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This Is Kind Of Gross...

chocolatelover

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chocolatelover Contributor
chocolatelover
Posted

Sorry for the topic, but I have a question to put out there. I'm wondering when other people's diarrhea occurs (or occured before you were dx'd) when eating gluten. Is it any time? Just after meals? Middle of the night? How long does it last? Is there any rhyme or reason to it?

I'm eating gluten to prepare for the endoscopy this week. Am off dairy, which has helped the gas but not much else--still having the other symptoms. I'm still having the diarrhea often, usually after I eat (sometimes during a meal), though it's always first thing in the morning before I do anything else. It can also range from quite watery to undigested food to toothpaste-like consistency. I'm wondering if any of it is related or if it's something else...

Thanks!

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Judyin Philly Enthusiast
Judyin Philly
Posted

GREAT QUESTION..LOOKING FORWARD TO SEEING OTHERS RESPONCES.

MINE IS TOTALLY RELATED TO THE FOODS I'VE INJESTED.

JUDY

chocolatelover Contributor
chocolatelover
Posted
  • Author
GREAT QUESTION..LOOKING FORWARD TO SEEING OTHERS RESPONCES.

MINE IS TOTALLY RELATED TO THE FOODS I'VE INJESTED.

JUDY

So when does it happen for you? Right away? Does it take hours? How do you know it's related?

casnco Enthusiast
casnco
Posted

Man, mine varies depending on what I have been contaminated with. Most of my glutenings these days are cross contamination. But I can tell you that recently I have been waking in the middle of the night. That is new and my family doctor says that is a normal celiac responce and how most people end up getting diagnosed. I never had that happen before. As for consistancy I must say, "yes" all of those things. And it lasts for quite a long time. Weeks to be more exact. Hope my responce helps.

Judyin Philly Enthusiast
Judyin Philly
Posted

WELL SINCE I'VE BEEN gluten-free 19 MONTHS..SOY 10 MONTHS DAILY 2 1/2 WEEKS ( YES I'M COUNTING DAYS AND HRS AS I LOVED MY DIARY)....

BEFORE gluten-free, COULD BE ANY TIME AND USUALLY W/IN 1/2 HR OR HR..SOMETIMES MIDDLE OF THE NITE..

ESP IN THE AM...CLEAR A FAST PATH TO THE BATH ROOM .....FAST IS SAY

THE LAST TIME I HAD INDEGESTED SOY IN ERROR...IT COME ON SLOW AND WHAM....WHEN IT HIT, THREW ME IN BED OR 2 DAYS ...CONTROLED 'D' BELCHING, GAS..PAIN IN FIBRO..

FORGOT HOW AWFUL IT COULD BE

GOOD LUCK ON YOUR TESTING.

KEEP US POSTED OK?

QUESTION---HAVE YOU EVER BEEN GLUTEN FREE...ASKING CAUSE YOU SAID DOING GLUTEN CHALLANGE SO GUESSED YOU'D DONE THE DIET. hAVE YOU

GOOD LUCK

JUDY

chocolatelover Contributor
chocolatelover
Posted
  • Author

I had just started to be gluten free right before Christmas (maybe 2 weeks I was off), and then started to put the pieces together and figure out that my problems may truly be gluten related, so I went back on in preparation for the endoscopy. I guess I really haven't been off long enough, but I certainly did feel better while I was off of it. It will be interesting to see what happens with the results of the next round of testing.

blueeyedmanda Community Regular
blueeyedmanda
Posted

within an hour after I eat something bad, if I take Immodium it usually will clear up within a few hours, but for bad glutenings, man I suffer with loose movements for a few days.... :o

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Kaycee Collaborator
Kaycee
Posted

Chocolatelover,

Before diagnosis I usually had one trip to the bathroom in the morning, and that would be diarhoea, but usually only the once a day but it was not watery, just like the toothpaste consistency you describe, and floating.

Randomly in the middle of the night, especially after eating too much during the day, as in special morning teas, or eating out, it would catch me in the middle of the night with severe stomach pains and even worse diarhoea than usual. But it would be just a matter of going to the loo a couple of times, then I would be fine for the next day, apart from being tired.

For a while, the midnight trips seemed random, until the last year before diagnosis when it would happen every time I overate, as in about once a month.

Cathy

cajun celiac Rookie
cajun celiac
Posted

My diarrhea happens within the hour. It is sudden and mine is not as painful as described by others. You know what is funny, a year ago I would never have discussed diarrhea with strangers and now my potty issues are an open book!

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    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

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