Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me Anyone? Sick And Mystified

oceangirl

By oceangirl
in Coping with Celiac Disease

Recommended Posts

oceangirl Collaborator
oceangirl
Posted

Hi.

I'm at the end of my rope with a over a week's worth of glutening and apparent re-glutening and cannot place a culprit. I am 10 months gluten-free, a year gluten-lite and had been doing much better with more good days than bad. This siege began with introducing Perdue whole chicken (I cook ALL my food- do not eat out or even at friend's and family's homes- andeat just a few prepared products.) Our home is almost entirely gluten-free) I was having Amy's tomato/basil tomato sauce without apparent upset, I reintroduced Lara bars (banana) and had some Green Mountain Gringo salsa.

Last night we ate salmon, zucchini and summer squash with garlic and shallots and fresh basil (from a store) and French wine. I did have some Cabot cheddar cheese which I'd reintroduced as well to no apparent ill-effect and a Pamela's shortbread cookie for lunch. I had a HORRIBLE night- feel like I'm back when I didn't know what was wrong with me! Is it possible the little styrofoam trays they put salmon in or the white absorbant pad that's in there could be a problem? I know, this is nuts but if anyone has any thoughts, I TRULY appreciate it! I had blocked out how awful it is to be this sick!

Thank you for any help!

lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Nothing looks out of the ordinary to me. Do you think you might have a stomach virus? My non-gluten intolerant son had a lot of stomach trouble last week ... sometimes it's easy to forget that we might just be "normal" sick.

DebbieInCanada Rookie
DebbieInCanada
Posted
Hi.

I'm at the end of my rope with a over a week's worth of glutening and apparent re-glutening and cannot place a culprit. I am 10 months gluten-free...

Lisa,

Here is what I experienced - once I was gluten free for a period of time, I started getting those symptoms again. I did some more elimination from my diet, and found that corn was causing very similar symptoms to the gluten. Once I removed the corn products from my diet, I started feeling great again. So maybe something else is causing you to get sick again.

From the food you listed, it's hard to identify any obvious culprits. I would suggest looking at the most common allergens (corn, soy, eggs, dairy, etc), and try removing those for a period of time. If that makes a difference, try re-introducing one at a time to see if it causes a reaction.

Also, look at your other products - personal care, etc. for other sources of contamination.

Hope you can find a solution.

Debbie

chick2ba Apprentice
chick2ba
Posted

I've reacted many many times to Pamela's gluten-free cookies (several varieties; definite gluten reaction). It took me forever to suspect that they were gluten-ing me since it's a 'trusted' brand. I know other people don't react to those cookies, but my health has improved dramatically since removing them from my diet. Hope you feel better soon.

oceangirl Collaborator
oceangirl
Posted
  • Author
I've reacted many many times to Pamela's gluten-free cookies (several varieties; definite gluten reaction). It took me forever to suspect that they were gluten-ing me since it's a 'trusted' brand. I know other people don't react to those cookies, but my health has improved dramatically since removing them from my diet. Hope you feel better soon.

Thank you all so much for replying. Carla, I'm fairly certain it's not a "bug", although you're right that we need remind ourselves to sometimes when hearing hoofsteps to think "horses". Debbie- very sound advice and I will continue to "weed", although I am also corn, soy and mostly dairy-free. I think someone wrote on here once that they use corn in those styrofoam trays, I'm not sure. And, Chick, thank you for the advice about Pamela's. They are a treat thing every now and then for me and I don't THINK I've reacted before but I won't have any for awhile as I try to sort this out.

I very much appreciate all of your advice and I will weigh all of it. Sometimes on this end of the tunnel it's hard to believe you'll ever get back to the other side again, so your encouragement is great. I just went skating to pretend I'm not feeling nauseous and in pain. (It didn't work brilliantly, but, what the heck...)

Thank you!

lisa

miles2go Contributor
miles2go
Posted

Lisa, just wanted to say hi from Orono. It sounds like you're going through similar issues as mine since gluten-free for 14 months. Some days are just terrific and then others are not and when we feel used to feeling well, it feels like absolute crapaliciousness. My cat eats gluteny cat food at times and that doesn't seem to bother me, even though I have to hold my breath around the bread aisle at the grocery store. I'm currently battling a sinus infection that didn't go away after the first course of antibiotics...second time in three years. Yeesh.

Hope you're feeling better soon, bake your own cookies, remember that multiple allergies can cause this and your hubby is a sweetie and maybe someday we'll have the gluten-free beer up here, too. :)

Lisa Mentor
Lisa
Posted

lisa:

Perhaps a change in ingredient in your cosmetics. Also, someone mentioned an electric can opener with gluten goo on the blade. Have you introduced any new lotions, dish soaps... Some fruit juices contain gluten, where you would think that they would not.

