Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reading Labels


hathor

Recommended Posts

hathor Contributor

I'm curious as to how you all deal with ingredient labels that say something may contain traces of something, is shared with the same machinery as something, or is processed in the same facility as something.

Do you run for the hills? Find it is usually safe (the lawyers just want the company to protect itself)? Or does it vary (sometimes you react, sometimes you don't)?

Does it make a difference if you are talking about gluten or something else where you have a sensitivity, but not an allergy?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I seem to be okay with these products. I think most of the time it's a CYA statement, though I know some around here avoid them entirely. That being said, I don't eat many processed foods ...

ravenwoodglass Mentor

I consider them basically a crap shoot. With some products I will react any time I eat them, with others one time things will be fine and another they won't. I get neuro effects, so lucky me, I usually know fairly quickly that I have been got. I start tipping over within a short time. :blink: For me it depends on how much I really want the product and whether a gluten-free alternative is readily available. I am lucky to live near a Wegmans, they label all safe products which has made shopping much less worrysome.

celiacgirls Apprentice

I avoid anything that says "may contain traces of ...". For me, I might take a chance with casein or soy but I wouldn't let my kids because they react to tiny amounts.

I used to buy the ones that said "manufactured in a facility that uses ..." but I have noticed my children have reacted to some of those. For now, I will avoid the ones they have reacted to and look for alternatives in the ones we are not sure about. If no alternative is available, I might let them try it, depending on the circumstances.

Guest cassidy

I steer clear of almost all of that stuff. I am very sensitive and I have tried not worrying about it but I always end up getting sick. I also call or check the website if the product doesn't mention what else is produced in the area because I want to know. I wish I wasn't that sensitive because there are plenty of foods that are supposed to be gluten-free that I love and have had to give up because they get me sick.

I'm sure you will figure out just how sensitive you are and what works best for you.

Aizlynn Rookie

I agree, it is a very confusing issue, but what upset me was this morning I was eating my "Wheat Free" waffles from trader joes, and on the back it says made on equipment containing wheat!! I have always prided myself by eating healthy by shopping at TJ's but I am finding more and more that their products are always made on shared equipment. just a note :) and I guess a whine :(

hathor Contributor

I appreciate everyone's comments. I think I will stay away from the "traces" ones for everything and any "machinery" involving wheat. I can always revisit the issue if I find I am more sensitive. Of course, I will keep track of any adverse reactions.

I feel better having a plan, even if I'm not completely sure it is the right one :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yenni Enthusiast

I seem to be very sensitive, so I stay away. I have gotten sick from both "Casein has been used on the same mashine" and " soy is used in the same facility".

I have even felt iffy on Bob's Mills stuff that is supposed to be tested.

When it comes to my allergies I have always been fine with "may contain nuts". Probably shouldn't keep non with that, not that it happens often.

jcford33 Rookie

I eat a lot of Frito Lay products. Their gluten free list also contains the facility and machinery warning, but I've had good luck with them and trust them more than some. I do stay away from the smaller companies with the same warning due to the facility size. When it comes to a facility/machinery warning, I think it's a lot like eating out. You know your taking a little bit of a risk, but it's a chance we all take to live a halfway normal life.

Is the facility/machinery warning required by the FDA, or is it just a courtesy from the companies?

hathor Contributor

Is the facility/machinery warning required by the FDA, or is it just a courtesy from the companies?

As I understand it, it is not required. I don't know if having such labels is a courtesy or an attempt to immunize themselves from lawsuits :rolleyes:

Under the Food Allergen Labeling and Consumer Protection Act of 2004, any covered product labeled after January 1, 2006 must specify if it contains one or more of the major allergens. According to the FDA, any advisory statement is not supposed to be a substitute for good manufacturing practices and must be truthful. Further: "FALCPA's labeling requirements do not apply to major food allergens that are unintentionally added to a food as the result of cross-contact. In the context of food allergens, "cross-contact " occurs when a residue or other trace amount of an allergenic food is unintentionally incorporated into another food that is not intended to contain that allergenic food. Cross-contact may result from customary methods of growing and harvesting crops, as well as from the use of shared storage, transportation, or production equipment." Open Original Shared Link

Gee, I kind of wish you hadn't asked and caused me to research this. :blink: It makes me pretty scared about products that don't even bother with advisory statements. They could have all sorts of things in them "unintentionally."

Yenni Enthusiast

As I understand it, it is not required. I don't know if having such labels is a courtesy or an attempt to immunize themselves from lawsuits :rolleyes:

Under the Food Allergen Labeling and Consumer Protection Act of 2004, any covered product labeled after January 1, 2006 must specify if it contains one or more of the major allergens. According to the FDA, any advisory statement is not supposed to be a substitute for good manufacturing practices and must be truthful. Further: "FALCPA's labeling requirements do not apply to major food allergens that are unintentionally added to a food as the result of cross-contact. In the context of food allergens, "cross-contact " occurs when a residue or other trace amount of an allergenic food is unintentionally incorporated into another food that is not intended to contain that allergenic food. Cross-contact may result from customary methods of growing and harvesting crops, as well as from the use of shared storage, transportation, or production equipment." Open Original Shared Link

Gee, I kind of wish you hadn't asked and caused me to research this. :blink: It makes me pretty scared about products that don't even bother with advisory statements. They could have all sorts of things in them "unintentionally."

Looks like possible cross contamination risks does NOT have to be labeled then.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748

    LowellFrancis
    Newest Member
    LowellFrancis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.