Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Esophgatist?


hillyb6

Recommended Posts

hillyb6 Rookie

ok my 8yr dd had her endoscop and colonoscopy done today and they ruled out crohns

but we wont have the biopsy results back for a few days to a week

they did find grade 4 errosion of her esophgus and some gastrist in her stomach

can that be related to celiacs? or is that seperate issues altogether

another thing i am shocked about is they are testing her for crohns and celiac but as she came to they offered her nothing but glutton

what if she was celiac they had only chex mix, gold fisha nd grammy bears for her to eat arghhhhhhhh

i said she cant have those they make her stomach hurt they were surprised and said well thats all we have

and this is a childrens hospital right before she went in a little 3yrold was having his scope done and had a huge post on his celiac blood panel so i

wonder if they fed him glutton too

:(

http://img.photobucket.com/albums/v378/sba...giphotos1-1.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nikki2003 Contributor
ok my 8yr dd had her endoscop and colonoscopy done today and they ruled out crohns

but we wont have the biopsy results back for a few days to a week

they did find grade 4 errosion of her esophgus and some gastrist in her stomach

can that be related to celiacs? or is that seperate issues altogether

another thing i am shocked about is they are testing her for crohns and celiac but as she came to they offered her nothing but glutton

what if she was celiac they had only chex mix, gold fisha nd grammy bears for her to eat arghhhhhhhh

i said she cant have those they make her stomach hurt they were surprised and said well thats all we have

and this is a childrens hospital right before she went in a little 3yrold was having his scope done and had a huge post on his celiac blood panel so i

wonder if they fed him glutton too

:(

http://img.photobucket.com/albums/v378/sba...giphotos1-1.webp

when nicole went in for her scope they found she also has gastritis and esophagitis also she is on prevacid now and doing great with it. When she woke up they just offered her a popsicle because they dont really want them to eat alot or heavy for a while. Maybe they figure since you don't know yet what does it matter. But it does matter especially if it hurts them. Nicole came back celiac even though they couldn't see it before the biopsy results came back.

I hope all goes well for you now on.

Celina

hillyb6 Rookie
when nicole went in for her scope they found she also has gastritis and esophagitis also she is on prevacid now and doing great with it. When she woke up they just offered her a popsicle because they dont really want them to eat alot or heavy for a while. Maybe they figure since you don't know yet what does it matter. But it does matter especially if it hurts them. Nicole came back celiac even though they couldn't see it before the biopsy results came back.

I hope all goes well for you now on.

Celina

hannah been on previcid 30mg since sept its clearly not helping so i guess we try soemthing else now

2kids4me Contributor

My son has duodentitis and is on Nexium...works well.

another thing i am shocked about is they are testing her for crohns and celiac but as she came to they offered her nothing but glutton

We had that experience too at a Childrens hospital - offered a sandwich :blink:

When Kathryn was reovering form her appendectomy - she had nothing to eat for 2 days because she was sick (vomiting) then had surgery...offered her jello the first day and then - get this - her first real food is not rice or soup or someting easy to digest. Kathryn said it almost made her sick looking at it - a huge plate with 2 pieces of chicken, fries (which no one knew if they were cross contaminated), and carrots. Kathryn refused it all because the fries had touched the other food on the plate. She was labeled as "difficult eater"

Any time a hospital stay is involved, I throw in some handy "stand bys" of gluten free products.

Sandy

hillyb6 Rookie

yah well that is basically what they fed hannah too after her surgery was nothing but gluten so wonder she had amigraine and pain but she was on soo much pain meds proably good thing

i am shocked that kids that were in there with pos blood test for celiacs were being offered nothing but gluten now for my dd its unclear but last night she ate chicken nuggets and was sick with in the hour i woudlnt have fed her that but i wasnt home either daddy let her pick what she wanted since she had to endure her testing that day sigh

he is not on the wagon about the gluten free or even gluten light he says he is but then he feed her chicken nuggets and calls to find out where her meds are to help her stomach pains

Guest cassidy

Reflux is one of my main symptoms when I'm glutened. I had surgery for it when I was 10 but it came back. Now that I'm gluten-free I only get reflux if I eat gluten. Even a crumb will make me reflux for about 3 weeks. You may find that after she goes gluten-free the reflux will go away over time.

It is crazy that hospitals offer food that you can't eat. I told my doctor that I suspected celiac and went gluten-free. They sent me in for a test where they watch you swallow a bagel and marshmallow. I brought my own gluten-free bagel because they would have expected me to eat a gluten filled bagel if I hadn't. I'm pregnant and decided that I'm bringing my food from home for when I'm in the hospital. Too many people here had horror stories about what the hospitals fed them.

Good luck and hope she feels better!

Guest aparde

Hi! I am so sorry for this. I am sure she feels aweful!! Reflux has taken a tole on our lives! My son who is 12 months has horrible reflux that has caused breathing problems, laryangomalatia, unalbe to swallow foods, pnuemonias, apnea spells, severe esophagitis... ya he has had it bad.

My daughter has celiac and so they will be testing him for that but they haven't done it yet. I am only nursing him and they are talking about a feeding tube right now. I didn't really know until recently that gluten went through breast milk and I have had a hard time with my digestive system since he was born. I have gone off gluten for about a week now but no change yet. Maybe he will turn around.

I hope she feels better soon!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is this celiac?

    2. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

    3. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,346
    • Most Online (within 30 mins)
      7,748

    rolland mcclay
    Newest Member
    rolland mcclay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
    • Trish G
      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well.  Thanks again (newbie here 😀)
    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.