I hope you feel better soon, or better yet, find what it is so that you can prevent getting sick.

Lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Lisa,

I am sorry you are having a tough time. The main thing that stuck out for me is the Pamela's cookies. I don't know what it is with them....I do well with her other products, and used to do well with her cookies....but I realized that I just cannot tolerate her cookies. I honestly don't know if its gluten or not....but they bother me consistently now.

You mentioned, "Last night we ate salmon, zucchini and summer squash with garlic and shallots and fresh basil (from a store) " .... are you saying the salmon etc was from like, the fresh prepared food section at the grocery store? I used to eat stuff from the nice places, and I would always get sick, even after talking to the people about ingredients, etc. I think they don't think about cross contamination, and it could be a source of problems for you if you are super sensitive.

Best of luck in finding out what the problem is....I hope you feel better soon!

Laura

miles2go Contributor
miles2go
Posted

I'm mostly vegetarian and this could be the sinus infection talking, but is it possible to ingest gluten from animals that are fed primarily on gluten? Like farmed salmon?

Margaret

Mango04 Enthusiast
Mango04
Posted
I'm mostly vegetarian and this could be the sinus infection talking, but is it possible to ingest gluten from animals that are fed primarily on gluten? Like farmed salmon?

Margaret

No but...farmed salmon is usually injected with coloring to make it pink (farmed fish eat unnatural diets that cause unnatural coloring). Some people are bothered by farmed salmon for that reason (whether or not that's gluten-related..I don't know :huh:) .

happygirl Collaborator
happygirl
Posted
I'm mostly vegetarian and this could be the sinus infection talking, but is it possible to ingest gluten from animals that are fed primarily on gluten? Like farmed salmon?

Margaret

It is not possible to ingest gluten from an animal that is fed gluten.

darlindeb25 Collaborator
darlindeb25
Posted

One thing that was not mentioned--the wine. Wine makes me just as ill as being glutened. I now realize I can not drink any alcohol. You may want to try not drinking or if you need--drink it again to see if it is the culprit.

oceangirl Collaborator
oceangirl
Posted
  • Author
I'm mostly vegetarian and this could be the sinus infection talking, but is it possible to ingest gluten from animals that are fed primarily on gluten? Like farmed salmon?

Margaret

Thank you, Laura, Lisa and Margaret for your thoughtful responses! (Margaret, UMO is my alma mater sp? I love Orono) After reviewing my food log I am suspicious of Pamela's perhaps along with the cheddar cheese. (bummers about the cheese) No, the salmon is just freshly caught salmon BUT this time it WAS farm-raised and I have wondered about what animals eat as well. There's so many potential factors. Thanks, Lisa and Laura- my cosmetics are gluten-free last I checked, (Lancome lipstick, Fructis shampoo and I rinse with cider vinegar-great shine, great conditioner), Michael reviewed my food log and he suspects the Larabars, but I just don't see it- I think they might be rough and give IBS symptoms, but I don't think they are a gluten culprit. The issues I have with gluten are pretty unmistakable. I so appreciate all your kind words. Today I feel a LITTLE better, but it's the nights, after supper and after midnight that kill me. That's always been the case with this and I don't know why. Tra la, tra la... I'll keep trying to unearth the problem although many times I find I never really know for sure.

Take good care. Oh, and Margaret, I sure hope your sinus infection clears SOON! No fun!!!

lisa

oceangirl Collaborator
oceangirl
Posted
  • Author
Thank you, Laura, Lisa and Margaret for your thoughtful responses! (Margaret, UMO is my alma mater sp? I love Orono) After reviewing my food log I am suspicious of Pamela's perhaps along with the cheddar cheese. (bummers about the cheese) No, the salmon is just freshly caught salmon BUT this time it WAS farm-raised and I have wondered about what animals eat as well. There's so many potential factors. Thanks, Lisa and Laura- my cosmetics are gluten-free last I checked, (Lancome lipstick, Fructis shampoo and I rinse with cider vinegar-great shine, great conditioner), Michael reviewed my food log and he suspects the Larabars, but I just don't see it- I think they might be rough and give IBS symptoms, but I don't think they are a gluten culprit. The issues I have with gluten are pretty unmistakable. I so appreciate all your kind words. Today I feel a LITTLE better, but it's the nights, after supper and after midnight that kill me. That's always been the case with this and I don't know why. Tra la, tra la... I'll keep trying to unearth the problem although many times I find I never really know for sure.

Take good care. Oh, and Margaret, I sure hope your sinus infection clears SOON! No fun!!!

lisa

Thank you Deb and everyone else, too! I will check out the wine; I will check on everything!

lisa

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will...
    2. Jacki Espo
      - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure.
    3. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

      Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
    4. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
    5. knitty kitty
      - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      Fascinating.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748
    jenny44
    Newest Member
    jenny44
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.