Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie


lilly22278

Recommended Posts

lilly22278 Newbie

Hi all.

I am new to this whole concept. My children and I have decided to go gluten free(ok I made the decision for them) My aunt has the gluten allergy and since its genetic...and we sem to have many of the smptoms...we are giving it a try.

I think the main thing that prompted going gluten free was my sons ezcema. Its a whole body thing and hs been since I quit breastfeeding him. He is 5 now and I was at my whits end dealing with the constant open sores all over his body. We has emlinaited red dye, all soaps, shampoo, went thru every laundry detergent know to man and still no success. Of couse his diet otherwise was chicken nuggets and pudding. He is little for his age... and so skinny even though he eats nonstop. My daughter has ADD. And both of them always seem to have runny noses. My daughter always seems to have bowl problems either contipation or diarrhea. I have a whole assorted list of problems that the doctors just wanna drug up. I've had bowl problems since I was a child. any....maybe TMI there. The list seems to go on and on.

I guess as of right now I'd like to know how soon we will see resuts. It's been 11 days since we started the diet. His ezcema had another major flare up and my stomach is still in turmoil.

We didnt get diagnosed by a dr b/c our doctors (we went to 3 different ones) wouldnt even consider it. It's just ezcema they said...wouldnt even listen to the idea. Told me to go to a dermatologist who in turn gave him an antibiotic that did nothing for him.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

I just wanted to officially welcome you to the boards! Just eczema...aren't doctors frustrating?! When I was a baby wheat actually CAUSED my eczema, so I don't know why they were so quick to dismiss your idea. It can take a while to really see major improvement on a gluten free diet--in some people it can take months unfortunately.

CarlaB Enthusiast

Welcome!

How long it takes varies from person to person.

Are you sure you have all the gluten out of your diet? It's quite a challenge to get 100% gluten-free, and it takes most of us a couple months to figure out where all the gluten is. You may not feel better until it's all out of your diet. Gluten hides in many places ... toasters, wooden spoons, body lotions, shampoo, soy sauce, teflon, etc.

Were any of the doctors willing to allergy test your son? There may be other allergies involved.

The One Apprentice

It definitely takes time to eliminate all the gluten products and finding replacement! but it can be done.

I understand completely why you would want your kids to go gluten free. The eczema practically gives it away, ADD is very common in celiac children, so is failure to thrive and growth problems, tell me about it, I

TCA Contributor

Welcome!

My daughter's eczema improved going gluten-free, but didn't go away completely. Her other GI symptom and FTT are no longer an issue. My son is doing great too. We did go through testing, which was inconclusive, so we just tried the diet and the results were miraculous.

I also wanted to let you know that a good friend of mine has a daughter with similar eczema. She was miserable. They ended up going to an allergist who found she was allergic to peanuts, milk and eggs. They eliminated those foods and she's now eczema free! You might want to go to an allergist to make sure there aren't other foods involved.

There is a list in my sig line that might have some inof that would help you get started.

Good luck!

Creative-Soul Newbie

I just wanted to say hello and welcome; I hope you all feel better soon!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      9

      New Celiac Mama in My 30s

    2. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      9

      New Celiac Mama in My 30s

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      9

      New Celiac Mama in My 30s

    4. - cristiana replied to Jhona's topic in Introduce Yourself / Share Stuff
      38

      Does anyone here also have Afib

    5. - Scott Adams replied to tiffanygosci's topic in Coping with Celiac Disease
      9

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,973
    • Most Online (within 30 mins)
      7,748

    LRB
    Newest Member
    LRB
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
    • cristiana
      Interesting, when I suffered for a few months with ectopics I noticed that carbohydrates would cause indigestion and bloating in my stomach, then that would lead to my heart skipping beats, and I could feel it in my throat, it was very unsettling.  My last serious bout of this was after eating a Muller Rice Pudding for breakfast.   I happened to be wearing a 48 hour halter at the time and cardiology picked it up, but they weren't worried about what they saw. There was some British doctor who'd made some videos on the Vagus nerve that I remember watching at the time which made sense of what I was experiencing, there did seem to be some sort of connection.
    • Scott Adams
      Here are summaries of research articles on celiac disease and migraines: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.