Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So I Had Some Blood Work Done

Sweetfudge

By Sweetfudge
in Related Issues & Disorders

Recommended Posts

Sweetfudge Community Regular
Sweetfudge
Posted

When I went in to the dr. on thursday, I had them take some blood to test my thyroid, as many here have recommended I do. They called me back friday morning. (Sidenote: I was amazed by this, as it took them 3 1/2 months to call me back after taking my blood for the celiac test...lol). Anyway, they said I have borderline low thyroid levels, and that they wanted me to come back in a month or two. What does this mean, and why "in a month or two"? Shouldn't I be taking something to help this? What are the pros and cons of being on thyroid meds? Any advice? Helpful links?

I called my parents yesterday and talked w/ them both. My mom said there's no history of thyroid problems on her side of the family, but that thyroid medicine will probably help me feel better, lose a little weight, and give me back some energy. My dad said that he doesn't think there's anything on his side of the family, although I do have 2 cousins w/ thyroid problems...they most likely got this from their mom's side of the family. He did mention that my grandpa was dxed w/ chronic fatigue syndrome back in the 60's...and they never did any tests on that, so it could have been a thyroid thing. I don't know how important it is to know my family history, I was just interested in seeing if anyone else had dealt w/ it.

Anyway there's my story, just looking for some feedback. Thanks much :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

If even the 'official' thyroid tests show borderline low thyroid, you really need to do something about them. And 'coming back in a few months' is NOT going to be any help at all!

Make an appointment with your doctor to see you now. If this doctor doesn't understand about treatment for this, then find a doctor who does.

Here is a good website to educate yourself while you wait to see your doctor Open Original Shared Link

Sweetfudge Community Regular
Sweetfudge
Posted
  • Author

so i looked at that site a bit, and lots of the symptoms sound like me. what do i need my doc to do for me/give me/etc? what is a good treatment? i've not had time to do much research yet, so i feel pretty clueless....thx :)

georgie Enthusiast
georgie
Posted

I composed a long mail and the cookies ate it :lol: Go back and get your paperwork. You need to see what your Thyroid result was - as a NUMBER - and if all the Throid tests were done. I was told 30 years ago that I had a borderline Thyroid, and that it didn't matter. I have suffered 30 years of CFS, Fibro and it was all due to this one Dr making a bad dx. Many Drs do not understand how to test Thyroid, and how to read a blood test for Thyroid, and how the new labs ranges for Thyroid are changing. Many labs are still using old lab ranges and you may find that your borderline result is not borderline at all.

Sweetfudge Community Regular
Sweetfudge
Posted
  • Author
I composed a long mail and the cookies ate it :lol: Go back and get your paperwork. You need to see what your Thyroid result was - as a NUMBER - and if all the Throid tests were done. I was told 30 years ago that I had a borderline Thyroid, and that it didn't matter. I have suffered 30 years of CFS, Fibro and it was all due to this one Dr making a bad dx. Many Drs do not understand how to test Thyroid, and how to read a blood test for Thyroid, and how the new labs ranges for Thyroid are changing. Many labs are still using old lab ranges and you may find that your borderline result is not borderline at all.

Is there a specific type of doctor that I need to look for to correctly diagnose what's wrong? What are all the tests they need to do for me? Thx :) I will call the dr on monday and find out what my numbers were.

Corkdarrr Enthusiast
Corkdarrr
Posted

I have been hypothyroid for over 13 years. And just in the last few months I have finally found a competent doctor.

I would highly recommend that you find a doctor who prescribes and understands Armour thyroid. For a lot of people it makes a HUGE difference.

You can find doctors that prescribe this type of med several ways:

1. ask your local pharmacist for the names of the doctors who prescribe armour

2. visit armour.com and do a search

3. Open Original Shared Link

visit the above website. on the right hand side choose the link for 'Top Drs' and search for your state

Even though I felt blatantly hypo and my gut feeling told me I was hypo, My tests kept coming back 'normal,' but as Georgie was saying, the thyroid tests are inaccurate and their ranges are HUGE. So if I'd ever thought enough to actually ask to see a copy of my test, I probably would've caught this sooner. So much for trusting your doctor...

If your doctor is on the wait-and-see with borderline low thyroid numbers it might not hurt to get a second opinion.

Keep us posted!

Courtney

happygirl Collaborator
happygirl
Posted

An endocrinologist is a doctor that you might want to see (with your tests in hand).

Thyroid and Celiac problems go hand in hand.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


georgie Enthusiast
georgie
Posted

I would suggest a Dr that uses Armour and uses saliva testing. If you ring the saliva labs they may have Drs names that use their services. Also the same with pharmacies in your area. A Dr that is DO often seems quite good. Endos seem about the worst usually. They refuse to understand and treat adrenal fatigue, and don't understand borderline Thyroid readings on blood tests. My Dr is just a normal GP who is interested in Natural Therapies as well.

Sweetfudge Community Regular
Sweetfudge
Posted
  • Author

Thanks everyone. I will give the doc a call tomorrow!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. sc'Que?
      - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

      This is FANTASTIC--especially that they are recognising barley and (potentially) oats as sources of gluten/contamination! Now if only we can get labeling guidelines to clarify "spices" and "natural flavors" for those of us with other severe allergies.
    2. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein...
    3. trents
      - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    4. Seabeemee
      - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Thanks for your reply Trents…most appreciated. I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population? Also, I found what you said about N...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,171
    • Most Online (within 30 mins)
      7,748
    Kristy Roberts
    Newest Member
    Kristy Roberts
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      What's your daily meals? Protein bars?

      By xxnonamexx · Posted

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Labs ? Awaiting in person follow up with my GI

      By trents · Posted

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Yeast extract

      By JoJo0611 · Posted

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.