Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick From Wheat Flour In The Air? Does This Happen To You?


nederlandse

Recommended Posts

nederlandse Newbie

Hi everyone, thanks for reading. I'm 26, living gluten-free for 2.5 years and starting to feel significantly better as of 8 months ago. *

Whenever I visit my parents (3 times since starting to get better) I get very sick - very quickly. It's the same pattern every time: my joints start cracking and hurting, my stomach hurts and balloons (I look pregnant), my mood plummets for no apparent reason, and then I become fatigued and foggy-brained. This all happens over the course of 2-3 days and keeps getting worse until I leave. The effects linger for 2 weeks.

While at Mom & Dad's, I cook my food separately and on my special kitchenware and I eat from my special gluten-free plates etc. The only thing I can think of is that there is flour still in the air and on things that I touch. My mom bakes loads of regular wheat bread and maybe my problem is that the flour remains in the house enough to make me sick. Does this happen to anyone else? Do you react to this kind of trace amount of gluten? Do you react so quickly? Have you figured out any solutions or is my best option to stay away from Mom & Dad's house all together?

I just want to be able to get an idea if this is anywhere close to normal. Are there any tips and tricks I'm missing? Would washing my hands more often help? Thanks for your replies.

Nederlandse

*It took ~2 years for me to start feeling better because even though I was gluten-free, I was sharing cook and dish ware with non-gluten-free people and was washing my kitchen ware with the same sponge as used by people who ate Gluten containing foods. I didn't know using separate kitchen ware, cutlery and cleaning supplies would make such a big difference for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Byte Me Apprentice

I think it is entirely possible that wheat flour in the air could be making you sick, especially if your mom is baking right before or during your stay. For a while, I let my kids bake their own pancakes/biscuits/whatever from bisquick mix. I wasn't even in the house during the whole process - I went next door to my mom's and waited for them to get completely done, cleaning up and all. Every single time, I would still get symptoms within a couple hours of coming back home, especially with the fatigue and bloating.

Tritty Rookie

I've been feeling all out of sorts lately and just read on here the other day that drywall has wheat in it. My husband is finishing our basement. So all of the dust from that must be getting to me - I would think it's possible. I wonder if you could suggest your mom taking an alcohol based wipe to all of her kitchen counters, handles, etc before you come. Maybe it is just laying on the surfaces - gluten is sticky - not just anything will clean it from what I understand...

Guhlia Rising Star

I can't go near the bakery in my grocery store or I'll get nauseous a few hours later. I've never had a full blown attack from this, but I can see how someone could. Light nausea is usually my first symptom.

darlindeb25 Collaborator

I was thinking about this the other day. There are those out there that feel it isn't possible for us to get sick just because we think there is flour in the air. I was sweeping my steps off. I have a basement apartment and I had salted the steps because of ice. As I started sweeping, I could taste the salt--proving that you can get airborne objects such as flour ingested. I always knew we could, yet the steps proved it to me, not a shadow of a doubt now!!!

We often have patients bring donuts, pastries, or cookies in and the other 2 women will sit the box down on the schedule book--I keep telling them they can not do that. They simply refuse to understand, they simply do not care. It doesn't effect them, so it doesn't matter! Sad, isn't it?

nederlandse Newbie

Thanks everyone ! I'll try the alcohol swabbing and hopefully that will help. My parents are very understanding and I don't want them to give up their home made whole wheat (since I don't live at home). Also, even though my symptoms are manifesting clearly - its good to hear from you as a sanity check - no, its' not in my head! Thanks again,

Jessica

powderprincess Rookie

I experienced an air-glutening a few months ago. My husband and I were packing up and moving to a new place. I was outside putting something in the car, meanwhile, my dear hubby dumped a container of wheat flour from the back of the cabinent down the sink, we wouldn't need it at the new place. Of course when I walked inside I could smell it and went outside. My mouthful of wheat in the air was enough to get pretty sick afterward. It can happen and it's no fun!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.