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Katie618

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Katie618 Apprentice

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GlutenWrangler Contributor

Katie,

There are two possibilities in this situation. Acidopholous is a probiotic, and they can help to get rid of bad bacteria and toxins from your intestine. This cleansing process can last for 2-10 days, and cause cramping, bloating, headache, diarrhea, and constipation. Even though it is uncomfortable, in the end it is a good thing. I went through this process about a month ago, and even though it was rough for a few days, I felt better than ever in the end.

The other possibility is that your products are not gluten-free. Unless they clearly state they are allergen-free, it is a risk to take them. If you suspect gluten, call the manufacturers to see if it is included in the ingredients. You should also ask if the processing plant produces gluten products.

I'm actually going through a situation like this right now. I bought some L-Glutamine that my nutritionist recommended, and felt sick after taking it. I called the manufacturer, who told me half-heartedly that it was gluten-free. I know now that it does have gluten in it, but I've gone through hell because someone gave me the wrong information. So if you do end up calling the manufacturer, make sure you speak with someone who knows what they are talking about. I hope you feel better. Good luck.

-Brian

lorka150 Collaborator

Do you have any other sensitivies or allergies? I am allergic to onions, and I found out that I was getting sick as they were a filler in one of mine.

I agree about the aforementioned acidophilus. Mine, for example, gives instruction to 'ease' into it.

tarnalberry Community Regular

I vaguely recall iron supplements can cause problems, but I don't know the specifics.

rmmadden Contributor

Aside from double-checking to see that your supplements are in fact gluten-free.......Be careful with taking Iron. Some people don't excrete the excess Iron and it builds in the body's cells and can cause all kinds of bad things to the internal organs.

Best of Luck,

Cleveland Bob ;)

Katie618 Apprentice

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GlutenWrangler Contributor

Katie,

I would keep taking them at least for a few more days. If they still bother you, try a different type of probiotic. I use HLC probiotics and they work very well. I would say if you're not getting any better after ten days, switch and see if you feel better. Good luck,

-Brian


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ReneCox Contributor

what are HLC probiotics exactly? and where can you get them?

gfp Enthusiast
thanks for all your answers!! it has definately eased my mind! but do i continue taking the acidopholous? the effects of D are definately starting. i barely could finish dinner before i had to go to the bathroom... (yuck!! sorry for TMI!) my dinner was gluten-free, my supplements are all gluten-free. do you suggest i continue taking them? the acidopholous is about a 30 day supply...do i finish the bottle? or only take it for 2 weeks? i decided on my own to take them because i hear how good they are for ppl with celiac disease.

A bit of D is normal for probiotics ... but you shouldn't be taking significant amounts of iron unless you are deficient... its the number one killer suppliment. (literally killer)

GlutenWrangler Contributor

HLC probiotics are powerful, allergen-free, human derived probiotics. The HLC Intensives have up to 30 billion active cultures per capsule. They also have a line on special probiotics for celiacs called Mindlinx. They have special bacteria that can help to break down gluten and casein in case of accidental ingestion. I get them from RockwellNutrition.com. The service is awesome there.

-Brian

  • 5 months later...
terps19 Contributor

Hey Katie

Are you still taking the probiotics?

I had mad cramping, gas, and some D when I first started taking probiotics. I used to take VSL#3 until I found out I had trouble with dairy. I now take Custom Probiotic's 6 strain blend which has about 270 billion CFU's in a one gram scoop. I know that when I dont take it for a while and then take it I do get D that will last for a few days, but probiotics will most likely help you in the long run. If you still feel crappy for about 2 weeks I would reconsider (either get a new one or just quit them all together for a while).

tmk Explorer

i'm on prescription iron pills for anemia and it has made my diarrhea 10x worse -- i've tried 2 types -- one severely constipated me, the other increased my diarrhea -- i opted to keep using the one that caused diarrhea b/c i couldn't stand the stomach/back cramps from the other. good luck and hope you find out what's causing your problems!

Budew Rookie

For the last year I have had several suppliments suggested by my doctor. All except l-glutamine, coQ10, and probiotics have made me ill.

A couple weeks ago I did a spectracell analysis. Doc says I am missing the trinsic factors that make the body able to utilize the vitamins and minerals. Normal blood tests showed adequate levels but when checked, the body is unable to use several.

This condition causes the body to reject oral suppliments.

I begin injections today. Hope this helps.

  • 2 months later...
lilpup Newbie

Many people may tell you that this is a "cleansing process." I don't believe this one bit. I took a very expensive powdered probiotic blend (no additives/no cellulose capsules/no lactose-derived bacteria/etc) and I reacted very badly to it. My entire body went into immune response mode. I became very anxious, had muscle cramps, acne, headache, the works.

Think about it: you are introduce foreign bacteria into your body. In theory, it will do good things like balance your gut flora and make your digestive issues more bearable. But in practice, your body may react to the bacteria as foreign and may launch an immune response against it. I believe the possibility of a negative response is particularly a risk for people whose bodies are already dealing with gluten/food allergy issues.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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