Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Happens After You Go Gf?

Guest memoryofaspyn

By Guest memoryofaspyn
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

Recommended Posts

Guest memoryofaspyn
Guest memoryofaspyn
Posted

I am just wondering if after I go gluten-free what happens if you accidentally come in contact with gluten? I have heard some people say they get really sick, do you get any sicker than you would have been before going gluten-free?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

Yes......your body, before going gluten-free, is so used to the gluten that your reactions aren't as severe......when you go gluten-free, if you get glutened, your body would react more violently, not being used to the gluten, anymore.

lovegrov Collaborator
lovegrov
Posted

Different people have different reactions. Some people react horribly to tiny amounts. Some people react about the same as before the diet. Some people are actually less sensitive. And some people, like me, barely react or don't react at all.

richard

Mydnyt Newbie
Mydnyt
Posted

Something to do with the amount of time since you've been gluten-free?

One of the girls I know is intolerant, but once in a while (ie. 8 months or so) she'll have some pizza or pasta or something while out with friends with minimal side effects. But if she does it a couple of times it hits her big time

tarnalberry Community Regular
tarnalberry
Posted

I think it pretty much entirely varies by individual, and no one can answer that question for you... I seem to have gotten a bit more sensitive, but was never terribly sensitive to begin with.

  • 3 weeks later...
kabowman Explorer
kabowman
Posted

I was just pondering this and thought I remember seeing - therefore, I decided to add my 2 cents.

Since discovering all of my intollerances and then accidentally ingesting something I know I cannot eat, I am so sick. However, I can't decide if I am reacting the same way I did before the restricted diet (no gluten, milk/casien, corn, soy bean, and corn) because I was sick all the time and it just felt normal or if my reactions are actually getting worse.

Even minute amounts kill me and I am sick for at least 24 hours, and it seems the larger the quantity, the longer the period of pain so I eat any new what I would consider safe food in very small quatities to wait for a reaction and if I don't have one, then I eat more just to be sure.

Just a little venting...I usually enjoy my food and life and am very thankful that I have figured this out so I can actually enjoy life again.

-Kate

HAPPY DOG SUZ Enthusiast
HAPPY DOG SUZ
Posted

:unsure: Katie

What kind of pain were you in?

I was diagnosed w/fibromyalgia now celiac. Just trying to get a connection if there is one to my pain thanks Suzanne

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kabowman Explorer
kabowman
Posted

All digestive pain (along with fever, headaches, joint pain, fatigue) - the docs have checked to see if I have fibromyalgia and so far, I don't pass all 18 points. I am hoping that I don't develop the rest.

-Kate

Guest memoryofaspyn
Guest memoryofaspyn
Posted

I get really bad leg pain (in my muscles). Before I found out I had celiac I had them test my lactic acid. 2 years ago my oldest daughter passed away from a genetic condition called mitochondrial disease, and with it she had a condition called lactic acidosis. Since this condition is genetic, it was at first thought that I to had the condition and passed it on to my daughter. I have had sever muscle aches, especially in my legs and lower back all of my life. When I asked the doctors to run the lactic acid test, that is when they decided to also test me for celiac.

I have been searching high and low to find out if my daughter may have also had celiac, she was 8 months old when she passed away, and she only weighed 11 lbs, but with Mitochondrial disease it is common for children not to gain weight, but I am wondering since I was nursing and didnt know I had celiac, was she getting all the nutrition she needed? Did my celiac add to her already severe condition and make it worse? Sorry about the rambling, but I am searching for answers, I miss her terribly, and want to know all I can. we have another baby now who has a 1 in 4 chance of having the same condition, and I want to make sure we are doing everything we can to make sure she will be fine. if anyone is interested you can visit my daughter Aspyn's website at www.aspynblock.com

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,998
    • Most Online (within 30 mins)
      7,748
    Wendy Jo
    Newest Member
    Wendy Jo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Chances of being coeliac

      By trents · Posted

      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      Chances of being coeliac

      By trents · Posted

      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.