Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Delayed Symptoms


es2443

Recommended Posts

es2443 Contributor

I'm just wondering if anyone else has delayed symptoms after eating gluten. Last week I was REALLY bad and cheated on my gluten-free diet by eating cake at college. I was stressed, had no more work, and felt like celebrating spring break. The problem was I felt fine initially, so the next night when my friends were eating my favorite cake I decided to join them and this continued for the rest of the week. I continued eating poorly until this monday and by then I felt a little bloated but nothing to complain about. I was fine for the next few days, but yesterday I had my constant bloating and headache back again and I still have it today. I am also really tired and have been sleeping poorly. I'm assuming my symptoms are from gluten. Just wondering if any of you experience the same delay in symptoms.

-Erin


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGluGirl Contributor
I'm just wondering if anyone else has delayed symptoms after eating gluten. Last week I was REALLY bad and cheated on my gluten-free diet by eating cake at college. I was stressed, had no more work, and felt like celebrating spring break. The problem was I felt fine initially, so the next night when my friends were eating my favorite cake I decided to join them and this continued for the rest of the week. I continued eating poorly until this monday and by then I felt a little bloated but nothing to complain about. I was fine for the next few days, but yesterday I had my constant bloating and headache back again and I still have it today. I am also really tired and have been sleeping poorly. I'm assuming my symptoms are from gluten. Just wondering if any of you experience the same delay in symptoms.

-Erin

Dear es2443,

I have a delayed reaction. Mine is not as long as yours. Usually, within 12 hours of eating gluten I know. I get violently ill, so I am not even slightly tempted to cheat. I miss a lot of foods I used to eat, but have to say, it is worth not doing. I get nauseous, break out in a sweat, get diarrhea, start shaking all over, and sometimes my hands go numb, and if I am lucky and catch it early, I can down a promethazine before the dry heaves hit. Get off of that stuff! Gluten is poison.

Sincerely,

NoGluGirl

Debbie65 Apprentice

I thought I had delayed symptoms but I have now realised that my symtoms are changing.

The stomach noises and bloating creep up on me over a day or 2 instead of immediately but I become constipated from the day that I eat gluten instead of having the big D. The nausea takes a while to hit now too and I get really congested as though I have a cold coming on. No wonder this disease is so difficult to diagnose if the symptoms can vary so much in one person.

I ate gluten last week too, my problem is that I

jlynn Rookie
I'm just wondering if anyone else has delayed symptoms after eating gluten. Last week I was REALLY bad and cheated on my gluten-free diet by eating cake at college. I was stressed, had no more work, and felt like celebrating spring break. The problem was I felt fine initially, so the next night when my friends were eating my favorite cake I decided to join them and this continued for the rest of the week. I continued eating poorly until this monday and by then I felt a little bloated but nothing to complain about. I was fine for the next few days, but yesterday I had my constant bloating and headache back again and I still have it today. I am also really tired and have been sleeping poorly. I'm assuming my symptoms are from gluten. Just wondering if any of you experience the same delay in symptoms.

-Erin

those are definately gluten symtoms. I get the same symptoms, but usually 24 hours after I eat gluten. I am glad to know I am not the only one who cheats. it's hard. : (

Abug Rookie

I usually know within 12 to 36 hours, and by then, I'm so bloated, I can barely breathe! Fortunately for me, I've been gluten-free for so many years, I've learned to think of gluten foods the same way I think of .. not sure I can think of an adequate analogy, but you know some cultures eat some pretty strange things that most western cultures wouldn't dream of eating. I'd sooner chug down a mug of molten lava than even try to recall the taste of wheat foods.

Woops, I just recalled it .. let me go back on that one, lol! Nuts! Now I have to tell the story:

(I'll try to be brief.)

Back when I was nearing the end of my "I wonder what's wrong with me" phase, my doctor had me on a wheat-free diet because of certain allergies that had already been discovered. He then told me to eat like "normal people" for a couple of weeks (seemed like six weeks .. maybe it was six weeks .. whatever). He wanted to test something, I don't remember what. In hindsight, I should have left him right then, but I was young and stupid, and I did as I was told. I didn't know at the time that it could have killed me. I went out and bought Krispy Kreme doughnuts and Domino's Pizza .. and it all tasted exactly what I would imagine the lawn would taste like. I'd already been wheat-free long enough to become accustomed to it not being in everything (or anything for that matter) I ate. It still smells like a lawn mower bag to me even now.

Sick as a dog, I went ahead and went thru with his "final test," though I had already decided whatever the results, I would never eat wheat again. As it turned out, I had to add barley, rye, oats, and a host of labelling variations to my list, but I learned my lesson, and will never eat another morsel unless I'm sure of what's in it, and it's not on my list (which includes a number of food allergies, some of which are not on the top 8 most common list).

My dad still thinks I'm on some sort of fad diet, and I'm just being stubborn, hehe!

(I think the test must have been a biopsy, because I seem to remember it requiring special preparation due to my hypoglycemia objecting to what I would call fasting. Yeah, he told me, "I wanna see pink walls!")

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.