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Anyone Been Glutened Over A Month?

Mtndog

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Mtndog Collaborator
Mtndog
Posted

OK- I got glutened on January 31st and then ate some chips about a week later that COULD have been cross-contaminated (not sure...Lundberg rice chips) and I still don't feel good. My gas smells like sulfur (which when my primary first suspected I had celiac said was a symptom of malabsorption).

I ate out at Legal Sseafoods and ordered the gluten-free seafood casserole (with GLUTEN-FREE breadcrumbs) which I suspect may have gotten royally screwed up. Possibly real bread crumbs.

I have not been the same ever since- I feel like I have been glutened ever since. I'm nauseous, chills, night sweats, funky BM's like I did before I went gluten-free.

I have checked and rechecked everything and gone back to all my 100% safe products food-wise and personal care wise. I even bought new frying pans because my old ones were scratched just in case (even though they were mostly gluten-free anyway- my hubby used them a few times).

I feel fine unless I eat and then I feel uggy.

I'm seriously wondering if this glutening did some damage if it wasn't just CC and those breadcrumbs were REAL. :ph34r:

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mamabear Explorer
mamabear
Posted
OK- I got glutened on January 31st and then ate some chips about a week later that COULD have been cross-contaminated (not sure...Lundberg rice chips) and I still don't feel good. My gas smells like sulfur (which when my primary first suspected I had celiac said was a symptom of malabsorption).

I ate out at Legal Sseafoods and ordered the gluten-free seafood casserole (with GLUTEN-FREE breadcrumbs) which I suspect may have gotten royally screwed up. Possibly real bread crumbs.

I have not been the same ever since- I feel like I have been glutened ever since. I'm nauseous, chills, night sweats, funky BM's like I did before I went gluten-free.

I have checked and rechecked everything and gone back to all my 100% safe products food-wise and personal care wise. I even bought new frying pans because my old ones were scratched just in case (even though they were mostly gluten-free anyway- my hubby used them a few times).

I feel fine unless I eat and then I feel uggy.

I'm seriously wondering if this glutening did some damage if it wasn't just CC and those breadcrumbs were REAL. :ph34r:

Sorry you are having such a rough time, Mtndog...I have had some long lasting glutenings. Usually they last 2 weeks or so, but I figure at least a couple have been strung together to last to a month or slightly longer. I haven't taken away dairy when it happens, because most of my dairy is yogurt and that usually helps me with its natural probiotics. I do make sure my vitamin intake is bumped temporarily then as I get the muscle/nerve twitches and cracks in the corner of my mouth. The extra B complex/folate and vitamin C helps that, too. I don't know if that will help you heal or not. It works for me. And figuring out what I ate that wasn't right! Not always so easy!!!! My last one was just over a month, so I had my serologies checked to be sure it had cleared up. They were normal, so my paranoia about it has abated now.....hope yours quits soon!!!

Jestgar Rising Star
Jestgar
Posted

Hi Sweetie, I'm so sorry you feel yucky. My prescription would be to curl up in bed with a warm puppy.

Mtndog Collaborator
Mtndog
Posted
  • Author
Hi Sweetie, I'm so sorry you feel yucky. My prescription would be to curl up in bed with a warm puppy.

Oh would that it were so!!!!!!!!!!!!!!!!!!!!! Thanks for the good wishes- yes, it was the Triple Clown of glutenings but this a.m. it actually feels more like stomach flu.

It's so weird how the symptoms are the same bit feel TOTALLY different.

gfp Enthusiast
gfp
Posted
I'm seriously wondering if this glutening did some damage if it wasn't just CC and those breadcrumbs were REAL. :ph34r:

In my experience the quantity doesn't seem to matter.... it can but then every so often the tiniest CC can have me knocked for 6...

Another theory I have is our body stores up gluten in fat... (well around fat) and when we starve and start using the stored fat for energy we release the toxins... indeed we probably release lots of toxins so if your not eating then your using up your fat reserves and releasing the toxins stored away which can make you feel icky all by itself....

On the + side.... you are getting rid of these toxins... once and for all instead oif hiding them away...

emcmaster Collaborator
emcmaster
Posted

I had the same problem. I've been feeling 'off' for about 2 months after I know I got glutened at least 7 times over a week (holidays at the in-laws :blink: ). I think it's some other intolerances now, but it could just be taking you a long time. Who really knows with celiac!??!

missy'smom Collaborator
missy'smom
Posted

I'm sorry to hear that you're not feeling well. The same thing happened to me a while back. Ate out at a restaurant that can handle gluten-free. Got my dish and it looked like regular version so I had hubby try it and weren't sure so waiter checked and yup it was reg one so replacement came and I still got glutened. It took 1 week for the worst of it to get better but 2 more weeks for bloating, C depression, lethargy etc. to really improve. Now 3 weeks later I'm only starting to get back to where I was before. :angry: Made me wonder if 2nd try was still full gluten version. I made the mistake of going at a busy time.

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Mtndog Collaborator
Mtndog
Posted
  • Author

Thanks all for your commenst and support. It is DEFINITELY the flu........ :blink::angry:

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
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      celiac, chocolate and alcohol

      By barb simkin · Posted

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    • trents
      celiac, chocolate and alcohol

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    • barb simkin
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      By barb simkin · Posted

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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