Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help With A Diet


chatycady

Recommended Posts

chatycady Explorer

Hello; I have not been diagnoised as having celiac, but have started a gluten free diet. My blood tests were negative, but will the "endo" done in a week or two.

My problem is:

Pernicious anemia (B-12)

Hypoglycemia

low blood pressure - blood sugar dives, my blood pressure dives.

Lactose intolerant

and gluten intolerant. (possible celiac patient)

I could use some "new" ideas on what I can eat. I'm tired of bacon and eggs, almonds, and hamburgers and salads. Any suggestions?

Thanks!

Chaty :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Hello; I have not been diagnoised as having celiac, but have started a gluten free diet. My blood tests were negative, but will the "endo" done in a week or two.

My problem is:

Pernicious anemia (B-12)

Hypoglycemia

low blood pressure - blood sugar dives, my blood pressure dives.

Lactose intolerant

and gluten intolerant. (possible celiac patient)

I could use some "new" ideas on what I can eat. I'm tired of bacon and eggs, almonds, and hamburgers and salads. Any suggestions?

Thanks!

Chaty :unsure:

Hi and welcome. One thing you may want to add is buckwheat, it is gluten free despite the name. You can get it in a cream of wheat type cereal consistency (add some cinnamon and it will do the blood sugar a lot of good), and also in a more whole grain form that is a good sub for bulgar or couscous.

I like to do what I call fast food also, I take some heavy foil and put a number of different veggies in fresh or frozen a few spices and some whole shrimp or cooked leftover meat. Seal it tight and stick in the oven at around 350 and go watch TV for a half hour or so.

I make a trail mix out of gluten-free fruits and nuts that I also keep on hand to help keep the sugar stablized.

Pizza made with the gluten-free Pantries French Bread mix is also a favorite of mine.

I know others will be on with some other good ideas.

It gets easier with time, welcome to the board.

CarlaB Enthusiast

Enchiladas made with ground beef or chicken and refried beans. Fill them, pour enchilada sauce over them (be sure it's gluten-free), sprinkle on some cheese (you can use soy, rice or just leave it off), then bake till warm. Use corn tortillas.

Tinkyada pasta, any way you like. I like the penne with sauteed veggies and italian sausage. Just olive oil and garlic for the sauce.

How about stir-fry over rice?

You shouldn't go gluten-free until after the endoscopy. Your intestine heals on the gluten-free diet, so they won't be able to find damage.

JodiC Apprentice
Hello; I have not been diagnoised as having celiac, but have started a gluten free diet. My blood tests were negative, but will the "endo" done in a week or two.

My problem is:

Pernicious anemia (B-12)

Hypoglycemia

low blood pressure - blood sugar dives, my blood pressure dives.

Lactose intolerant

and gluten intolerant. (possible celiac patient)

I could use some "new" ideas on what I can eat. I'm tired of bacon and eggs, almonds, and hamburgers and salads. Any suggestions?

Thanks!

Chaty :unsure:

You're not supposed to eliminate gluten until after the biopsy. I suggest doing your own research as these sites can get pretty confusing. Too many different opinions. Good Luck. (you will need it)

bluejeangirl Contributor

Have you've been gluten free yet? Your hypogycemia will probably improve once your off gluten. Helps to eat 6 meals aday. Try to include a protein in that meal and complex carb. Watch out with pototoes, and white rice and eating high sugar fruits. Do you do ok with soymilk? Oatmeal with soymilk and steavia to sweeten is a good first meal. I also add alittle cinnamon because it doesn't raise your blood sugar. It'll keep it even. You'll have to decide if you include oatmeal if your celiac. Some eat it others don't. You can google why using the past board disscussions instructed on the top of the page.

A good second meal..maybe a hard boiled egg or peanutbutter with a gluten free cracker or a slice of millet bread. (if you go gluten free) I also watch what the gluten free bread is made of and stay away from potato starch.

Lunch can be leftover from the night before. Or Salad with turkey breast or chicken breast. Tuna sandwich. Soup made with fiber rich beans or brown rice.

Snacks fruit like apples are good, pears, berries. Nut butters or nuts. Smoked salmon on crackers. Soy yogurt.

Supper try and make more then usual and you have leftovers. I mostly just keep my carbs low.

Before bed. I'll usually have yogurt or a small bowl of cereal and soymilk.

Gail

chatycady Explorer

Wow! Thanks for all the ideas! I appreciate them. Sometimes it's hard to come up with ideas. You all have given me lots of new avenues.

