Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Tomorrow


chocolatelover

Recommended Posts

chocolatelover Contributor

So my endoscopy is tomorrow (unless we get snowed in, that is--live in Denver where it's snowing again for the 7th week in a row!), and I have so many questions...

Does it hurt?

Will I feel anything?

Will my throat be sore?

Will I know anything tomorrow?

Will they be able to see if there is any damage or do they have to look at it with a microscope?

Do things usually look normal with the scope?

How long before I get any results?

I'm so anxious to know what's going on, but terrified of the possibility that it really is celiac...I LOVE food and am already mourning the loss of so many things that I love to eat, even though I'm not officially diagnosed yet. I was just diagnosed with lymphocytic colitis, which from everything I've read is highly associated with celiac...they think it's an autoimmune disease like celiac, but I can't find very much information on what causes it or how it's treated, and the woman who called me with my results was less than helpful. Basically she wouldn't tell me anything except that the dr. still wants to do the endoscopy and wants to see me when the results are in. At least it's not IBS like the PA thought...

I'm tired and frustrated with the whole testing process and feeling very much like a human lab rat. I guess the enormity of it all is just hitting me. Sorry to vent, but thanks for listening.

Chocolatelover


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

So my endoscopy is tomorrow (unless we get snowed in, that is--live in Denver where it's snowing again for the 7th week in a row!), and I have so many questions...

Does it hurt?

Will I feel anything?

You should get a sedative that will make you forget anything that happens. I remember nothing at all.

Will my throat be sore?

Maybe, maybe not. Mine was a little sore once and not sore at all the next time.

Will I know anything tomorrow?

Will they be able to see if there is any damage or do they have to look at it with a microscope?

Do things usually look normal with the scope?

There's no way they can say anything for certain until the biopsies are studied under a microscope. Sometimes a doctor might see some damage, but you really need the lab report.

How long before I get any results?

Depends on the lab. Mine was a couple of days but I was extremely ill and in the hospital.

Good luck. Celiac is tough to get used to at first, but it's as much better diagnosis than some other possibilities.

richard

jmengert Enthusiast

I'll try to answer as many questions as I can....

I was *terrified* to have my endoscopy, and I just had my first one this past November after being diagnosed via blood tests in November 2004 (I was, and still am, having other issues, so they wanted to rule out things by doing the endoscopy). It was a breeze. All the worry was for nothing (and I'm a big wimp with pain, too). It doesn't hurt at all--they give you an IV for the sedative, and the next thing I remember is being wheeled into the recovery room, where I babbled for a few minutes (I felt a bit loopy after the sedative, but nothing major--more just very sleepy and goofy) and then got dressed and left. My boyfriend drove me home--you definitely shouldn't drive after the sedative they give you. The whole process is only 20 minutes long, max. I slept the rest of the day, off and on, and I did have a mild scratchy throat from the scope, which was gone the next day, but they give you a numbing spray before they put the IV in to numb your throat when the scope goes in. I received my results a few days later via a phone call from my doctor (a lab needs to process the results and examine your biopsy under a microscope), though I did leave the office with pictures of my insides, which was kind of cool, I suppose.

Hang in there, and hopefully you'll have the answers you need soon. Feel free to ask anything you have a question about!

chocolatelover Contributor

Thanks Richard and jmengert for your quick and thorough answers. I am still quite scared of the whole thing--had a colonoscopy last week and really reacted to something, think it was the sedative. But, as long as they put you to sleep, it should all be a piece of cake, right? (gluten free cake, of course!). I know it's just nerves, but I feel like everything I've eaten today is churning around in my stomach, making me feel even worse than I have for the past couple of weeks. I figure I ate my last gluten ever today, because once this darn test is over I'm swearing off of it for good. No cake or cookies or bread can be worth the misery that goes along with eating gluten!

Does anyone know if I can I take anything tonight to help relieve the pounding headache I have right now?

larry mac Enthusiast
So my endoscopy is tomorrow...

Does it hurt?

Will I feel anything?

Will my throat be sore?

Will I know anything tomorrow?

Will they be able to see if there is any damage or do they have to look at it with a microscope?

Do things usually look normal with the scope?

How long before I get any results? Chocolatelover

cl,

I'm not an expert but can say what happened to me.

"Does it hurt?" No, I was asleep and didn't feel a thing.

"Will I feel anything?" No, I was asleep and didn't feel a thing.

"Will my throat be sore?" No, mine was not, as far as I could tell, nothing happened.

"Will I know anything tomorrow?" Yes & no. Mine gave his initial observations, but had to wait for the biopsy results for the official diagnosis and recommendation.

"Will they be able to see if there is any damage or do they have to look at it with a microscope?" Yes & yes. Mine gave his initial observations, but had to wait for the biopsy results for the official diagnosis and recommendation.

"Do things usually look normal with the scope?" They may not look normal in some way if you have damage to your small intestine. After all, I'm assuming you have a serious gastrointestinal problem of some kind. My doctor could see right away that I had flattened villi. He had to wait for the biopsy results for the detailed information.

"How long before I get any results?" Mine took a week. My doctor called me at 7:00 pm and discussed them with me. He diagnosed Celiac and gave me the gluten-free diet for life recommendation.

He told me something that has turned out to be totally true. He said " after going on this gluten-free diet, you will feel so much better that you will want to be on it"! It's true, I do feel 1000% better. I have never once even had one thought about not following it completely.

Hey, at least you don't have to clean yourself out tonight by drinking that glop.

best regards, lm

chocolatelover Contributor

Hey, at least you don't have to clean yourself out tonight by drinking that glop.

Isn't that the truth!! :lol:

Thanks, lm

babygirl1234 Rookie

you dont feel a thing they give a sentive to make you sleepy but your awake for it i had 2 done already one 10 yrs ago and another one tues along with a conlonscopy and all they told me was i had a plopy that they removed but they dont know yet they are waiting on biopsys to come back


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



larry mac Enthusiast
you dont feel a thing they give a sentive to make you sleepy but your awake for it i had 2 done already one 10 yrs ago and another one tues along with a conlonscopy and all they told me was i had a plopy that they removed but they dont know yet they are waiting on biopsys to come back

bg,

There are two ways they can do it. My way, where you are put to sleep by an anesthesiologist ( and I do mean put to sleep as in count down from 10-9-8 lights out!). And your way, where you are sedated yet awake. I had your way for my colonoscopy, so I've done them both.

best regards, lm

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,483
    • Most Online (within 30 mins)
      7,748

    AML2013
    Newest Member
    AML2013
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.