Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Problems With Coke?

bearodilla

By bearodilla
in Coping with Celiac Disease

Recommended Posts

bearodilla Rookie
bearodilla
Posted

I have been gluten-free for about a year and only had a couple of glutenings, however in the past it was easy to pinpoint and I only had intestinal symptoms but a few weeks ago I started drinking Coke a few days a week and now I have DH on my hand? I have been through my house and written down my diet the only change is the coke but I haven't had a problem with it or caramel coloring in the past. Has this happened to anybody else?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I have had no problem with coke or pepsi.

Viola 1 Rookie
Viola 1
Posted
I have been gluten-free for about a year and only had a couple of glutenings, however in the past it was easy to pinpoint and I only had intestinal symptoms but a few weeks ago I started drinking Coke a few days a week and now I have DH on my hand? I have been through my house and written down my diet the only change is the coke but I haven't had a problem with it or caramel coloring in the past. Has this happened to anybody else?

Some of us, including myself have a problem with Caramel colouring. I get gluten like reactions. I just stick with drinking the non-coloured pops like 7-up and ginger ale.

Kaycee Collaborator
Kaycee
Posted
Some of us, including myself have a problem with Caramel colouring. I get gluten like reactions. I just stick with drinking the non-coloured pops like 7-up and ginger ale.

Bearodilla, like Viola, I do have problems with coke. I know it is gluten free and all that, but then I have problems with caramel colouring. So if anything on a lable shows up as 150, I avoid it like the plague. They make me crook. So I just settle with 7-up lemonade and gingerale, even the diet ranges are okay for me. I thought for a long time it was just me, but I know it is not, but I get strange looks from people for mentioning it. Thanks Viola, I feel normal now.

Cathy

ravenwoodglass Mentor
ravenwoodglass
Posted

You are not experiencing a 'gluten like' reaction it is a gluten reaction. Coke uses the codex standards for gluten free. I also react to it. I have a zero tolerance for gluten and avoid their products.

Aerin328 Apprentice
Aerin328
Posted

Could also be the caffeine - I know a couple celiacs who can't take caffeine in any form b/c it irritates their stomach. This probably isn't true for most but just a thought.

NoahBunny Newbie
NoahBunny
Posted

I don't have a problem with coke or pepsi *EXCEPT* the fruit flavored pepsi one (diet pepsi w/lime/cherry/etc.) Strangely Pepsi Jazz is fine. I've never figured out what it is exactly that reacts with me in it, but it reallys screws me over bigtime.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SchnauzerMom Rookie
SchnauzerMom
Posted

I don't have a problem with Diet Coke but I do have a big problem with the sweetened kind. The High Fructose Corn Syrup tears me up. I get cramps and diarrhea every time I drink one. I hated having to give it up because I love Coke.

lovegrov Collaborator
lovegrov
Posted
You are not experiencing a 'gluten like' reaction it is a gluten reaction. Coke uses the codex standards for gluten free. I also react to it. I have a zero tolerance for gluten and avoid their products.

Here's what Coke says:

Coca-Cola Company (www.cocacola.com)

We are able to confirm that Coca-Cola classic, caffeine free Coca-Cola classic, Coca-Cola C2, Coca-Cola with Lime, Coca-Cola Zero, diet Barq's Red Creme Soda, Diet Coke, Diet Coke with Lime, caffeine free Diet Coke, Diet Coke Sweetened with Splenda, Sprite, Diet Sprite Zero, vanilla Coke, diet Coke vanilla, cherry Coke, Fresca, DASANI with Lemon, Minute Maid Light Lemonade, and our 100% juice products (without added ingredients) are gluten free. Additionally, we can tell you that all of our other products meet Codex's definition of gluten-free, which is currently less than 200 ppm (parts per million) (0.02%) gluten.

In other words, the list of drinks above is completely gluten-free -- not just Codex standard -- but devoid of gluten.

The other drinks are also very likely gluten-free but Coke won't say that because they don't make all the ingredients. The Codex part is their version of the CYA statement.

richard

Gwendolyn Newbie
Gwendolyn
Posted

To be honest, sodas aren't good for you and should just be avoided. Of course telling that to an avid soda drinker is like telling a heavy smoker to quit. They get defensive! :P

I used to be a soda junkie. I also used to weigh 310 pounds. I dropped soda and the weight started to drop too. My skin is healthier and I don't look my age and I feel better now that I am avoiding all that sugar and getting better hydration. I drink my water and I eat as healthy as I can while avoiding gluten, corn, eggs and nightshades. I miss rootbeer sometimes or a nice big soda at the movies, but I found that sticking to water is the better and healthier choice!

CJmcderm Newbie
CJmcderm
Posted

I have not tried Coke, but drink Pepsi occassionally. I have found if I drink in moderation - i.e. not more than 2 cans per week. I am fine with no reactions. However I have had 1 can two days in a row and my body can't handle it. I'm sick then for days. I do believe it's a combination of a build up of the carmel coloring and what your specific tolerance can handle.

Kaycee Collaborator
Kaycee
Posted
Could also be the caffeine - I know a couple celiacs who can't take caffeine in any form b/c it irritates their stomach. This probably isn't true for most but just a thought.

Thanks for that, but for me it is not the caffeine, I can drink a cup just before bed and sleep. Why couldn't we be all the same and react the same way with everything, but then that would make for boring reading.

Cathy

spunky Contributor
spunky
Posted

I've read that high fructose corn syrup really bothers a lot of people.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748
    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.