Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac's?

walshclan

Recommended Posts

walshclan Newbie
walshclan
Posted

Really I don't even know what Celiac's is but I stumbled across this site doing a search for something else. I just had a naturopath do a food intolerance test and it came back with some expected and surprising results. I've always known I've had a problem with milk so it was no surprise that I'm intolerant to milk in any form but what surprised me was that I am also intolerant to wheat and yeast....and soy and turnips and spinach and the meat/tomato combo and the meat/potato combo and chocolate and coffee and tea and cola. There that's it. lol. Does that make me celiac? Or just intolerant to some foods in general? I get IBS like symptoms?

Question for Ursa Major: I think you mentioned somewhere that you (or someone close to you) was intolerant to the meat/tomato combo...does the meat include poultry?

Connie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Connie:

Celiac Disease is an intolerance to gluten, a protein found in wheat, barley, malt, rye and sometimes oats. An intolerance can/will do damage to you small intestines. An allergy or sensitivity will/can have the same symptoms, but will not do damage.

You mentioned that you have several intolerances. Was this an allergy test?

Many of us have be diagnosed with IBS (which is not a diagnosis, but a symptom) for many years before testing or concluding that it was a gluten intolerance. It takes an average of 11 years for celiac to be diagnosed.

Could you expand on your symptoms, and perhap we can help you.

walshclan Newbie
walshclan
Posted
  • Author
Connie:

Celiac Disease is an intolerance to gluten, a protein found in wheat, barley, malt, rye and sometimes oats. An intolerance can/will do damage to you small intestines. An allergy or sensitivity will/can have the same symptoms, but will not do damage.

You mentioned that you have several intolerances. Was this an allergy test?

Many of us have be diagnosed with IBS (which is not a diagnosis, but a symptom) for many years before testing or concluding that it was a gluten intolerance. It takes an average of 11 years for celiac to be diagnosed.

Could you expand on your symptoms, and perhap we can help you.

I have diarrhea quite regularily, like most every day since I can remember. It is preceded by cramps. I have never linked it to anything but I've never gone off bread before.

I did a food intolerance test with my Naturopath. It is a Vega test. He didn't mention an intolerance to gluten. But I don't know if I was tested for that. I was tested for an intolerance to rye and oats and I'm okay with them does that mean I do not have celiac's?

I will see in the coming weeks what happens...

darlindeb25 Collaborator
darlindeb25
Posted

IBS is a diagnosis, I just really wonder how real it is. IBS stands for Irritable Bowel Syndrome, although, a doctor once told me he feels it stands for "I Be Stumped!" Sometimes I think they diagnose it when they really have no idea what else is going on. I was diagnosed with it 25 years ago.

Connie--I have heard many celiac's say they have a problem when combining foods. I used to take my rice and a veggie, then stir it in with my cut up chicken and it did seem to cause upset. It was after this that I was told about not mixing things together. It does sound to me like a gluten free life may help you out. It can't hurt to try, gluten free can not hurt you. I think lots of people would be surprised at how much better they would feel if they were gluten free.

I was tested for an intolerance to rye and oats and I'm okay with them does that mean I do not have celiac's?No Connie, if gluten intolerant, then you would not be ok with them. For a very long time, barley did not effect me as the other glutens did, yet that does not mean it wasn't doing the same damage inside. The only reason I knew this was because for a few weeks I was eating a ricecake that contained barley, quite by accident, that was over 3 yrs ago. Oats, on the other hand, is controversial. I will never eats oats again, yet I reacted to them before I even knew abut gluten free. I grew up on a farm with a father who worked his entire life in grain elevators, I simply can not believe that oats can not be cross contaminated with wheat. So I will never trust oats.

walshclan Newbie
walshclan
Posted
  • Author
IBS is a diagnosis, I just really wonder how real it is. IBS stands for Irritable Bowel Syndrome, although, a doctor once told me he feels it stands for "I Be Stumped!" Sometimes I think they diagnose it when they really have no idea what else is going on. I was diagnosed with it 25 years ago.

Connie--I have heard many celiac's say they have a problem when combining foods. I used to take my rice and a veggie, then stir it in with my cut up chicken and it did seem to cause upset. It was after this that I was told about not mixing things together. It does sound to me like a gluten free life may help you out. It can't hurt to try, gluten free can not hurt you. I think lots of people would be surprised at how much better they would feel if they were gluten free.

I was tested for an intolerance to rye and oats and I'm okay with them does that mean I do not have celiac's?No Connie, if gluten intolerant, then you would not be ok with them. For a very long time, barley did not effect me as the other glutens did, yet that does not mean it wasn't doing the same damage inside. The only reason I knew this was because for a few weeks I was eating a ricecake that contained barley, quite by accident, that was over 3 yrs ago. Oats, on the other hand, is controversial. I will never eats oats again, yet I reacted to them before I even knew abut gluten free. I grew up on a farm with a father who worked his entire life in grain elevators, I simply can not believe that oats can not be cross contaminated with wheat. So I will never trust oats.

Once I am off wheat I will watch quite closely for problems with oats and barley and rye. Yikes this is getting bigger and bigger every day.

Connie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748
    dcarter1682
    Newest Member
    dcarter1682
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.