As for the test and gluten free diet, it was my understanding that a couple of weeks wouldn't make that much of a difference. It can take up to 3 years to heal. And now that I'm gluten free (1 week) I CAN'T go back cause I get too sick and I can't work. (Terrible cramps, back ache, heart races, blood sugar dives, blood pressure dives,,, etc. etc.) No matter what I'm not touching gluten ever again!

I want to know however for my family. I have a daughter with unexplained infertility and she has digestive problems and headaches. Doctors don't listen unless a person has a "medical documented condition".

Thank you THank you Thank you.

I've never heard of soy yogurt.... I'll check that out.

chocolatelover Contributor

Why soy yogurt? Is there something about regular yogurt that I don't know about?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

As long as you make them with gluten-free ingredients, you can eat a lot of the same things you did before like pasta, french toast, brownies, and cake. Asianand Mexican recipes offer a lot of gluten-freeness, too. I recently tried my first risotto and it said gluen-free on the box.

dionnek Enthusiast

I like to eat Bob's Red Mill mighty hot tasty cereal (or something like that - it is gluten-free and is made with brown rice and buckwheat I think) and I cook it with craisins or dried appricots and then add cinnamon and applesauce (applesauce instead of milk). It is very good.

Chocolatelover - I think people recommend soy yogurt if yoiu can't tolerate dairy or casein - I eat Yoplait and blue cow (or blue bunny?) yogurt and it is gluten-free.

Mysuicide turtle - if you like chicken sausages (or keilbasa, etc.), I love to cut them up and mix them in the Lundberg's risotto while it cooks to make a complete meal. It is very good with the mushroom risotto!

chatycady Explorer
As long as you make them with gluten-free ingredients, you can eat a lot of the same things you did before like pasta, french toast, brownies, and cake. Asianand Mexican recipes offer a lot of gluten-freeness, too. I recently tried my first risotto and it said gluen-free on the box.

I cut out all the simple carbs because it caused hypoglycemia, but do you think if they are gluten free I could eat them again?

Tritty Rookie

I know how you feel about never touching gluten again. I was gluten free almost 4 whole weeks before my endo (I was losing too much weight too quickly and really dehydrated) - and there was still plenty of damage to be seen...My Dr told me not to bother going back on gluten - she didn't believe in making yourself sick over it - positive dietary response is good enough for her to confirm what the bloodtests already said...

As for food :)

I really like the Thai Kitchen meals for something quick. Also like pork tenderloin with white rice and some sweet and sour sauce and veggies. Or just a good old fashioned steak. YUM!

Tritty Rookie

OHHH

And what about pot roast and beef stew (minus potatos of course).

And salisbury steak and meatloaf.

OK, now I'm officially hungry again...

CarlaB Enthusiast
OHHH

And what about pot roast and beef stew (minus potatos of course).

And salisbury steak and meatloaf.

OK, now I'm officially hungry again...

Potatoes are gluten-free, but some people still can't have them because they're a nightshade.

Be careful that the meatloaf is made with gluten-free bread crumbs!! ;)

chatycady Explorer
Potatoes are gluten-free, but some people still can't have them because they're a nightshade.

Be careful that the meatloaf is made with gluten-free bread crumbs!! ;)

I love meatloaf,, do you have a good recipe with gluten free crackers? Are there such crackers?

Tritty Rookie

I said potatos b/c I thought she was watching out for them b/c of her other issues....

My husband is loving me having celiac - I've been making homemade mashed potatos and meatloaf at least once a week :rolleyes:

I've been doing my trick I learned from Rachel Ray - just toasting a piece of bread (gluten-free of course) until it's REALLY toasted and cutting it into small pieces and just throwing that in.

I'm thinking about emailing her and putting out the suggestion that she pick a day a week to be gluten-free day. On that day she always cooks a new gluten-free 30 min meal....

Tritty Rookie

OOPs - didn't see your post.

I use 1 lb of ground beef

1/2cup milk (you would have to replace)

1 egg

some onion (depends on how much you like)

and one piece of very toasted gluten-free bread chopped up into pieces.

mix it all up - put in the oven at 350 for 1/2 hour. After 1/2 hour add a can of tomato sauce on top (I use Hunt's). Then cook another 1/2 hour. It's just easy and tasty!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,258
    • Most Online (within 30 mins)
      7,748

    Tdodge
    Newest Member
    Tdodge
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.