Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Problems With Coke?

bearodilla

By bearodilla
in Coping with Celiac Disease

Recommended Posts

bearodilla Rookie
bearodilla
Posted

I have been gluten-free for about a year and only had a couple of glutenings, however in the past it was easy to pinpoint and I only had intestinal symptoms but a few weeks ago I started drinking Coke a few days a week and now I have DH on my hand? I have been through my house and written down my diet the only change is the coke but I haven't had a problem with it or caramel coloring in the past. Has this happened to anybody else?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I have had no problem with coke or pepsi.

Viola 1 Rookie
Viola 1
Posted
I have been gluten-free for about a year and only had a couple of glutenings, however in the past it was easy to pinpoint and I only had intestinal symptoms but a few weeks ago I started drinking Coke a few days a week and now I have DH on my hand? I have been through my house and written down my diet the only change is the coke but I haven't had a problem with it or caramel coloring in the past. Has this happened to anybody else?

Some of us, including myself have a problem with Caramel colouring. I get gluten like reactions. I just stick with drinking the non-coloured pops like 7-up and ginger ale.

Kaycee Collaborator
Kaycee
Posted
Some of us, including myself have a problem with Caramel colouring. I get gluten like reactions. I just stick with drinking the non-coloured pops like 7-up and ginger ale.

Bearodilla, like Viola, I do have problems with coke. I know it is gluten free and all that, but then I have problems with caramel colouring. So if anything on a lable shows up as 150, I avoid it like the plague. They make me crook. So I just settle with 7-up lemonade and gingerale, even the diet ranges are okay for me. I thought for a long time it was just me, but I know it is not, but I get strange looks from people for mentioning it. Thanks Viola, I feel normal now.

Cathy

ravenwoodglass Mentor
ravenwoodglass
Posted

You are not experiencing a 'gluten like' reaction it is a gluten reaction. Coke uses the codex standards for gluten free. I also react to it. I have a zero tolerance for gluten and avoid their products.

Aerin328 Apprentice
Aerin328
Posted

Could also be the caffeine - I know a couple celiacs who can't take caffeine in any form b/c it irritates their stomach. This probably isn't true for most but just a thought.

NoahBunny Newbie
NoahBunny
Posted

I don't have a problem with coke or pepsi *EXCEPT* the fruit flavored pepsi one (diet pepsi w/lime/cherry/etc.) Strangely Pepsi Jazz is fine. I've never figured out what it is exactly that reacts with me in it, but it reallys screws me over bigtime.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SchnauzerMom Rookie
SchnauzerMom
Posted

I don't have a problem with Diet Coke but I do have a big problem with the sweetened kind. The High Fructose Corn Syrup tears me up. I get cramps and diarrhea every time I drink one. I hated having to give it up because I love Coke.

lovegrov Collaborator
lovegrov
Posted
You are not experiencing a 'gluten like' reaction it is a gluten reaction. Coke uses the codex standards for gluten free. I also react to it. I have a zero tolerance for gluten and avoid their products.

Here's what Coke says:

Coca-Cola Company (www.cocacola.com)

We are able to confirm that Coca-Cola classic, caffeine free Coca-Cola classic, Coca-Cola C2, Coca-Cola with Lime, Coca-Cola Zero, diet Barq's Red Creme Soda, Diet Coke, Diet Coke with Lime, caffeine free Diet Coke, Diet Coke Sweetened with Splenda, Sprite, Diet Sprite Zero, vanilla Coke, diet Coke vanilla, cherry Coke, Fresca, DASANI with Lemon, Minute Maid Light Lemonade, and our 100% juice products (without added ingredients) are gluten free. Additionally, we can tell you that all of our other products meet Codex's definition of gluten-free, which is currently less than 200 ppm (parts per million) (0.02%) gluten.

In other words, the list of drinks above is completely gluten-free -- not just Codex standard -- but devoid of gluten.

The other drinks are also very likely gluten-free but Coke won't say that because they don't make all the ingredients. The Codex part is their version of the CYA statement.

richard

Gwendolyn Newbie
Gwendolyn
Posted

To be honest, sodas aren't good for you and should just be avoided. Of course telling that to an avid soda drinker is like telling a heavy smoker to quit. They get defensive! :P

I used to be a soda junkie. I also used to weigh 310 pounds. I dropped soda and the weight started to drop too. My skin is healthier and I don't look my age and I feel better now that I am avoiding all that sugar and getting better hydration. I drink my water and I eat as healthy as I can while avoiding gluten, corn, eggs and nightshades. I miss rootbeer sometimes or a nice big soda at the movies, but I found that sticking to water is the better and healthier choice!

CJmcderm Newbie
CJmcderm
Posted

I have not tried Coke, but drink Pepsi occassionally. I have found if I drink in moderation - i.e. not more than 2 cans per week. I am fine with no reactions. However I have had 1 can two days in a row and my body can't handle it. I'm sick then for days. I do believe it's a combination of a build up of the carmel coloring and what your specific tolerance can handle.

Kaycee Collaborator
Kaycee
Posted
Could also be the caffeine - I know a couple celiacs who can't take caffeine in any form b/c it irritates their stomach. This probably isn't true for most but just a thought.

Thanks for that, but for me it is not the caffeine, I can drink a cup just before bed and sleep. Why couldn't we be all the same and react the same way with everything, but then that would make for boring reading.

Cathy

spunky Contributor
spunky
Posted

I've read that high fructose corn syrup really bothers a lot of people.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    2. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    3. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    4. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
    5. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,141
    • Most Online (within 30 mins)
      7,748
    islaPorty
    Newest Member
    islaPorty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      Airborne Gluten?

      By Jmartes71 · Posted

      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.