm anemic, low b12, low vit d and suspect low folic acid - guess these things could all be from vit/mineral deficiencies. I'm also 35 - I guess it could be hormones and the gateway to perimenopause.

Cognition/Orientation - Are feelings of minor intoxication/confusion/disconnected from reality ever part of the gluten story. What about unrefreshing sleep and feeling like it takes a really long time to actually wake up and come out of a fog? I know these things are symptoms of a lot of things, but just thought I'd ask in context of gluten.

Thanks.

Michelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Could be from vitamin/mineral deficiencies, but what are those from?

My hair had started turning unexpectedly gray. When I went gluten-free, the new stuff began coming in in my normal color. The gray I had before I started down this road stayed ( :angry: ).

Brain fog is really common, as are sleep disorders. I couldn't sleep, others have said they slept too much.

Also dental problems, gum inflammation, joint inflammation, hyper-reactive skin.

I'm sure others will list more.

plantime Contributor
plantime
Posted

I get some pain in the gi tract, but most of my symptoms are in my joints and brain. I get extreme pain in my joints, and I can't think straight. I also get suicidal when I have gluten. I don't know about skin problems, my allergies interfere with any "tests" I could do myself.

Sophiekins Rookie
Sophiekins
Posted

Yes, your cognition/orientation problems are common among celiacs. . .the good news is that they more or less go away when you go gluten-free. As for the hair problems, that is your vitamin/mineral deficiencies - specifically the iron (anemia) and the B12. . .despite the similarities in the words, folic acid has nothing to do with hair loss. I had the same problems with hair loss. Talk to your doctor about sublingual B12 or B12 injections and get him/her to put you on beefy (sorry, hefty. . .) iron supplements.

tarnalberry Community Regular
tarnalberry
Posted
Cognition/Orientation - Are feelings of minor intoxication/confusion/disconnected from reality ever part of the gluten story. What about unrefreshing sleep and feeling like it takes a really long time to actually wake up and come out of a fog? I know these things are symptoms of a lot of things, but just thought I'd ask in context of gluten.

That's what most of us are talking about when we say we get 'brain fog' from being glutened. Appears to be *quite* common.

CMCM Rising Star
CMCM
Posted

Absolutely.....gluten reactions do NOT have to be digestive in nature. If you read the book "Dangerous Grains", it has a list of over 200 symptoms that are often a result of celiac disease or gluten sensitivity. The majority of these 200 symptoms are not digestive in nature!

The problem with doctors and their feeble attempts to recognize celiac disease is that they only know the "classic" textbook, most extreme version of celiac disease: a wasted body condition with distended belly, D, foul stools, etc.

I have read about celiac sufferers whose only symptom was seemingly incurable heartburn/reflux.

Others might have migraines. Sinus issues. Seemingly arthritic joints. The list is long...you mentioned having a great many which are on that list!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
    5. trents
      - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.