Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac's?


walshclan

Recommended Posts

walshclan Newbie

Really I don't even know what Celiac's is but I stumbled across this site doing a search for something else. I just had a naturopath do a food intolerance test and it came back with some expected and surprising results. I've always known I've had a problem with milk so it was no surprise that I'm intolerant to milk in any form but what surprised me was that I am also intolerant to wheat and yeast....and soy and turnips and spinach and the meat/tomato combo and the meat/potato combo and chocolate and coffee and tea and cola. There that's it. lol. Does that make me celiac? Or just intolerant to some foods in general? I get IBS like symptoms?

Question for Ursa Major: I think you mentioned somewhere that you (or someone close to you) was intolerant to the meat/tomato combo...does the meat include poultry?

Connie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Connie:

Celiac Disease is an intolerance to gluten, a protein found in wheat, barley, malt, rye and sometimes oats. An intolerance can/will do damage to you small intestines. An allergy or sensitivity will/can have the same symptoms, but will not do damage.

You mentioned that you have several intolerances. Was this an allergy test?

Many of us have be diagnosed with IBS (which is not a diagnosis, but a symptom) for many years before testing or concluding that it was a gluten intolerance. It takes an average of 11 years for celiac to be diagnosed.

Could you expand on your symptoms, and perhap we can help you.

walshclan Newbie
Connie:

Celiac Disease is an intolerance to gluten, a protein found in wheat, barley, malt, rye and sometimes oats. An intolerance can/will do damage to you small intestines. An allergy or sensitivity will/can have the same symptoms, but will not do damage.

You mentioned that you have several intolerances. Was this an allergy test?

Many of us have be diagnosed with IBS (which is not a diagnosis, but a symptom) for many years before testing or concluding that it was a gluten intolerance. It takes an average of 11 years for celiac to be diagnosed.

Could you expand on your symptoms, and perhap we can help you.

I have diarrhea quite regularily, like most every day since I can remember. It is preceded by cramps. I have never linked it to anything but I've never gone off bread before.

I did a food intolerance test with my Naturopath. It is a Vega test. He didn't mention an intolerance to gluten. But I don't know if I was tested for that. I was tested for an intolerance to rye and oats and I'm okay with them does that mean I do not have celiac's?

I will see in the coming weeks what happens...

darlindeb25 Collaborator

IBS is a diagnosis, I just really wonder how real it is. IBS stands for Irritable Bowel Syndrome, although, a doctor once told me he feels it stands for "I Be Stumped!" Sometimes I think they diagnose it when they really have no idea what else is going on. I was diagnosed with it 25 years ago.

Connie--I have heard many celiac's say they have a problem when combining foods. I used to take my rice and a veggie, then stir it in with my cut up chicken and it did seem to cause upset. It was after this that I was told about not mixing things together. It does sound to me like a gluten free life may help you out. It can't hurt to try, gluten free can not hurt you. I think lots of people would be surprised at how much better they would feel if they were gluten free.

I was tested for an intolerance to rye and oats and I'm okay with them does that mean I do not have celiac's?No Connie, if gluten intolerant, then you would not be ok with them. For a very long time, barley did not effect me as the other glutens did, yet that does not mean it wasn't doing the same damage inside. The only reason I knew this was because for a few weeks I was eating a ricecake that contained barley, quite by accident, that was over 3 yrs ago. Oats, on the other hand, is controversial. I will never eats oats again, yet I reacted to them before I even knew abut gluten free. I grew up on a farm with a father who worked his entire life in grain elevators, I simply can not believe that oats can not be cross contaminated with wheat. So I will never trust oats.

walshclan Newbie
IBS is a diagnosis, I just really wonder how real it is. IBS stands for Irritable Bowel Syndrome, although, a doctor once told me he feels it stands for "I Be Stumped!" Sometimes I think they diagnose it when they really have no idea what else is going on. I was diagnosed with it 25 years ago.

Connie--I have heard many celiac's say they have a problem when combining foods. I used to take my rice and a veggie, then stir it in with my cut up chicken and it did seem to cause upset. It was after this that I was told about not mixing things together. It does sound to me like a gluten free life may help you out. It can't hurt to try, gluten free can not hurt you. I think lots of people would be surprised at how much better they would feel if they were gluten free.

I was tested for an intolerance to rye and oats and I'm okay with them does that mean I do not have celiac's?No Connie, if gluten intolerant, then you would not be ok with them. For a very long time, barley did not effect me as the other glutens did, yet that does not mean it wasn't doing the same damage inside. The only reason I knew this was because for a few weeks I was eating a ricecake that contained barley, quite by accident, that was over 3 yrs ago. Oats, on the other hand, is controversial. I will never eats oats again, yet I reacted to them before I even knew abut gluten free. I grew up on a farm with a father who worked his entire life in grain elevators, I simply can not believe that oats can not be cross contaminated with wheat. So I will never trust oats.

Once I am off wheat I will watch quite closely for problems with oats and barley and rye. Yikes this is getting bigger and bigger every day.

Connie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,651
    • Most Online (within 30 mins)
      7,748

    Mae61
    Newest Member
    Mae61
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.