Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update On My Brother

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted

So a couple days ago, my brother smugly announced he'd eaten two chicken sandwiches one day

and then pizza for dinner, with basically no effect. So the last couple days, he'd slipped back to eating whatever he wanted...yesterday he had a couple soft (flour) tacos for lunch etc..

Basically told me his aches and pains were gone...likely from the new AD "Cymbalta" he was taking.

Today he calls me (from the bathroom at his work, sorry TMI) and says....the gastro symptoms are back. He now has a rash all over his face...and he hurts all over again.

Sheesh...what do ya all think of that:)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

I think he acts just like your twin. :blink: I remember you doing the same kinds of things, always doubting the gluten problem was real. How long did it take you to face reality?

And for that matter, you yourself are still posting in the pre-diagnosis forum, as if you were still not sure. Sheesh!!!!!!!!!!!!!!!!! :P

Lisa Mentor
Lisa
Posted

OOOPS, maybe that will make a believer out of him, finally. :(

CMCM Rising Star
CMCM
Posted

A clear case of "DENIAL" goes on with most of us. Yeah, we all go through it to some extent. I spent nearly a year going back and forth, denying the extent of the problem. I guess one finally gets to the point where you say "OK, I give up...I get it." ;)

JerryK Community Regular
JerryK
Posted
  • Author
And for that matter, you yourself are still posting in the pre-diagnosis forum, as if you were still not sure. Sheesh!!!!!!!!!!!!!!!!! :P

And where would you have me post... :lol:

There are so many forum's here and I'm resistant to change.

It feels funny posting in the "Celiac Disease" forums, cause you know, I just don't have an

official diagnosis.

Maybe there should be a "Gluten Purgatory" forum for guys like me:)

darlindeb25 Collaborator
darlindeb25
Posted

Don't kid yourself Jerry, you have it, so does your twin! We all do, doesn't matter if we are doctor diagnosed or not. You are a member of the club--you need a new shirt that says--KISS ME CAREFULLY, I'M GLUTEN FREE, ARE YOU :lol:

JerryK Community Regular
JerryK
Posted
  • Author
Don't kid yourself Jerry, you have it, so does your twin! We all do, doesn't matter if we are doctor diagnosed or not. You are a member of the club--you need a new shirt that says--KISS ME CAREFULLY, I'M GLUTEN FREE, ARE YOU :lol:

Funny, my wife tried to kiss me the other night with garlic bread crumbs all over her lips.

I brushed them off:)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted
And where would you have me post... :lol:

There are so many forum's here and I'm resistant to change.

It feels funny posting in the "Celiac Disease" forums, cause you know, I just don't have an

official diagnosis.

Maybe there should be a "Gluten Purgatory" forum for guys like me:)

Try the 'Celiac Disease - Coping with' or the 'Celiac Disease - Post Diagnosis, Recovery/Treatment(s) ' forums! I think you certainly are 'entitled' to posting in those. ;):ph34r:

JerryK Community Regular
JerryK
Posted
  • Author
Try the 'Celiac Disease - Coping with' or the 'Celiac Disease - Post Diagnosis, Recovery/Treatment(s) ' forums! I think you certainly are 'entitled' to posting in those. ;):ph34r:

There should be a Gluten Intolerance Limbo forum.... :lol:

I keep waiting for my test results....logging into my e-mail account at my HMO

hoping to see them...

Waiting is killing me...

jerseyangel Proficient
jerseyangel
Posted
Funny, my wife tried to kiss me the other night with garlic bread crumbs all over her lips.

I brushed them off:)

:lol: Well, that clinches it!!!!

Canadian Karen Community Regular
Canadian Karen
Posted
There should be a Gluten Intolerance Limbo forum.... :lol:

I keep waiting for my test results....logging into my e-mail account at my HMO

hoping to see them...

Waiting is killing me...

Most of us would frown on that since we have always made an effort to clarify that we don't give a rat's behind whether or not you heard those words from a doctor's lips or not, we are all in this together! We don't discrimate! LOL!

Karen

Christy-Latchford Rookie
Christy-Latchford
Posted

It's funny reading what you said about your brother's denial, it sounds all to familiar. I am currently awaiting the diagnosis that I feel is inevitable, but still like to try and "defy the odds". For instance last night I ate fries and a bagette sandwich for supper, and have barly left the bathroom since, but yet I still want to tell myself "maybe I have a virus or something", even though I clearly know what is going on. :huh: Denial is a funny thing..... :rolleyes:

JerryK Community Regular
JerryK
Posted
  • Author
Don't kid yourself Jerry, you have it, so does your twin! We all do, doesn't matter if we are doctor diagnosed or not. You are a member of the club--you need a new shirt that says--KISS ME CAREFULLY, I'M GLUTEN FREE, ARE YOU :lol:

Now the goober e-mails me and says..."I been on the toydee all morning".

I asked him if he believed and told him to "repent sinner". I figured it out the same way.

jerseyangel Proficient
jerseyangel
Posted

:lol: You said 'goober' :lol:

But seriously, remember when you needed to see for yourself? This is what he's going through right now. ;)

JerryK Community Regular
JerryK
Posted
  • Author
:lol: You said 'goober' :lol:

But seriously, remember when you needed to see for yourself? This is what he's going through right now. ;)

Yes and watching him do exactly the same thing I did is cracking me up :lol: This will go on for weeks :rolleyes:

jerseyangel Proficient
jerseyangel
Posted
Yes and watching him do exactly the same thing I did is cracking me up :lol: This will go on for weeks :rolleyes:

Yea--it'll be like watching a movie where you already know the ending :D

chocolatelover Contributor
chocolatelover
Posted

Jerry, I'm right there with ya--still waiting for that biopsy result. Every time my phone rings I pick it up thinking it will be them. It's killing me!

I also just did what your brother did--had lots of gluten for lunch thinking "Oh, it's probably all my imagination anyway--I'm really not gluten intolerant". I guess we'll see later today, won't we?

Perhaps your brother will now see it for what it really is...has he been tested yet?

JerryK Community Regular
JerryK
Posted
  • Author
Jerry, I'm right there with ya--still waiting for that biopsy result. Every time my phone rings I pick it up thinking it will be them. It's killing me!

I also just did what your brother did--had lots of gluten for lunch thinking "Oh, it's probably all my imagination anyway--I'm really not gluten intolerant". I guess we'll see later today, won't we?

Perhaps your brother will now see it for what it really is...has he been tested yet?

No, he hasn't been tested...he's figuring since he's my identical twin, the gene and blood tests will

apply for both of us. I know supposedly there's only a 70% chance that an identical twin has it,

but get real...if I have it he does.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    2. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
    4. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines? Did it work ?? Thank you !!
    5. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,878
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.