Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Is Kind Of Gross...

chocolatelover

Recommended Posts

chocolatelover Contributor
chocolatelover
Posted

Sorry for the topic, but I have a question to put out there. I'm wondering when other people's diarrhea occurs (or occured before you were dx'd) when eating gluten. Is it any time? Just after meals? Middle of the night? How long does it last? Is there any rhyme or reason to it?

I'm eating gluten to prepare for the endoscopy this week. Am off dairy, which has helped the gas but not much else--still having the other symptoms. I'm still having the diarrhea often, usually after I eat (sometimes during a meal), though it's always first thing in the morning before I do anything else. It can also range from quite watery to undigested food to toothpaste-like consistency. I'm wondering if any of it is related or if it's something else...

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Judyin Philly Enthusiast
Judyin Philly
Posted

GREAT QUESTION..LOOKING FORWARD TO SEEING OTHERS RESPONCES.

MINE IS TOTALLY RELATED TO THE FOODS I'VE INJESTED.

JUDY

chocolatelover Contributor
chocolatelover
Posted
  • Author
GREAT QUESTION..LOOKING FORWARD TO SEEING OTHERS RESPONCES.

MINE IS TOTALLY RELATED TO THE FOODS I'VE INJESTED.

JUDY

So when does it happen for you? Right away? Does it take hours? How do you know it's related?

casnco Enthusiast
casnco
Posted

Man, mine varies depending on what I have been contaminated with. Most of my glutenings these days are cross contamination. But I can tell you that recently I have been waking in the middle of the night. That is new and my family doctor says that is a normal celiac responce and how most people end up getting diagnosed. I never had that happen before. As for consistancy I must say, "yes" all of those things. And it lasts for quite a long time. Weeks to be more exact. Hope my responce helps.

Judyin Philly Enthusiast
Judyin Philly
Posted

WELL SINCE I'VE BEEN gluten-free 19 MONTHS..SOY 10 MONTHS DAILY 2 1/2 WEEKS ( YES I'M COUNTING DAYS AND HRS AS I LOVED MY DIARY)....

BEFORE gluten-free, COULD BE ANY TIME AND USUALLY W/IN 1/2 HR OR HR..SOMETIMES MIDDLE OF THE NITE..

ESP IN THE AM...CLEAR A FAST PATH TO THE BATH ROOM .....FAST IS SAY

THE LAST TIME I HAD INDEGESTED SOY IN ERROR...IT COME ON SLOW AND WHAM....WHEN IT HIT, THREW ME IN BED OR 2 DAYS ...CONTROLED 'D' BELCHING, GAS..PAIN IN FIBRO..

FORGOT HOW AWFUL IT COULD BE

GOOD LUCK ON YOUR TESTING.

KEEP US POSTED OK?

QUESTION---HAVE YOU EVER BEEN GLUTEN FREE...ASKING CAUSE YOU SAID DOING GLUTEN CHALLANGE SO GUESSED YOU'D DONE THE DIET. hAVE YOU

GOOD LUCK

JUDY

chocolatelover Contributor
chocolatelover
Posted
  • Author

I had just started to be gluten free right before Christmas (maybe 2 weeks I was off), and then started to put the pieces together and figure out that my problems may truly be gluten related, so I went back on in preparation for the endoscopy. I guess I really haven't been off long enough, but I certainly did feel better while I was off of it. It will be interesting to see what happens with the results of the next round of testing.

blueeyedmanda Community Regular
blueeyedmanda
Posted

within an hour after I eat something bad, if I take Immodium it usually will clear up within a few hours, but for bad glutenings, man I suffer with loose movements for a few days.... :o

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kaycee Collaborator
Kaycee
Posted

Chocolatelover,

Before diagnosis I usually had one trip to the bathroom in the morning, and that would be diarhoea, but usually only the once a day but it was not watery, just like the toothpaste consistency you describe, and floating.

Randomly in the middle of the night, especially after eating too much during the day, as in special morning teas, or eating out, it would catch me in the middle of the night with severe stomach pains and even worse diarhoea than usual. But it would be just a matter of going to the loo a couple of times, then I would be fine for the next day, apart from being tired.

For a while, the midnight trips seemed random, until the last year before diagnosis when it would happen every time I overate, as in about once a month.

Cathy

cajun celiac Rookie
cajun celiac
Posted

My diarrhea happens within the hour. It is sudden and mine is not as painful as described by others. You know what is funny, a year ago I would never have discussed diarrhea with strangers and now my potty issues are an open book!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.