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Just Ordered A Gene Test

JerryK

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JerryK Community Regular
JerryK
Posted

I just ordered Enterolab's gene panel for Celiac. Inquiring minds need to know! What'll be interesting is..if it comes out that I don't have the Celiac gene markers...then what? Just non-genetic gluten intolerance? The way I understand it is a negative test indicates that Celiac Disease cannot develop in that individual...

I look forward to additional knowledge:) jerry

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Lisa Mentor
Lisa
Posted

Jerry:

Please correct me if I am wrong, but have you not felt better eliminating gluten from your life. I know that you have added it into your diet to test. I know that everyone needs to do what they feel comfortable with. If you feel you need the written word, then go for the testing. It is all a personal choice

If you do test and it is negative, you still know that you feel better gluten free. Sooo, that's up for you to decide.

I was different. I was in the bathroom for two months and could not leave the house, much less the room. I was tested by a gastro dr. I had scalloped walls, flat villi, gastritis and a large hiatal hernia.

They told me I had Celiac, and I asked what in the world is that. And the door slammed on my you know what. Hence, my arrival here.

Judyin Philly Enthusiast
Judyin Philly
Posted

My full panel test is coming on Friday from Enterol labs...let's hope we kind some answers.

judy in Philly

chocolatelover Contributor
chocolatelover
Posted

I keep wondering if I should do the same. How long does it take to get them? How long for the results? Do they take credit cards?

Judyin Philly Enthusiast
Judyin Philly
Posted

HI

I tried to log into sight on a Thursday nite last week

Chickened out when it came to 'hitting send key'

Mmost of my infor was there.

I must link anyway to their site b/c called and placed my order on Fri late in Texas.

Since my info was there already, she took my card over the phone.

You can do it all on line.

There are many options you can pick to test.

My tests should arrive this Thurs or Fri..so that's fast and maybe 2 week turn around they said to get results.

There is a nurse on staff to go over the results if you want to call and talk to them.

This woman i talked to Cathy was really nice and very knowledgeable.

I hope this link will work for you

Open Original Shared Link

celiacgirls Apprentice
celiacgirls
Posted
I just ordered Enterolab's gene panel for Celiac. Inquiring minds need to know! What'll be interesting is..if it comes out that I don't have the Celiac gene markers...then what? Just non-genetic gluten intolerance? The way I understand it is a negative test indicates that Celiac Disease cannot develop in that individual...

I look forward to additional knowledge:) jerry

About 90% of the people with celiac disease have DQ2. Another 8% have DQ8. That leaves 1 - 2% who have celiac who don't have either one of those. So it is possible you could still have celiac disease.

Judyin Philly Enthusiast
Judyin Philly
Posted
About 90% of the people with celiac disease have DQ2. Another 8% have DQ8. That leaves 1 - 2% who have celiac who don't have either one of those. So it is possible you could still have celiac disease.

So given this fact, why should I do this test I just ordered?

There still would be no proof :ph34r::blink: right???

I know that I'll never eat gluten again reguardless of what the tests says as it makes me sick..but wanted for my son and also if not celiac ..still could be gluten intollerance which they're to test for.

Oh this gets so confusing..

sigh! Judy

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CMCM Rising Star
CMCM
Posted

The consensus of those "in the know" is that mere gluten sensitivity is NOT to be dismissed or taken lightly. Many doctors feel the syndrome should ALL be designated as gluten sensitivity, with celiac disease merely being a small subset of this. Gluten sensitivity can cause all the same symptoms/discomfort/sickness etc., and it can even cause intestinal damage. Without a specifically identified celiac gene you wouldn't likely get celiac disease....I say "likely" because there are still people who have gotten it without the known celiac genes....apparently there are still some unidentified celiac genes, but the % is tiny.

Gluten sensitivity that is ignored can still cause tissue and organ damage, and potentially lead to certain cancers. You don't ignore it, and the advice seems to be whether you have celiac disease or are gluten sensitive, you DON'T EAT GLUTEN!!! NOT EVER!

JerryK Community Regular
JerryK
Posted
  • Author
Jerry:

Please correct me if I am wrong, but have you not felt better eliminating gluten from your life. I know that you have added it into your diet to test. I know that everyone needs to do what they feel comfortable with. If you feel you need the written word, then go for the testing. It is all a personal choice

If you do test and it is negative, you still know that you feel better gluten free. Sooo, that's up for you to decide.

Absolutely the results of this test will not make me deviate from my plan to go gluten free. I have a doctors appointment in 1 week...after I have a blood test, I do not plan to eat gluten again.

I'm looking at the gene test as another piece of data that I can take to family members and urge them to be on the lookout for Celiac type symptoms. It's just more data. The symptoms I feel are enough to convince me.

Slackermommy Rookie
Slackermommy
Posted

I just ordered the full panel from Enterolab. It took about a week and a half for the results but they said to give them 3 weeks. They do take credit cards.

I got the gene test, and found out I carry 2 genes for gluten sensitivity, meaning that both of my children have at least one gene, and that both my parents carry them. I am so glad I got the gene test, for my children and my family.

My brother is going to get himself tested, and his 3 sons, one of which has unexplained seizures. So, who knows? I am glad that they took it so seriously. My other brother, not so much, but at least I gave them the information, and they can decide what to do with their health.

And, Dr. Fine himself said that a positive response from going gluten free should be evidence enough, but I have to admit, it's great to see something in black and white, and KNOW.

Judyin Philly Enthusiast
Judyin Philly
Posted

'264569']

....I say "likely" because there are still people who have gotten it without the known celiac genes....apparently there are still some unidentified celiac genes, but the % is tiny.

Gluten sensitivity that is ignored can still cause tissue and organ damage, and potentially lead to certain cancers. You don't ignore it, and the advice seems to be whether you have celiac disease or are gluten sensitive, you DON'T EAT GLUTEN!!! NOT EVER!

oK NOW THIS MAKES TOTAL SENSE TO ME...

THANKS FOR THE ANSWER..

MY COMPUTERS BEEN DOWN FOR 2 DAYS..

GOT MY 'TEST KIT' BOX YESTERDAY AND NOW HAVE TO WAIT CAUSE CAN'T SENT THURS -SUN BUT THAT'S OK THEY SAID TO SAVE WHAT I GOT TODAY DIDN'T HAVE TIME TO READ ALL DIRECTIONS WHICH ISN'T LIKE ME BUT ALOT GOING ON TODAY..

SO AGREE WITH WHAT YOU SAID HERE---

Gluten sensitivity that is ignored can still cause tissue and organ damage, and potentially lead to certain cancers. You don't ignore it, and the advice seems to be whether you have celiac disease or are gluten sensitive, you DON'T EAT GLUTEN!!! NOT EVER!

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