Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Started Gluten Free Diet And Feeling Worse


Mich

Recommended Posts

Mich Newbie

First a little history,

I had the blood test and it came back negative for Celiac My doctor thinks I still have Celiac and wants me to go gluten free. I see this doctor for a vitamin d deficiency. I currently take very high doses (100,000 miligrams a week) to keep my d levels at normal. That is really my only symptom except I have a long history of stomach problems and nausua. I was treated for H. Pylori and gastritis in 2000 and had a long recovery from that for my gut to heal. I find that whole grains do not agree with my stomach, but it includes brown rice as well as gluten products. I also have problems with egg and dairy. BMs are never a problem.

Well, I started the gluten free diet on Friday and my stomach is killing me worse than before! It is a clenching feeling. Normally I feel a little irritation in my stomach, this feeling is more intense like gastritis. I am eating a lot trying to sooth my stomach. Was the gluten actually soothing my upset stomach? Is my problem really Celiac?

BTW: the doctor recommending the gluten free diet and that has me on the vitamin d is my gynocologist. My primary physician has done nothing for me despite my complaint of chronic digestive problems.

Thanks for the help.

-M


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Stay with it Mich, you may feel this way for a bit, but it should get better. Your body has to rid itself of all the gluten poisons in it now. Use a heating pad and look forward to feeling better, ok!

RiceGuy Collaborator

The only thing I can add at this point, is that vitamin D isn't measured in milligrams, so I think the amount you describe would be truly excessive if not deadly.

It is quite possible to overdose on many nutrients, including vitamin D. Since the body stores vitamin D for later use, I personally find it difficult to accept the idea that your level would continue to be low for very long after starting the injections. I may be wrong though, as I'm certainly not the expert on this. I do know that many nutrients play a role in the absorption of others, so it would not surprise me if something else is causing the vitamin D to not be utilized.

Many Celiacs find they need B vitamins. B12 in particular, and some minerals such as magnesium, and calcium. Apparently this may or may not show up on blood tests.

Mich Newbie

Thanks for the responses.

I was wrong to say miligrams, the prescription bottle actually says "units" so I am unsure what I take. And they are not injections, just pills. My levels are actually now normal, but because I take prescription d. If I go off the prescription or take less, my levels shoot down and I have muscle pain. I was tested for calcium at one point and that was normal, but I take a calcium supplement too.

My stomach feels much much better a week on the diet. :D Maybe the initial pain at the start was stomach damage that needed to heal a bit. I still am ravonously hungry though.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Francis M's topic in Gluten-Free Restaurants
      1

      The Happy Tart review

    2. - Francis M posted a topic in Gluten-Free Restaurants
      1

      The Happy Tart review

    3. - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

    4. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,849
    • Most Online (within 30 mins)
      7,748

    TonyP27
    Newest Member
    TonyP27
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Was the card itself lost or just the record or both?
    • Francis M
      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
    • Colleen H
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.