Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Something New I've Noticed


JerryK

Recommended Posts

JerryK Community Regular

When I eat gluten, it seems like my hands and feet are tingling and slightly numb.

I don't know if it's my imagination or what....but I certainly do notice it.

This is in addition to all the other crappy feelings....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Electra Enthusiast
When I eat gluten, it seems like my hands and feet are tingling and slightly numb.

I don't know if it's my imagination or what....but I certainly do notice it.

This is in addition to all the other crappy feelings....

My right foot and lower leg were doing that to the point of where I was losing feeling in them and I couldn't keep my balance and stuff. Then it started moving into my right hand, and now when I get accidentally glutened one finger tip on my left hand pricks constantly (it's so annoying lol). It was mostly on one side, but numbness and tingling in limbs are very good sign that gluten is causing some major damage in there. I would try very hard to stay off gluten because most nerve damage is not reversable. Good Luck and I hope you feel better soon!!

jerseyangel Proficient
When I eat gluten, it seems like my hands and feet are tingling and slightly numb.

I don't know if it's my imagination or what....but I certainly do notice it.

This is in addition to all the other crappy feelings....

Not your imagination!

In the year before I was finally diagnosed, I had increasing tingling and numbness in my legs and feet. Sometimes the bottoms of my feet would feel like they were burning.

My left arm had a sensation that is hard to describe--somewhere between numb, and tight. I also had tingling and burning in my face and mouth--and still sometimes still have the facial tingling today.

It took some time, but except for the facial tingling, it has all gone away on the gluten-free diet. When it began, I was petrified I had a more serious neurological disease. It was pretty scary--I wish I knew then what I know now.... ;)

num1habsfan Rising Star

I get this too!! that it feels that that part of my body is dead :P

~ lisa ~

GeoffCJ Enthusiast
I get this too!! that it feels that that part of my body is dead :P

~ lisa ~

i have serious issues with my hands and feet tingling. To the point where walking can be painful/difficult. Unfortunately, I've seen little improvement since going gluten free 5-6 weeks ago.

Geoff

wowzer Community Regular

I have complained about that tingling feeling for years to my doctor. It seems to have gotten better since I started the gluten free diet. It's been one month. He always thought it was because of the sinus infection I had. I still get it once in awhile, so I'm not sure if it is from eating or ingesting gluten that I didn't realize.

darlindeb25 Collaborator

Geoff--have you had your blood tested--sounds like a B12 deficiency to me. The others seem to have found the cure for their tingling, well, except maybe for wowser. I do have neuropathy and I have to take B12 daily.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

That is usually a sign of B-12 deficiency. You need to be very careful as it gets worse meaning it is more often and painful. It will also result in your not remembering things and getting so fatigued that you can barely make it up a set of stairs. Mine became so bad that I was 2 points away from being paralyed and 4 points away from permanent brain damage. I still have problems remembering things after that. If you ever get as low as I did with B-12 you need to take B-12 either shots or sublingual for life. That is because your body loses something that you can never truly aborb B-12 and maintain without supplementation. I know when my B-12 is dropping as I get tingling and fatigued all over again.

mamabear Explorer

Definitely not your imagination...peripheral neuropathy is associated with celiac disease, and more mainstream medical literature is being published recently which will hopefully reinforce this for neurologists and internists. B12 may not be the only answer, and lab results may not confirm a deficiency, but neuropathy is diagnosable via a nerve conduction velocity test. Doctors have known for many,many years that "idiopathic neuropathy" should be closely monitored three years for associated malignancies when no source is found for the nerve damage. I find this intriguing as celiac is also associated with malignancy, and I wonder how mant patients are being missed when the neuro guys should order celiac panels,too??

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Matthias replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Scott Adams replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Matthias
      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise. Is that false?
    • Scott Adams
      I agree with @trents, but thank you for bringing this up here!
    • Jane02
      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.