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Celiacs In Alabama


Guest lorlyn

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Guest lorlyn

Hi,

Looking for anyone in Alabama? Like to start a support group in Birmingham.

  • 2 weeks later...

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steffie Newbie

Hi!

I am in Tuscaloosa, Alabama and would welcome a support group. I have been diagnosed for six years and have been alone all of this time. I have had so many health problems as a result of this disease. I was sick over 10 years before my diagnosis. I feel much better now but would welcome talking to someone in person with the same disease.

Guest lorlyn

Hi Steffie,

I have heard through my Church of a couple of people with Celiac and their friends told me they may be interested in a support group. Someone on this forum told me that there Whole food store lets them meet at the store. I think that would be cool. I am also willing to drive to t-town and have dinner somewhere to meet there also. I am sorry that you went so long alone. My husband has had symtoms for a long time but i never had heard of Celiac until i took my daughter to the doctor and found out a week later after she had a biopsy. We have only been gluten free since November so I am still overwhelmed trying to learn. I think it would do my daughter good to meet someone else with celiac because i think she gets depressed some time. Feel free to email me of group so we can chat.

Take care

Lynn

  • 4 months later...
sherryGF Newbie

Hi, my name is Sherry, and I live in Hoover, AL. I'd LOVE to see a Celiac support group started soon! I've been gluten-free for 7 years now, but was sick with what was mis-diagnosed as Crohn's disease at least 10 years prior to that! I am very used to the diet, but now can't "do" dairy or soy anymore without getting sick! Please feel free to contact me about getting a group started!

tiffjake Enthusiast

I am from AL but I don't live there now. But I have a couple of Celiac friends in Birmingham, so when you do get a meeting together, I would love to share the info with them (they are not on celiac.com, I don't think....). Good Luck!!

  • 4 weeks later...
Guest lorlyn

There is a Celiac support group in Birmingham. Their e-mail is Birminghamceliac.com. If this not right it may be listed as Bham celiac support group. They have monthly meetings. I have been to one and they are having another one on July 30th in Hoover. Let me know if you need more info.

Lynn

  • 4 weeks later...
Guest lorlyn

Just wanted to know if the Alabama Celiac were still out there? <_<


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sherryGF Newbie

Lorlyn, I still haven't found a Celiac Support Group, although a sign was posted at Organic Harvest last year asking if any of their patrons were interested in starting a group, but nothing seemed to come of it. Have you been to the new Whole Foods store yet? Please let me know if I can be of any help! Sherry

Guest lorlyn

Hey Sherry,

I go to the new Whole Foods a couple times a month to get certain things. They had a sign up for a support group in Birmingham(Hoover). I went to the July meeting and it was nice for our family to meet other people in the same boat as us. I was out of town for the August meeting there will be another one in September. If you would like the info they have a web page at Birmingham Celiac.com I think if you are interested. If you cannot find the info just let me know. Nice to hear from another Alabamian :rolleyes:

Khat Newbie

If you would like the info they have a web page at Birmingham Celiac.com I think if you are interested.

Lorlyn and Sherry, I'm glad y'all had this conversation! :)

Am heading off to that Website now because I sure could use some support and advice from other folks in the area. I live in Inverness so the Hoover meeting will be convenient. Not that it would matter. I've never been a support-group kind of girl, but this situation is changing all kinds of things.

Thanks!

Guest lorlyn

Hey Khat, Just wanted to say hello and welcome to this forum. Just to let you know the B'ham(Hoover) group will be meeting at Organic Harvest on September 14 at 6:00 pm. I have been to one meeting and there were about 20-30 people. The one meeting I went to was a get together and everyone brought a dish. It was nice to meet other people with the same problem. The last meeting they had a speaker come in so it seems like it varies. Please try to come.

Have a great weekend and let us know if there is any thing we can do for you. :)

  • 2 weeks later...
Guest lorlyn

Hey to all of our Alabama Celiac. The Birrmingham chapter is still having there monthly meeting on September 14, 2007 at Organic Harvest for any one interested. It is located in Hoover Alabama.

hope to see you there

  • 1 month later...
rebkin Newbie

Hello Gluten Free Friends!

We do indeed have a great support group here in Birmingham, Alabama. The group is still relatively new - just over a year old - but growing all the time! Our next meeting is on October 29th, 6:00 p.m. at Kid One Transport in Hoover (Lorna Road/I459 area - easy to get to).

Everyone is welcome. A pediatrician specializing in children with Celiac is going to be speaking at this meeting.

I personally have found the group to be a great source of information, support, and friendship!

Hope you can join us!

Rebecca

You can get info from:

birminghamceliac@hotmail.com

  • 1 month later...
rebkin Newbie

Hello Friends!

I am looking forward to continuing the work with the Birmingham Celiac Disease Support group that Janet started here for all of us. I'm sure all of you felt 'alone' with your ailment as I did, before finding the group that she started. I have enjoyed the friendships that I have made, and greatly appreciate the wealth of knowledge that we have gained thanks to Janet's hard work. Thank you Janet!

I will work to continue to grow our group and our resources, knowing that through larger numbers our voices are better heard spreading the word about Celiac Disease. I'd like to give more people like us who have been previously diagnosed a new support system - and maybe inspire someone not yet diagnosed to ask the right questions of their doctors to save them the long diagnosis process that many of us had.

Please contact me by email at birminghamceliac@hotmail.com with any ideas, concerns, news, etc. - anytime.

I am happy to be able to be able to take on a lead role with our group, and will always welcome your help!

Have a very Happy and Healthy Thanksgiving!

Rebecca

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
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    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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